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  1. yeezysqueezy

    Hey Mirador! Read your post about your benzo taper. How's it going now? What's your current...

    Hey Mirador! Read your post about your benzo taper. How's it going now? What's your current taper rate? I'm thinking of starting a taper soon. I think my pain H may be due to tolerance withdrawal and I also have very erratic T. Hope everything is going as smoothly as is possible during a taper.
  2. yeezysqueezy

    Hey Erika. I would be extremely careful with daily benzos even at small doses. They cause T and...

    Hey Erika. I would be extremely careful with daily benzos even at small doses. They cause T and H. Decreased effect of your medication on T is expected as your brain becomes tolerant to the drug and your GABA receptors are downregulated.
  3. yeezysqueezy

    Hyperacusis and Tinnitus Following Acoustic Shock: How Can I Continue My Life?

    You’re welcome! I know this situation is difficult, but I believe time is often the best remedy for palinacousis. In the meantime, anything you can do to increase your natural GABA levels and calm your nervous system, like exercise, good sleep, meditation, and a healthy diet, could help...
  4. yeezysqueezy

    Hyperacusis Cured/Reduced by Clomipramine

    This is super helpful to everyone. Thanks for posting. Great advice.
  5. yeezysqueezy

    Hyperacusis and Tinnitus Following Acoustic Shock: How Can I Continue My Life?

    Did he advise you to take the benzo daily? Daily use of benzodiazepines can cause more problems than you might imagine and often worsens tinnitus and hyperacusis in the long run. They’re usually fine to take occasionally, but I definitely wouldn’t recommend daily use. I’m currently trying to...
  6. yeezysqueezy

    Brivaracetam — KV3.1 Modulator

    English translation of the above paper:
  7. yeezysqueezy

    Hyperacusis and Tinnitus Following Acoustic Shock: How Can I Continue My Life?

    Do you have professional medical training? This is dangerous advice. Look up the difference between palinacousis and auditory hallucinations. You, along with many psychiatrists, could end up giving her antipsychotics when she doesn’t have psychosis. These drugs can cause permanent side effects...
  8. yeezysqueezy

    Hyperacusis and Tinnitus Following Acoustic Shock: How Can I Continue My Life?

    I haven't had it continuously for months, but I have read that it is possible! I'm assuming it's the same voice you heard while you were on the bus, right?
  9. yeezysqueezy

    Hyperacusis and Tinnitus Following Acoustic Shock: How Can I Continue My Life?

    This is most likely palinacousis, quite common in patients with tinnitus and especially hyperacusis. I have had it myself. It usually improves over time. It is different from an auditory hallucination, as is sometimes seen with psychiatric illness.
  10. yeezysqueezy

    Myofascial TMD — Botox Into Tensor Veli Palatini (TVP) Muscle

    I know this is really old, but I met with a really good TMD physical therapist this week and she did say that if you can get the medial pterygoid to relax, the TVP should also relax.
  11. yeezysqueezy

    Happy birthday!!

    Happy birthday!!
  12. yeezysqueezy

    Xenon Pharmaceuticals' XEN1101 — Kv7 Potassium Channel Modulator

    Yeah I tried to get Canon Pianissimo done last fall and it is quieter hardware but still hits 110+ dB. Turned out a lot of these places don’t use the SOFTWARE needed to quiet it down to those levels. And even if they had the software, it’s often not possible for the resolution and sequences the...
  13. yeezysqueezy

    Xenon Pharmaceuticals' XEN1101 — Kv7 Potassium Channel Modulator

    MRIs are tremendously loud. They peak at 130-140+ dB. For those of us with significant hyperacusis/noxacusis, it’s out of the question. For people with just tinnitus, it’s a risk vs. reward decision. Can’t usually wear earmuffs on top of earplugs for brain MRIs and your ears are as close to the...
  14. yeezysqueezy

    Xenon Pharmaceuticals' XEN1101 — Kv7 Potassium Channel Modulator

    I looked into the MDD study ages ago and it requires an MRI, which eliminates the possibility for many/most of us :(
  15. yeezysqueezy

    Praying for you!

