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My surgeon is Dr.Mathew Hanson. There is a website that lists the names and state location of doctors familiar with middle ear myoclonus and can...
When I saw Sismanis he recorded a CD of my ear spasms for my use in seeking help back home. It was useless as no ENT was familiar with middle...
I saw Sismanis in the US. He was practicing at a University in Virginia and highly recommended by Lib (he did her surgery). I believe he has...
Funny it was Dr. Sismanis who originally diagnosed me with Myo some seven or so years ago. It took me many years to find an ENT specialist...
You bet. Dont give up. You will get pass this and move on with your life. Good luck and keep me/us posted.
Glynis, Wishing you the best day ever. Happy Birthday.
Chelles my procedure was done through the ear - cutting ear dumb to access the muscles. Ive read about the endoscopic procedure being less...
Yes I noticed T when my ears got much worse from the myo, before the surgery. Aftet the surgery, the pitch got higher but it seems to be...
It is okay to be fearful. This disorder is complicated and rare. Finding a qualified and experienced doctor is half the battle. The muscles...
Chelles I feel your frustration. Ive had MEM for eight years now. It goes into remission for a few years, but always comes back The surgery...
Hi Michael, Hope you have found relief and the spasms have stopped. I totally get it. With me its the constant thump. Goes on for hours and...
The surgery is a simple out patient procedure. Your ear will be packed while healing resulting in temporary loss of some hearing. There will be...
My dr. saw the ear drums dimple to confirm myo. Both tendons were cut. When the thumps morphed in a continuous tone it sound like a broken...
Well do my best to explain. The thumps/spasms were so bad it was felt and heard (subjective tinnitus). I felt my ear drumb moving all the time....
Totally understand your hesitation in having surgery. I was desperate and had to take a leap of faith the surgery would offer some relief... it...
Don't know enough about hyperacusis to provide an answer. All I know is my myo started first thing in the morning once my eyes opened. It would...
I did not have hyperacusis officially but the myoclonus was so severe in both ears from tensor tampani and stapedial tendons, my ears became...
Had the surgery four weeks ago. I am happy with outcome so far. My ears were in bad bad shape. The mucles were not protecting my ears from loud...
I have middle ear myoclonus since 2007. At first it started as a flutter in one ear then got worse with heavy deep thumps/spasms in both ears....
I am new to the board and learning so much. It has become a new best friend of many. Billie you have given me pause and hope about my life. My...
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Hello! Want to know how you are doing since your last update on MEM surgery? Are you feeling well with no more thumping? Has the post-op T gone...
Dina, my neurotologist suggest I have surgery to remedy my MEM. I have severe thumping in both ears..madness! My biggest fear is the post-op...
PoodleChick have you recovered from MEM surgery? Did the procedure provide relief from myoclonus symptoms? I am especially curious if the post...
Hi Hichem, The twitching may be middle ear myoclonus. Check out tensor tympanic, stapedial, and palatal myoclonus. Middle ear muscle spasms...
