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I have loudness and pain hyperacusis. I think I took Retigabine for max two months, and took quite a high dose at the end. During the time taking...
Your post triggered me. I don't know if I posted it at the time, but I also took Retigabine for a while. I can well remember the first night I...
Thanks @brokensoul!
@MRItechssuck I signed up around September. I’ve got an invitation for April. Really doubting if I must go or wait. I need some more confidence...
I know you already said it somewhere but when can we expect the results of your study? I’m asking because today I received an e-mail from...
I said this before, but I was told they would like to offer the treatment sometime in 2020. I’m Dutch speaking and the email conversation was in...
Brai3n clinic told me they would like to offer the treatment sometime in 2020. My interpretation of the e-mail is that they are talking with...
Good work! I really appreciate it. Still in doubt if I should apply to the clinic in Dublin or wait for clinics closer to home (The Netherlands)....
Lol, I see the doctors are joining this thread. :D
Very niche? You know 1 in 10 people experience chronic tinnitus, and if I remember correctly 1 in 100 suffers from it. I think you underestimate...
@Kam75 I think what John says is true for most tinnitus sufferers. I had a 3 month old baby when my tinnitus started. I was suicidal and thought...
Could someone with the device on hand post a sound clip of the sounds being played by the device? Really curious how it sounds.
@drcross, thanks for the write-up!
@Tomas80 No official announcements or dates of availability in other clinics yet.
No, please don't think so. You are absolutely doing the right thing! The money is nothing (it's just money) and the chance for an improvement is real.
I've also sent them an e-mail and in their reply to me they didn't specifically say it will be available in January 2020. To me they said they...
@Mentos this is some good news. I was doubting about mailing them, glad you did! Thanks for sharing!
I think they also learned that switching from timing pattern after a few weeks is boosting the results. I hope they continue finding these...
@ruud1boy thanks for answering. :) Unfortunately Regensburg is an eight hour drive for me, Dublin is closer (I'm from the Netherlands). Somewhere...
Any news about clinics in mainland Europe offering the Lenire treatment? I'm hesitating signing up for the clinic in Dublin. I don't want to make...
Oh man, I really really really hope they still sell it for around €2500. I would get it immediately, €4000 is a different story. Can't wait for...
Wow, I really hope @annV is wrong about the price. I have the money but I don't like gambling, and a €4000,- gamble is too much for me. Such a...
Everything seems very promising. The only thing I'm afraid for is that they only tested the device on people who have had tinnitus less than 5...
I really wish they announce a release date finally. I didn't check Tinnitus Talk for almost two years or so but now I'm checking daily hoping for...
I don't think it wouldn't be a problem (not that I'm a scientist). I experience my tinnitus as a brain related thing. At the time of onset it was...
It's been a while since I last logged in on Tinnitus Talk. When I got my tinnitus 4 years ago I thought my life ended but I'm glad I can say that...
Thanks for your reassuring replies. I'm still worried my eye problems have something to do with trobalt. Since I’ve read about the vitelliform...
I have taken trobalt seven months ago for a two month period and stopped because of the side effects. The last two weeks I have strange eye...
Progress Report Progress Report Date: Oct 21, 2015 Current Retigabine Dosage: 150mg 3 times day Current Side Effects: My planning was on...
Wow, I almost can't believe the trial is stopping because the drug isn't working, however everything points in this direction. At the moment I am...
I am on Trobalt for a couple of weeks now. Started with 3x50 mg. Next week 3x100, and so on. Did'nt experience very much of a difference before...
Progress Report Progress Report Date: Oct 12, 2015 Current Retigabine Dosage: raised to 3x 250 mg a day last weekend Current Side Effects:...
Progress Report Progress Report Date: Oct 5, 2015 Current Retigabine Dosage: 3x 200mg a day Current Side Effects: Last weekend I upped my...
Progress Report Progress Report Date: Sep 28, 2015 Current Retigabine Dosage: 3x 150mg a day Current Side Effects: none Current Tinnitus...
Progress Report Progress Report Date: Sep 21, 2015 Current Retigabine Dosage: 300mg (3x 100 each day) Current Side Effects: Sometimes a...
Progress Report Progress Report Date: Sep 15, 2015 Current Retigabine Dosage: 150mg per day Current Side Effects: none Current Tinnitus...
New User Information Gender: Male Age: 32 How Long Have You Suffered From Tinnitus? (Date of Onset): Jan 7, 2015 How Did You Get Tinnitus?:...
I've read through some threads about keppra and maybe I want to try it. I have T since the second week of January (probably because of...
