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After extensive scanning, audiovestibular tests, neuro-ophthalmology evaluations, sleep apnea testing, and appointments with a dentist and physiotherapist, the consultant today gave me a working diagnosis: Idiopathic Intracranial Hypotension Without Papilledema (IIHWOP). I feel relieved to at...

I am not sure if this procedure is called different things in different countries. I am in the UK, and two doctors have suggested it to me as a way forward. I am referring to the procedure where a catheter is inserted into the groin and guided up to the brain for imaging under X-ray. I...

I need advice. 😊 I have undergone extensive CT and MRI scans. My pulsatile tinnitus is on the left side. The scans revealed three findings. First, the Anterior Inferior Cerebellar Artery (AICA) is compressing the vestibular and cochlear nerves on the left side. The neuroradiologist believes...

I’ve had extensive imaging for my pulsatile tinnitus, and a few possible causes have been raised, but there is still no single diagnosis. From my own reading, I thought that bimodal stimulation might be worth trying. The research so far seems fairly promising, even though there are some...

I’m struggling with two very different diagnoses for my pulsatile tinnitus. I had extensive imaging done in November and December, which was interpreted by a consultant radiologist. His view was that my vestibular and cochlear nerves are in contact with my anterior inferior cerebellar arteries...

I’ve been struggling with pulsatile tinnitus 24/7 for the past six months, which was attributed to Eustachian Tube Dysfunction. I had the usual CT and MRI scans, but they were done on an open scanner, and I was told the image quality is not as good as that of a 3T closed MRI scanner. So I...

Yesterday, I had an MRI scan on a 3 Tesla MRI machine. I am really claustrophobic, and at the end of last year, I had both an MRI with contrast and an MRI without contrast, but both were done on an open machine. I was later told that the results were not accurate enough and was advised to have a...

Hello everyone, I am newly diagnosed and have been through CT and MRI imaging, along with ENT appointments. The imaging showed issues with my neck at C5/C6. Does anyone know if there are treatments available if neck damage is believed to play a role in tinnitus? In the UK, it seems we are...