Search results for query: *

Thanks for this, Markku. Enjoyed the last sentence most of all."promising treatments in the not too distant future" etc.

Does anyone know when the am 101 trial results will be available?

Set those concerns aside and just try to sort through all of the information and advise you receive here. This is the best support group I could find. I am sorry I did not see your post sooner and respond. I hope that you are feeling better. I have not been visiting the site , trying to avoid...

James, Hi. I use drugs (prescription) as it is the only way and I struggled with living on two-three hrs sleep for over a month and it really beat me up. I don't like to admit this but I am happy for the sleep I get with Clonaz as it is my only real break from the godawful T. I take a half tab...

I'm considering everything. It was recommended to me, I bought it and took one expecting the T to go away, frantic state I was in. Now the bottle sits here; "calcium magnesium citrate" and it also says "serving size five tablets" and they are big tablets, Karen.

Karen, I read somewhere, here, posted by you, that you found magnesium supplements helpful . Is that right? What are the amounts and what effect does it have?

Yes. I have heard of that and experienced it too.I've been sleeping through last two nights with six to seven hrs. each night and I feel rested- finally after two months. I'm taking a tbsp of Nyquil in water and half a clonaz, and it does the trick. We'll see for how long. I figured I would...

I broke it up during the day two three hrs of walking, real steady pace not slow. It felt like I was escaping the T so i kept doing it, along sidewalks with street traffic so it was good masking and it kept me alive and half sane somehow. It's been a cold and horrible winter with this. How are...

Hi Kenneth, Look around on this site. There is a lot of useful information, things you can try and real support from great people. I too relate completely to what you are going through with this. Is is misery defined. I don't know how I am making through- day by day is all. Frank

Hudson, I just finished ten consecutive days of HBOT here in northeast USA with no positive results, negative result was 1500.00 out of pocket. I found a private HBOT facility, and the treatments are not usually covered. You can try to get a prescription from your dr or see a staff dr. for 100$...

Well, Markku, at one point I was worried about or suspicious of everything and was eating such a bland diet that I hardly ate at all. I have been slowly coming back to other foods, old favorites, without any trouble so far. All of my walking was in effort to escape T and in the dead of winter I...

alcohol has no effect on the T for you then, Thats good

Ha. well, thanks. That wouldnt concern me as I've lost around sixteen ponds since this started mainly from my intense walking routine also from being so anxiety ridden that I couldnt eat sometimes.

Hi, Are you taking it currently for sleep, on a regular basis too?

I did not, yet, Dale. I had to make rent and really had to work to get the funds together, which I did do. I have to get past a few other appointments this month and pay for them before I can make any more. I'm hoping to be able to find a job too in the meantime.

I honestly don't know how women put up with as much or any mistreatment or men either for that matter. Love is a gift and should be cherished if you are lucky enough to find it

Ok maybe not , but to someone that is understanding of my taking drugs and wandering around town all day with my brain hollowed out by this noise. Plus willing to listen to radio or tv, and white noise machines 24/ 7.

I can only wish I had that kind of money and I would readily spend it to rid me of this and have my life back

I guess I'll look into rTMS that's a new one on me. My car should bring 15K how much is rTMS? Louise said Remeron keeps working. I'm trying to find it. I know what you mean about your GF leaving mine is long gone too. Who is going to put up with this? Best bet would be to find someone with it...

I hear you Dan, mine is way louder than any of my sound machines on low, they really have to be cranked up to drown out the T then how does one sleep when it's all so loud? Answer; you don't! I have been stuck inside my apt in a lousy NE USA winter with this for almost three months, pushed to...

Right Louise, There was that window of opportunity with hyperbaric oxtgen so I went for it because I didnt want to regret missing the chance. I knew it might not have any effect from just reading around and I knew I would regret spending the money on the other side of it if it didnt work, which...

Dan, realize that you are not alone. This is a healthy, smart, caring group of people who will help you when times are tough. I can relate completely to what you are saying and you are welcome to stay right on this thread and write back ok? To answer your question, I dont think there is a...