    Praying for you!
  16. yeezysqueezy

    liquid ionic magnesium is the only mag that works for me. I'm also looking into botox into the...

    liquid ionic magnesium is the only mag that works for me. I'm also looking into botox into the tensor veli palatini muscle
  17. yeezysqueezy

    Can you post a link?

    Can you post a link?
  18. yeezysqueezy

    mine is med induced and louder in one ear. they don't know what they're talking about as usual hahah

    mine is med induced and louder in one ear. they don't know what they're talking about as usual hahah
  19. yeezysqueezy

    Reformulated Retigabine (Trobalt): BHV-7000, a Kv7.2 Modulator by Biohaven (Pfizer)

    Glad you're doing better. Did you have loudness hyperacusis, pain hyperacusis, or both? And how long were you on Retigabine before you started to notice visual snow/eye floaters? Thanks for dropping in and telling us your experience!
  20. yeezysqueezy

    Reformulated Retigabine (Trobalt): BHV-7000, a Kv7.2 Modulator by Biohaven (Pfizer)

    Yeah, it’s frustrating to get our hopes up. If I were them, I would have a note on the expanded access page saying which drugs are or are not possible to get access to at this time. It would also save them a lot of emails. I think our best bet is to eventually get expanded access under pain...
  21. yeezysqueezy

    Reformulated Retigabine (Trobalt): BHV-7000, a Kv7.2 Modulator by Biohaven (Pfizer)

    I’ve already tried requesting compassionate use for noxacusis pain. I agree there is no way they will offer it for tinnitus when they’re not currently trialing for tinnitus. They’re not offering compassionate use for any reasons due to the stage of development.
  22. yeezysqueezy

    @toumeimori hope it keeps helping!

    @toumeimori hope it keeps helping!
  23. yeezysqueezy

    Where/what did they botox?

    Where/what did they botox?
  24. yeezysqueezy

    My original first T took like 3 years to fade to nothing but it happened!

    My original first T took like 3 years to fade to nothing but it happened!
  25. yeezysqueezy

    Vaccinations (Hepatitis A/B & Tetanus)

    It brought it back unfortunately. And it's juvenile rheumatoid arthritis (enthesitis type).
  26. yeezysqueezy

    Vaccinations (Hepatitis A/B & Tetanus)

    I had Hep B vax before med school and it brought my autoimmune disease out of remission. I think my autoimmune disease may be at least somewhat related to my noxacusis.
  27. yeezysqueezy

    How to Prevent an Ear Infection from Using Earplugs Excessively?

    Rubbing alcohol is pretty damaging to tissue. I’ve heard other people use garlic oil but I don’t have personal experience. I’ve used tea tree oil but there’s a study saying it may be ototoxic.
  28. yeezysqueezy

    Ugh I'm sorry that's so frustrating :( if it comes back maybe try protecting your ears a bit...

    Ugh I'm sorry that's so frustrating :( if it comes back maybe try protecting your ears a bit more with plugs and see if that helps
  29. yeezysqueezy

    sorry i jumped right to hyperacusis. probably least likely. I would have your doc check what...

    sorry i jumped right to hyperacusis. probably least likely. I would have your doc check what your ears look like first.
  30. yeezysqueezy

    How to Soundproof a Rental Apartment?

    Can you get out of the lease and move somewhere else with your partner? You could cite your noxacusis as a disability that requires a quiet environment which is not possible without decoupling which I'm sure your landlord doesn't want to deal with. I managed a move from the city to suburbs when...
  31. yeezysqueezy

    :( Does the pain seem to be triggered by sound? Do you have any hyperacusis (things sound...

    :( Does the pain seem to be triggered by sound? Do you have any hyperacusis (things sound abnormally loud)?
  32. yeezysqueezy

    AirPods Max Against Road Noise (Severe Tinnitus)

    Hi! I ended up getting the AirPods Max and they have been great for the few times I drive and for being outside when planes fly overhead. I have them set to lowest possible volume and never hear any announcements or sounds from them. I only wear them with foam earplugs and never play any sound...
  33. yeezysqueezy

    Sorry :( the buzzing is horrible. Hope it calms down quickly

    Sorry :( the buzzing is horrible. Hope it calms down quickly
  34. yeezysqueezy

    Naproxen was the cause of my pain hyperacusis and also made my T go insane. I took it for 5...

