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You don't, you keep going forward, is the only way. We can't suffer on things of the past that we can't change
@Nadia231 @TheDanishGirl Very few know, there are two groups in facebook called tonic tensor tympani / middle ear myoclonus. I will doctor santos...
Thank you so much Bud @in_LA
There is surgery for it @TheDanishGirl
May be TTTS or MEM
The ear vibrations are the worse
Don't pay attention to them. There a few people here who takes the anger and frustrations with other. I had block a few folks due to that.
Thank you got asking
Not well, I keep getting worse in my entire general health and having more things and is difficult. Is just an agony
Not doing good, yes suffer from severe neck and TMJ issues for 2 years. Doing nucca and PT so neck a little bit better but not great
View of NYC from my drone.
So happy for you @Kjforever , you did regular chiropractor or type like upper cervical one?
Everything I heard of Lenire was bad, even saw a guy's doing a blog and said his T got worse.
Thank you @Rockman
Thank you @kingsfan , I hope you are doing well my friend.
I was prescribed cymbalta 30mg, anybody have any feedback? Is for my TTTS/MEM
@in_LA Tonic Tensor Tympani (TTTS) and Middle Ear Myoclonus (MEM)
Correct @SamRosemary , is driving me crazy. I can handle the 10 tinnitus but not the TTTS. I will go to boston to see DR Santos, seems the best...
I'm going to NUCCA and doing PT, my neck and jaw are killing me for weeks and for sure is the causes of my issues. I think there is hope, it does...
Different muscles and some says TTTS is part of MEM but is almost the same, the difference may be which muscle is causing the spams in the ear.
Some people do nothing and after time goes away. Other do magnesium and COQ10, other do potassium or vitamin B.
Some many different causes it...
I have TTTS is thumps, I do have pulsatile tinnitus for over a year but that's totally different. I have Pulsatile Tinnitus, regular Tinnitus and...
There is still hope, I talk to a lot of people and they get better with time as other don't and get surgery etc @Kjforever
I just started 15 days ago, so I can't be much help. I still suffer from MEM and is driving me crazy. Two days ago I had an episodes for 6 hours...
I got an MRA/MRV. I had no issues with the agent in my veins.
Only thing, the machine was loud as hell due to being an old machine and the tech...
THIS IS ONE OF THE BEST THINGS I HAVE READ HERE, THANK YOU!
How are you doing these Days Bob?
How are you doing these days?
Should be temporary, give it time to heal and protect your ears.
It gets better, but takes time.
Sorry to hear that, lets hope it goes down soon.
If you have an MRA/MRV done, reach out to Athos Patsalide one of the best that did treatment for PT and he can check your exam remotely and the...
I was able to sleep and live normal live again with severe PT, but 70% of the time there is a cause but mine seems TMJ so not much doctors can do...
I know this seems the end of everything and we all go thought that first few months or even year. But it does get better, trust me. I suffer from...
Hanging in there, I need to continue with work I can't have days off, my struggle is a night because my TTTS happens while I sleep mostly and...
Good week everyone's!
Is the best we can do, try to live our live the best way we can and keep going.
Victory, enjoy the weekend buddy
Doing that, plus NUCCA and PT @makeyourownluck feel better but I have very severe neck and tmj issues
For sure is a nightmare and a lot of suffering, but believe me with time it will get better. The issue seems ears take long time to heal.
Magnesium, ashwagandha, coq10, B supplement, melatonin, etc but not helping with the TTTS @in_LA
Last night ear vibrations, the MEM/TTTS didn't stop for a second, was not able to sleep. This new symptom is killing me.
Ask the place about and explain your ear issue, I just wear the 3m yellow earplug but still was really loud, you should have a second layer to be...
hanging in there @in_LA , the thumps are less now thanks god.
Good to hear @Blix M. Paraglot and most important that you finally find a good doctor, I'm still in my search for one. I hope you get totally heal...
I got mine in NY and the brand is Micro Sonic.
I got custom muscian ears plugs and they are great.
I did it and had no issues. But protect your ears, those machines are loud.
Dude try everything possible, there are medications, try to see the root of the issue and try everything possible. Pills can help with depression....
I had MRA/MRV wit no issues at all but for sure is really loud but luckily my Tinnitus was not worse. Mi Tinnitus and PT seems to be cause by neck...
Give me a lot of hope @Blix M. Paraglot, did your episodes lasted long?
Lets your esrs heal, you may do more damage. Don't push your luck.
All the best
I also suffer from pulsatile tinnitus. I did an MRA/MRV of my head and neck and I was checked by Dr. P, one of the best doctors for pulsatile...
I started 10 days ago and is my first time @Mi1 . I do have others tinnitus but mine was due to stress and TMJ and Neck and I have no hyperacussis...
Now I'm confused. This is not TTTS? I have a thump like morse code, it happens a few times and then comes and goes.
Mine is not reactive to...
Wow, so sad and shocked reading this.
Rest in peace Joe.
Now I have TTTS so back to square one.