And is it worth it? Psychiatrist visits seem to help and the sound machines and thats about it. I see the psych/ hypnosis guy on the 19th and the big appointment at Jefferson is the 29 where I expect to hear them sell the neuromonics program. I'll have tests and try a hearing aid at that time...

It does in volume, and gravitates to the left at times. It has turned my life horrible, I question my ability to exist like this. People here are helpful and the rest of the world doesnt seem to care

I've got appointment for the tests at Jefferson hospital on the 29th and I will compare it to what they offer in Brooklyn. I think you have to be careful or youll spend tons of money, maybe wasted. T is so loud today I think from alcohol. I'll probably reach for the Clonaz tonight

Where did you go how do I contact you?

I think PBS might have an archive of shows, not sure. They showed his house (in Connecticut) He writes standing up, walks around. it was a really interesting profile and made me want to read more of his books. I have only read two but loved them both. I am unable to read now and I really miss it

Wow I just spent a half hr. reading through all of that. It seems like they are working on something, gives me hope. I'm not too far from NY eother. What is your opinion of it?

Did anyone see the Phillip Roth show last night on PBS? He talked about writing of course but also about his back pain and addiction. That is what made me decide against the pills last night

The melatonin and valerian didn't work for me, not strong enough but I would rather take one or the other of those. I took the cold medicine last night knocked me out almost instantly but left me feeling weird this morning, unable to get up. My clonaz is 0.5 MG, It's like I'm test driving these...

It's better they don't give them out like they do here Markku they are heavily abused here. Thanks for the note

I wont be able to get those till after the weekend so I have to decide what to take if any next three nights. I want no part of Xanax and if Ativan is the same deal only quicker why bother? That leaves me with clonaz, cold medicine (w/alcohol) or both or neither. Help

I, really, after reading through these again, don't know what I will end up doing tonight . I dont eat frank franks . Are you sure about the sodium thing? I am trying to buy foods with less than 400 mg per serving, not so easy to find though

Wow, now confusion sets in. I don't know if I want to even touch this Ativan. So there is an issue with price with Lyrica along with finding someone to prescribe it. I like the idea of a challenge. I will try my psychiatrist first then try a neurologist I guess. Xanax gradually didnt seem to...

I met with the ATA support group. It was mostly world war two vets, nice guys, but seemed more concerned with watching memory skill videos than actual support. I waited a month to meet them and went there hoping somebody would give me a hug but ended up going home without one. They were really...

Wonderful, "rebound insomnia" It is Ativan I didn't hear her right, So I read the literature and it sounds like this will take me down the same road but with even more troubling consequences. I was on Klonopin the last two weeks and couldnt wake up from it was wasted on the couch for hrs the...

I hang on to all of it , all of your encouragement. How is it that we deserve any of this, I am sorry to read what you wrote, now sorry for both of us. You find quickly that some people have no compassion, its a surprise when you see it first hand, and a disappointment. I could go into detail...

I am actually not too far off from becoming homeless. I am spending away all of my savings much more quickly than I thought with the dr bills. I am selling off any possessions, antiquity that has any value trying not to go into my measly retirement account. maybe I shouldnt go into this here.

Louise, I hope you can find something good. I could push myself harder to find work once I get the sleep issue worked out. The past few nights have been real hellish, dark world, you know. I can't do anything requiring too much concentration. The book I know I should read that but after reading...

Yes, Markku, It's morning, good morning and thank you for your kind words. This is the best group here on this site. I am so thankful for the support I receive here and that it exists to found by others who are in need of help and understanding. I wish I could say otherwise but I have no one...

The stomach issues are worse now too as the days go on. I think it is due to general nervousness, I feel mildly nauseous at times and have lost my appetite, then the reflux burn? As if the T wasn't bad enough. I also find myself feeling shakey, hand unsteady. How are you today

No, No I appreciate all you say, you help me What does it mean no moods"? I'm having a rough time . The night was bad, The Valerien made me slightly drowsy for about twenty minutes not enough to overpower the anxiety. I ended up watching dreadful tv until two, then gave up on that and went to...