    Naproxen was the cause of my pain hyperacusis and also made my T go insane. I took it for 5 days. T has much improved although pain H has not. It should go away but try to avoid all NSAIDs if at all possible.
  35. yeezysqueezy

    The Association for Research in Otolaryngology (ARO) 2023 MidWinter Conference

    There’s no good objective tests for tinnitus or hyperacusis yet. And clinical trials are insanely expensive. If they see good anecdotal evidence after off label use, they’re more likely to pursue FDA approval for another indication. So sorry you had to deal with this person. I also have pain...
  36. yeezysqueezy

    i forgot to add that my weighted blanket has been amazing for me! only problem now is that it's...

    i forgot to add that my weighted blanket has been amazing for me! only problem now is that it's hard to sleep without it
  37. yeezysqueezy

    Valerian is thought to act as a natural benzo so i think that's partly why it helped me to sleep...

    Valerian is thought to act as a natural benzo so i think that's partly why it helped me to sleep and not use any Ativan! But also should add that I've never felt any need to increase the Valerian dosage
  38. yeezysqueezy

    I wouldn't be super concerned about the valium. just work on slowly weaning off of it. if you've...

    I wouldn't be super concerned about the valium. just work on slowly weaning off of it. if you've been on it for awhile definitely don't want to cold turkey but that's a pretty small dose. you could cut it in half/quarters and then even do every other day dosing if it helps.
  39. yeezysqueezy

    Doctors don't know a lot of things. I got half a slide on tinnitus and not a thing about drug...

    Doctors don't know a lot of things. I got half a slide on tinnitus and not a thing about drug effects on hearing. I used a small amount of ativan at the beginning of my most recent T worsening but the valerian helped me get off of it. Some people never have any issues with benzos but some people...
  40. yeezysqueezy

    Hi @Sammy0225 glad you're seeing improvements in H! if you don't mind my asking, what was your H...

    Hi @Sammy0225 glad you're seeing improvements in H! if you don't mind my asking, what was your H like at its worst? Did you ever have pain? Looking for some hope today.
  41. yeezysqueezy

    i take inositol, valerian root, and liquid ionic magnesium (tastes like crap, so i mix it with...

    i take inositol, valerian root, and liquid ionic magnesium (tastes like crap, so i mix it with juice)
  42. yeezysqueezy

    Can Emgality (Galcanezumab) Make Tinnitus Worse?

    Sorry to hear about your migraines :( they can be terrible! n=1 but I tried Emgality back when I only had mild tinnitus and I noticed no difference in tinnitus. Unfortunately, it didn't work for me (I have weird post-concussion migraine) but was a near cure for my mom's migraines! If you're...
  43. yeezysqueezy

    Hearing Loss and Severe Tinnitus — From Loving Life to Suicidal in 2 Months

    Hi @gameover, I hope you're managing okay right now. You will have some funny stories to tell like from this encounter with the paranormal guy. I can't remember if I mentioned this before, but on my first tinnitus worsening after a music festival, I had hyperacusis, but didn't know the name at...
  44. yeezysqueezy

    One Rock Festival Changed My Life by Giving Me Tinnitus

    Hi @FestivalT, sorry you've joined the tinnitus club. To give you a little hope, the first time I got tinnitus, it faded to nothing over the span of a few years. It might've been even gone at the 1 year mark but I just wasn't paying attention at that point. The first few months were hard but...
  45. yeezysqueezy

    Fleeting Deafness Instead of Fleeting Tinnitus?

