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Brain plasticity delivers habituation, which is phenomenal
If hearing aids actually cured hearing instead of just overcompensating for lost hearing, this would be a more valid point.
Hi all, I’m back! Where have I been? Well, I flew to Dublin at the beginning of 2020 to pick up my Lenire box, and then... never went back...
Prednisone is just a corticosteroid. It stops inflammation. It has all sorts of side effects but I don't think going after support cells is one of...
Just returned home with my Lenire and now I'll be logging off here for the next couple of weeks or until I have something to report. Tata!
Well that would have been handy. As it is, I've flown back to Dublin to pick it up. My carbon footprint is amazing!
Bet you $2000 she doesn't, which by getting Lenire is basically what I'm doing.
No, however I used it for well above the recommended 7 days. As noted by the lovely experts at Chicago Dizziness & Hearing, "With repeated dosing,...
FWIW, I neither need nor expect complete silence. I'd love to just get back to where I was before getting screwed by Neomycin ear drops. I think...
I'm in California, each trip costs me $1k and my employer has an office in Dublin where I can drop in and work so it's not costing me PTO. I'd...
Because I've begun the process of habituation. It's always there when I think about it but I now go for hours at a time without noticing...
I sometimes get a minute of silence (proper, plug my ears and check silence) after sex.
Yikes, mine tends to be in the teens or twenties. Still wanted to do Lenire though!
if that's the case they've either confirmed or disproved the hypothesis to the point where they didn't bother asking me about it in my initial...
Hello from Dublin! I've just had the appointment and have been approved for the device (happy but not surprised thanks to all the great...
SF, which is a terrible place. London was a better city in every way. I hope to move back someday.
In the airport on my way to Dublin!
I just got off the waitlist! Appointment in January! [ATTACH]
Speak for yourself. I'm waiting for the Lenire appointment. But please do cancel yours so I can get to it sooner.
I’ve been on the waiting list since June.
Because THI is about how much it distresses you, not how much you hear it. It's super high pitched and I hear it all the time. I'm not distressed...
Oh yeah I'd definitely do that. My THI isn't that high (probably in the teens nowadays) currently so it would be awesome to go down 10 points.
Do we have any evidence that these chemicals are a risk when ingested? Like do they both a) not get broken down by the digestive system and b) get...
Sent over my audiogram.
I agree that can be a cause. But what we don't know if fixing the high frequency hearing loss will fix the tinnitus--hard to prove (or...
I did. Confirmed at Stanford. Rejected from FX-322 study.
Ohh baby yes please. All I have is high frequency hearing loss above 12 kHz (and matching high frequency tinnitus) and if fixing hearing stops...
Is that a generic "pretty sure" or a classic JohnAdams "pretty sure, wink wink"
It's literally statistics my dude.
Darn, I was rejected from the clinical trial. My audiogram was too good, apparently.
What counts as "high frequency" for you?
Same problem. I don't have hearing loss until 12 kHz or so.
Yes, absolutely, on a long enough time horizon. And I don't need a cure. I'd just like a reduction.
Don't a lot of Germans believe homeopathy is effective?
Bay Area but why would I let that stop me?
I’m in California, how do I apply to the clinical trial?
But hey, 8000 Hz and above solves a lot of people's problems.
Not me.
When I first read this, I interpreted "downwards" as "my life is going downwards" not "the tinnitus is going downwards." Phew!
A... positive effect?
Why does Minbo Shim think that?
Being totally selfish here, I'd be thrilled if FX-322 can fix high frequency hair cells, as that's precisely where my tinnitus and hearing loss...
Behold, molecules and stuff: https://stm.sciencemag.org/content/10/422/eaal3175 Synaptic plasticity has been suggested as a foundation for...
What about people who didn't?
Here are some random spitball ideas: FX-322 heals some, but not all (or enough) hair cells to dampen tinnitus It could be unequal in results for...
Who's to say they're puzzled? Maybe they are working on their own version and just aren't as far along (or are being quieter about it).
I used neomycin eardrops and that brought me back into tinnitus world (I got it in 2015 but had habituated to the point of forgetting I had it).
At this point, everything except for classical music (lack of percussion means my tinnitus screams through on top) --that said, other music works...
Hi all, I seem to be developing vestibular migraines with pollution as a trigger. Since I've been twice screwed over by ototoxic medications, I'm...
It's not radical to believe in something that works for you. I was struck down by tinnitus in 2015 (thanks, antibiotics) and thought my life was...
Can I... borrow it for a week, I'm in London, kthx.
I have fears I'll find FX-322 only works in cases of low frequency hearing loss and not high frequency hearing loss like I have. But then again...
Yeah that's pretty much every country except for America haha.
You know we're going to ask the usual questions... What's your tinnitus like? High or low frequency? Tone? Hissing?
Great video! Interestingly he said "in 10 years" and this was 2012. Would we still be on track for the early 2020s?
I same thing happened to me with the tinnitus I got in 2015. Habituation is Magic (Now waiting for magic round 2... it's hard)
I find it very improbable that something would cause neurological damage but only in one specific region of the brain that's really far from the ears.
I am down hearted since May but I'm not letting it stop me from living my life. I know I'll habituate eventually. Life has to go on. I'm here...
Wait so did they only test minimum masking level? Not tone of the tinnitus itself? Was the hearing test up to the usual 8 kHz or did it go higher?
Got an email from Neuromod offering December 20, but that's too close to Christmas for me so I asked for it to be moved to after the holidays....