These are good. mellow music, and i want to go there (the beach with the palm tree not the cool chilled out night club). They might be a better choice than classical as they sometimes sneak up on you with the 1812 Overture which could ruin the day with T. I did almost give in and indulge with...

Hi, Karen, Thanks for the advise. Then maybe the answer is to slow down and enjoy the walk instead of making it a workout. I was taking a drug (OTC) Zegerid which I was suspicious of being ototoxic, there are a few references to these type drugs being ototoxic on the internet. I was taking it...

Louise, What is the chillout / lounge? I might like that. I was looking into getting satellite radio it has all sorts of music, categorized, plus talk shows 24/7 then I wouldnt have the tv light or ads bothering me the way they do at night, just voices or music in the dark. I knew that Chris...

Hi to all, I pledged not to take clonaz last night no matter what but told myself I could take Nyquil instead if it got bad. I never took either one. I had a dull headache and I know that laying down on the couch makes my T worse so I propped myself up, sitting up with tv on trying to sleep and...

Click, If you don't mind, do you take anything on a daily or irregular basis or to induce sleep?

Thanks, Click that means alot, hard to believe there is a way to climb up but I will trust you on this. As it is, this is a dreadful existence, My only motivation is in finding some way to knock it down and then I get into the give up mode. I would just like to jump ahead now, see where I am in...

I watched Beatles at Washington Colliseum on youtube the other day, not loud at all, and I swear it bothered me. I have had a life with music, loved it, all kinds since I was very little and I suddenly perceive it in a different way, being cautious where I would have jumped right into something...

Yes hope and I have hope for this, for you.

Alright so 8 to 5 I would consider that a substantial improvement over one year. That is interesting. I wonder if there is anyone around me I'm in the NE as you know Frank

No, but, Louise, I don't know ultimately what is going to happen to me. There is a point, if there is, where I give up ,I have to have this figured out, It's something I should have done anyway even before the t. The t just gave it a sense of urgency that was not there before because I always...

Thanks, Karen, That is all very encouraging, very. How long have you been going to the chiropractic neurologist? What degree of improvement did you attain and over what period of time? I have not heard of this in my area but will look into it along with everything else I am sifting through Frank

Something else I forgot to tell you. Now, as the day wears on (and I guess the clonaz wears off) A headache creeps in, compounding everything else, not a massive one , feels like a tennis ball is stuck somewhere behind my nose. I have to wonder what potential effect this has long term on one's...

Hi Louise, Wow, why up- and staying? I don't get this, I am sorry to hear that from you. Just hang in there , like you told me to - hang in there for you, for your sister, for me and for all of us. I hope there is someone close by who can give you a hug. I know it sounds simple but sometimes I...

Yes, Karen, Thanks for the encouragement. I need it and all of the support from the good people here.The best people. I live with hope that something will work for me, willing to try almost anything to get my life back or at least some portion of it. It's a long wait here for everything medical...

Yeah, I'm back and good to hear from you. It's inspiring to hear you say you can go back to work. I don't know what I could do at this point workwise. I went down to the hospital and applied for a job taking trays (food) up to the floors and retrieving them afterward, I thought that would be...

Ok, Now I've got it -this "thread" See? I'm really really not with it and sorry for breaking with the protocol the other day. I get to rambling on about my issues as if I own Ttalk, sorry. Nice to be back on and I just read the previous posts, and wonder how you are, Louise. I hope better. let...

Thank you for finding me. There I was telling my mom about my new friends when you all vanished on me. I am not very website savvy so forgive me if I'm off course at times. I gave in to Clonaz last night because, well, basically I was falling apart. I received a call from my doctor this morning...

I had no results when searching antihistimines in the search feature, although I read somewhere online that they can be effective. Does anyone know of any available (brand name) drugs that would be comparable in the US?