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I’m in the UK and about to get hearing aids to use as sound generators. I’m not getting my hopes up too much, but if the pulsatile tinnitus could decrease by even 10 or 20 percent, I think that would make a huge difference. I have had a lot of scans, and while some findings did show up, they...

After extensive scanning, audiovestibular tests, neuro-ophthalmology evaluations, sleep apnea testing, and appointments with a dentist and physiotherapist, the consultant today gave me a working diagnosis: Idiopathic Intracranial Hypotension Without Papilledema (IIHWOP). I feel relieved to at...

I am not sure if this procedure is called different things in different countries. I am in the UK, and two doctors have suggested it to me as a way forward. I am referring to the procedure where a catheter is inserted into the groin and guided up to the brain for imaging under X-ray. I...

I have also tried all the therapies, including Cognitive Behavioral Therapy and Tinnitus Retraining Therapy. However, like someone else mentioned, I experience a relentless screeching sound, like train brakes in my head. On top of that, other tones also appear. For me, my brain cannot adapt to...

I need advice. 😊 I have undergone extensive CT and MRI scans. My pulsatile tinnitus is on the left side. The scans revealed three findings. First, the Anterior Inferior Cerebellar Artery (AICA) is compressing the vestibular and cochlear nerves on the left side. The neuroradiologist believes...

I am eight months in. The noise I hear is like train brakes, along with several other sounds happening at the same time. It is also pulsatile. I have not managed to get used to it yet, but there are many positive stories here, and that truly helps.

Sorry to hear about that. I hope it proves to be only temporary, although six months is a long time for a single incident. It is possible that something else is going on, and the door slam may have been just a coincidence. Are you undergoing any scans or other investigations?

Hey, that's really good news - I hope the pulsatile tinnitus stays away!

Thanks - that's really helpful.

I’ve had extensive imaging for my pulsatile tinnitus, and a few possible causes have been raised, but there is still no single diagnosis. From my own reading, I thought that bimodal stimulation might be worth trying. The research so far seems fairly promising, even though there are some...

The electricity and buzzing are sadly just part of tinnitus. When I first got tinnitus in September 2024, it was a whooshing sound, a bit like waves on the beach. I started to get used to that, but I am struggling with the electricity sound because it is such an “evil” sound. Based on what...

@amyliyahxxx, how was your follow-up appointment?

I have seen probably 10 different doctors now, and each one has had a different theory on the pulsatile tinnitus. It is hard. I have had extensive imaging, but even that seems to be interpreted differently. Rather than seeing this as a confusing situation, I am trying to see it as each visit...

It's really good to read that things are going well.

I’m only six months in with the “electricity” sounds. It has not improved yet, but sometimes I experience other tones alongside the static-like electricity. However, I have read that for many people, it does get better. So, there is hope.

Yes, I have more problems on the left side, along with a high-frequency sound. It really is hell, isn’t it? But thank goodness for groups like this.

Not sure which place is Opus. I know Vista in W1, where they have upright and open scanners—they have two of them—and Queen Square Imaging, where they have a 3T MRI machine. It is loud, but they are very strict about the ear protection protocol.

If you are going to the same place in London (I have been there three times), you could ask for the foam earplugs, along with the extra foam they can place between your ears and the helmet or coil. I have also had scans at Queen Square Imaging. It is more expensive than Vista, but very good...

I feel sorry for you. I have that static or hissing sound too. Yes, I hear it even in the shower. I even heard it while I was in the MRI machine. When I first got tinnitus, I was able to mask it with general everyday sounds, but this static or electrical sound is very piercing. I hope we can...

Yes, I have ETD and some hearing loss. I think it is not uncommon to have both.

Cortical mastoidectomy with resurfacing of the sigmoid sinus was suggested to me by a skull base surgeon to help alleviate my pulsatile tinnitus, which has a vascular cause. Has anyone here had this procedure? I believe it is relatively new, but it seems to be fairly well tolerated and...

I had a massage booked at a local hotel to calm me down the day before my MRI (I am really claustrophobic and have always previously been in an open or upright scanner). While I was in the changing room, the alarm went off — the bell itself was right next to me. I stupidly stayed there, thinking...

Is that scanner somewhere in the UK? I have been in a 3T machine. I am not sure if there are differences between types of 3T scanners. The one I went in was fairly spacious, but it was very loud.

That is a wonderful thing to hear! Well done for getting adjusted. I suppose it probably happens to many people, but when you are at the start of that habituation journey (as I am), it really does feel like accommodating the tinnitus is never going to happen.

It is never simple, is it? I am the original poster on this thread. At first, I was just about coming to terms with having a vascular loop, which is an artery in close contact with the vestibular and cochlear nerves. Then I was told that although the vascular loop was indeed present, it probably...

I’m struggling with two very different diagnoses for my pulsatile tinnitus. I had extensive imaging done in November and December, which was interpreted by a consultant radiologist. His view was that my vestibular and cochlear nerves are in contact with my anterior inferior cerebellar arteries...

Hi @BuzzyBee, yes, the tinnitus is in sync with my heartbeat. I saw a neurosurgeon today, and he offered a different perspective. Apparently, I have something else in addition to what I mentioned above. It was a bit of a shock, to be honest. I found that I could not fully absorb the information...

Hiya, VISTA has two types of MRI scanners in London that are not conventional closed scanners. One is called an upright scanner. You sit between two large bulkheads that contain the magnets. It is a bit of a squeeze, meaning you are close to the sides, but you are not fully enclosed. That might...

Hiya, I’m in the UK. You might want to take a look at Vista Health in London. They have an open MRI in W1 that is really not very loud at all. When I went in it last November, I couldn’t get the earplugs to fit properly, and they didn’t seem particularly concerned. On the other hand, I recently...

Hiya, I have had pulsatile tinnitus since September 24. I am still at the stage of trying to understand it, let alone adjust to it. I had two sessions with a psychologist to help me habituate, but I think it was too early. I still have not accepted that I have it, if that makes sense. I wake...

I’ve been struggling with pulsatile tinnitus 24/7 for the past six months, which was attributed to Eustachian Tube Dysfunction. I had the usual CT and MRI scans, but they were done on an open scanner, and I was told the image quality is not as good as that of a 3T closed MRI scanner. So I...

Yesterday, I had an MRI scan on a 3 Tesla MRI machine. I am really claustrophobic, and at the end of last year, I had both an MRI with contrast and an MRI without contrast, but both were done on an open machine. I was later told that the results were not accurate enough and was advised to have a...

I am interested in this thread. I have had pulsatile tinnitus for six months now. Could you clarify what an MRA scan is? I am in the UK and only know of a conventional MRI and an MRI with contrast. I would like to understand what an MRA is. Also, I assume you are in the United States. Here in...

Hi everyone, I am new here and have been diagnosed with ETD—hopefully nothing more serious, according to my MRI and CT scans. Dilation has been mentioned to me as a preferred treatment over tubes. I am in the UK, so I am not sure if ENT doctors approach things differently here. For those who...

Hello everyone, I am newly diagnosed and have been through CT and MRI imaging, along with ENT appointments. The imaging showed issues with my neck at C5/C6. Does anyone know if there are treatments available if neck damage is believed to play a role in tinnitus? In the UK, it seems we are...

I have a similar experience. When I hear noise, my right ear processes it normally, but my left ear—the one worse from a tinnitus perspective—registers the sound and then adds a prolonged “SSSSSSSSSSSS” noise, like a snake or an electrical sound, after every incoming sound. I have been...