    I've gotten these episodes for several years, though they became more frequent after my most recent ear disaster caused by a few days of Naproxen. They were terrifying but always resolved within a couple of minutes max. I have a friend with SSRI-induced tinnitus and she said she gets this too.
  46. yeezysqueezy

    for awhile i was getting this seemingly in association with exercise but now i haven't had it...

    for awhile i was getting this seemingly in association with exercise but now i haven't had it for a couple weeks or so
  47. yeezysqueezy

    Tinnitus and Ear Pain After Taking Diuretics Furosemide and Acetazolamide (Diamox)

    So sorry you’re going through this. Have you informed your doctor about what’s happening and are you still taking the meds? Your doctor should find non ototoxic alternatives, but make sure to look them up/ask about them here. Try to stay calm as much as you are able. Tinnitus will likely...
  48. yeezysqueezy

    @SamRosemary Congrats on almost reaching the finish line!!

    @SamRosemary Congrats on almost reaching the finish line!!
  49. yeezysqueezy

    Hope that a lot of your credits can transfer! One of my best friends recently finished an...

    Hope that a lot of your credits can transfer! One of my best friends recently finished an accelerated BSN and they accepted a lot of her undergrad credits. Would be so cool to follow in your grandfather's footsteps!
  50. yeezysqueezy

    @Ryan Scott thank you! I hope you can go back to your studies this year. If you end up working...

    @Ryan Scott thank you! I hope you can go back to your studies this year. If you end up working with patients, T makes you have more empathy for a lot of invisible things people are struggling with. But also a good skill for anyone!
  51. yeezysqueezy

    If you can find a 1.5T canon pianissimo zen machine they are supposed to be one of the quietest...

    If you can find a 1.5T canon pianissimo zen machine they are supposed to be one of the quietest without having to be open. Unfortunately open is much lower resolution but might not matter so much depending on what they’re looking for
  52. yeezysqueezy

    but you should totally do CRNA! i did surgery at the VA and the CRNA's loved it. It's a great...

    but you should totally do CRNA! i did surgery at the VA and the CRNA's loved it. It's a great gig. A GI doc i worked with said they have a better gig than him. if i could go back i might get nursing undergrad and then do CRNA
  53. yeezysqueezy

    @Ryan Scott so I'm technically almost finished with my third year but two months ago took...

    @Ryan Scott so I'm technically almost finished with my third year but two months ago took naproxen for 5 days and got really bad loudness H and noxacusis so i had to stop rotations :( i hope i can go back eventually. i was gonna work for the VA after residency and wanted to help get more...
  54. yeezysqueezy

    but don't be afraid to take time off if needed. I was lucky I was on summer break when I first got T

    but don't be afraid to take time off if needed. I was lucky I was on summer break when I first got T
  55. yeezysqueezy

    i got T at the end of my sophomore year (show that caused it was literally right after finals)...

    i got T at the end of my sophomore year (show that caused it was literally right after finals) and went back in the fall. T worsened beginning of my second year of med school 5 years later and kept at it. You can do it!
  56. yeezysqueezy

    Steroids: Prednisone / Dexamethasone / Others (Oral and Intratympanic Injections)

    Yeah, this is always terrible for me with Prednisone. And I get insomnia like nobody's business.
  57. yeezysqueezy

    Blocking Notch Pathway Leads to New Route to Hair Cell Regeneration to Restore Hearing

    You think decades? They already use adenovirus-based gene therapy (what they described in the article) for cancer.
  58. yeezysqueezy

    Hearing Loss and Severe Tinnitus — From Loving Life to Suicidal in 2 Months

    Just wanted to pop in and encourage you to hang in there. You're in the very early stages and what you're feeling is normal. Just know that time will help but I know it seems impossible from your point of view right now. Lay low for 6 months (you can still do daily activities, wear earplugs if...
  59. yeezysqueezy

    Blocking Notch Pathway Leads to New Route to Hair Cell Regeneration to Restore Hearing

    Wow, I feel like this is a really big deal and this guy seems pretty brilliant and determined. Great find.
  60. yeezysqueezy

    I always imagine what it would be like if the same amount of money that was thrown at covid...

    I always imagine what it would be like if the same amount of money that was thrown at covid vaccines was thrown at T/H/hearing loss
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