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Hi @Hardwell, long time no see. Thanks for taking the time to write to me. It’s oddly comforting seeing some familiar people who were with me at my worst. It’s been really hard dealing with the loss of habituation and the new distortions/tones but I’m doing my best to plug along. Hopefully I...

@kingsfan Last week my T didn’t actually seem any worse, I was just more aware of it. But now it seems much worse, altho my guess is it’s because of how anxious I’ve been. My nervous system is definitely on high alert. I’m having panic attacks left and right

@BrOKeN_1 Thank you :( I guess I didn’t really think of this as a spike but it makes sense. All of my spikes have been permanent increases, but this seems like just a falling out of habituation. Although now that my anxiety has been elevated for a while, my tinnitus does seem much worse and seem...

@SpiralPath @tpj Thank you both. I’m having a really hard time right now. A bunch of distortions that previously settled/lowered are back with a vengeance, I’m sure due to my anxiety. I just want to get thru this :(

@OneRingyDingy I don’t see a link. I have tried a different maneuver that was suggested to me, but haven’t tried the Epley. It seems hard to do but I might give it a go. Thanks for telling me it helped, that’s reassuring to hear!

It really sucks because I struggle so bad with my mental health. I can’t and don’t function. But so many mental health meds can aggravate existing tinnitus or even cause it. I’m damned if I do and damned if I don’t.

@TheCapybara Thanks, I hope you are too! My T is ever present and still bothers me sometimes. Most of the time it’s just a nuisance that I try not to think about but I do have moments where it brings me anxiety. An ongoing battle as I’m sure you know!! Hope you’re hanging in there.

@henkess I’ve also seen incidents where it has helped people’s T, and others where it has no positive or negative impact on it. It really is just individual. Hoping it at least doesn’t worsen mine. I don’t have much of a choice as I need to take this med.

Thank you!!

@Zigs Of course, anytime! And thanks :)

@BrOKeN_1 @snizzleberry @kingsfan Thanks everyone!

@tpj @4Grace Thank you!!

Sorry to hear you’re feeling similar to how I felt last year ;( I think what helped me on my worst days was doing things that could offer distraction from my T even if it was only for a few moments at a time. Video games (low volume), reading outside, watching vids from my fav youtubers (on...

@kingsfan And sorry that we both have to be a part of the super fun tinnitus club

@kingsfan Thank you. It definitely sucks :( Looking back, I think I’ve had mild T for a long time. I remember thinking “silence is so loud” when I’d go to the bathroom at night. Just sucks that it got worse very suddenly. But it brings me less anxiety these days altho I still hear it often. I...

@TheCapybara Thank you :) How are you doing? I hope you’re doing alright.

I feel like I’m going to have a huge breakdown over it any minute now :,(

@GG_Ear I do, I have TMJ issues and clench my jaw pretty bad at night. Recently started using a gua sha to massage my sore facial muscles and am going to incorporate some TMJ exercises as well to see if it helps anything. Not sure if my T or TTTS are related, but it seems reasonable.

@snizzleberry My tinnitus is actually worse than it was at onset; I had periodic worsening every 3 months for the first year. However, for the most part, I cope with it better. The distortions have lessened over time as I mentioned. My TTTS was bad for the first year; it’s been mostly...

I’ve had that for a little over a year. Fans and running water (toilet flush, shower, etc) especially. It has lessened over time though, the distortions/beeping becoming quieter

@SamRosemary Ugh I’m sorry, it’s the worst :( I’ve noticed when I wake up lately, my jaw is so sore from how tight I’ve been clenching it in my sleep. So I’m wondering if there’s a correlation for me

Obviously, I was hoping for a full fix, but I’ve exhausted all options; had thorough scans of my arteries and veins, had them scoped with a camera and scanned some more, had a CT of my temporal bones. Nothing else has been found. But some relief is better than none.

Given the hell I’ve gone thru w my PT - the years of trying to get the right doctor, the many scans & painful diagnostic procedures, the hell of the 2 surgeries & ICU stays, the first surgery not working, the nightmare month following the 2nd surgery where it was thought I had a stroke, brain...

@eldudebro Unfortunately not gone entirely. But I think the 2nd surgery thankfully helped a decent amount, since the 1st surgery didn’t do much at all. Over all, I think I hear the pulsatile T less frequently than I did before my 2nd surgery.