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Yes, it's frustrating to say the least. We posted this on our X just now: [ATTACH]
I asked a follow-up regarding this:
Latest from today:
Hi @Nick47! Prof. McNaughton agreed to an interview, but our technical set up is maybe a little challenging for him. We always like to record in...
I'm pretty confident it's not his sock account. There are many reasons why I think so, but rather not go into specifics as to not give ideas to...
We have reached out to him. :thankyousign:
This is their stance, from Jon Pearson, CEO of Auricle: Basically, I would not hold my breath. They are working on it, they are doing their best...
Yeah, correct. She didn't present anything new there or at the symposium we all didn't already know about (I had confirmed this with her earlier).
Hi @Nick47. I like your idea, but I share some of the same concerns with you. I usually don't want to publicly disparage any organization, but...
Done. :beeranimation:
I sent him an email to tell that people are curious, let's see if we can get update! :) EDIT: Tyler already kindly responded, he said he would...
Here's a further response by Dr. Shore from today:
Would she have been able to do all this work, an admirable career in the field, with disabling tinnitus? I guess it depends what your definition...
Nope. And she of course also consulted others in the company, so it's definitely company policy not to discuss it.
:thankyousign: everyone for the kind words. I know there are open questions that we didn't get the answers for, but we just have to accept the...
[ATTACH]
We ended up with about 60 questions but I don't think Dr. Shore will be able to answer all of those even if she wanted to - I made the suggestion...
Oh we did first try several AI tools! Some of them wouldn't accept the long list of questions, and when it would, it couldn't really understand...
Many did. In total there were nearly 900 questions. We curated them and sent them to Dr. Shore. A lot of the questions were interesting, like......
We will ask, but you shouldn't expect that we can deliver that information. Based on our meeting with her, she won't be able to say yes or no.
She has not made any announcements whether they have submitted to the FDA. Anyone emailing her will waste their and her time. She has stressed it...
Update on Dr. Shore interview We had the privilege to speak with Dr. Shore earlier today. She came across as someone very passionate about her...
I for one appreciated the push by @Damocles - sometimes people need that kind of wakening up. I didn't sense any malicious intent. And like he...
Ask me once we have interviewed Dr. Shore. I tread carefully after how Lenire turned out to be. But the situation here is different (substantially...
This is a good idea. I'm sure @Hazel will put out some feelers. I bet not many are aware of this latest study being published yet since the...
Dr. Shore shared the following with us.
Yes, but the exact time is to be determined, and your conclusion is correct :)
I don't like speculating. For all we know, there could be a delay for reason unbeknownst to us, or things could advance quicker than we thought....
We'll be there. I don't think Dr. Shore will (I'm not 100% sure though), at least she's not listed as having a slot for a presentation. From our...
With all due respect, Michael, this is, pardon my French, horseshit. If I had the "suicide disease", trigeminal neuralgia, would you gladly...
We used to have dislike option in the beginning 12 years ago, but got many complaints about it not feeling nice to receive dislikes on a support...
I'm leaning towards that device being in the "never happening" category, whatever it might have been. The way how the document lacks any basic...
I imagine @AnthonyMcDonald is probably refering to how Trobalt (Retigabine) seemed to help some people's tinnitus but the side effects were too...
One of our researcher contacts commented on the results presented at the Palm Springs Hearing Seminar as follows. I can't wait for the paper to be...
Ruben's thread title literally says that tinnitus wears you down and causes other illnesses. Why would you go out of your way to come up with...
I've done the V5 23andMe. There are indeed 8 tested markers for the GJB2: c.35delG, W24X, M34T, V37I, c.167delT, c.235delC, S139N, R143W....
Hi Eric. Yeah, it's written in Swift. The developers suggested it because, based on the wishes we had for the app, they thought using AudioKit...
I'm sorry it's not available on Android. App development is exorbitantly expensive. The iOS version was funded by a very generous Tinnitus Talk...
First I thought you were joking, because there are even some so-called professionals whose thoughts align with the above, and so I hoped you were...
That summarizes it pretty much, Damocles. You'd be hard-pressed to find popular channels to do PSAs out of the goodness of their hearts. They'd...
Based on your posts, I can clearly see you're in dire straits yourself. Here's hoping 2023 would bring some relief your way.
I also suffer from various vision related issues, which make life even more problematic. And as my luck would have it, these are not the kind of...
Hi Travis, my tinnitus is loud as ever, it's not eased up a single time since the onset in 2010. On the contrary, it's gotten permanently worse a...
But I'd like to hear more of your thoughts so I'll reach out to you.
Hey :) Ideas are always welcome. Yes, we even had an intern for six months some years back, where lots of outreach was involved. Results were,...
It was definitely a surprise to us because previous figures I'd seen from various sources and studies often indicated 70-80% could modulate their...
You aren't the only one; immediately I can think of @Hazel whose tinnitus simply cannot be modulated. No matter what kind of facial, neck, jaw or...
To be clear, everything that we know about the Phase 2 results (from the Palm Springs Hearing Seminar) we have communicated with our members. Our...
You should be this worried about that: 0%. :) I'm not at liberty to share everything we know at this point in time, but it's not a one-person...
A couple of years ago we ran a survey targeting people (i.e. we emailed them) who had not visited Tinnitus Talk in two months or more. We received...
@Hazel mentioned this in the notes (taken from the Palm Springs Hearing Seminar thread): Control: Participants were not able to distinguish...
A few slides that weren't yet shared in the Palm Springs Hearing Seminar thread: [ATTACH] [ATTACH] [ATTACH]
Aaaand we're ready to start the second, and final day. You can expect notes from both sections, IV (Biotechnological Treatments for Hearing Loss)...
There is an opportunity to ask questions at the end of each presentation. We will ask this for sure (based on yesterday, there's limited time and...
I was taking notes at the time, but @Hazel was watching; Dr. Shore had a little smile when she said that she would present some results of the...
Dr. Shore just confirmed that she will show some of the results of the latest study tomorrow!
Thank you both :) We'll use the Palm Springs Hearing Seminar December 2022: Coverage thread for updates. It will remain locked until the seminar...
I and @Hazel are currently attending the Palm Springs Hearing Seminar, which takes place on December 2-3, 2022. The seminar is split into 5...
If there's anything truly interesting to report, like results or discussion of the second trial, we will pretty much live update on that, so no...
As would we. We've tried to get him on the podcast multiple times, unfortunately unsuccessfully.