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  1. Tom Cnyc

    I'm Fine — Tinnitus Is Basically Not a Thing Anymore

    It took me years to accept that many of the issues I’ve experienced were tied to nervous system dysregulation. At first, hearing that was upsetting, both for me and for others. But in the end, coming to terms with it has been empowering.
  2. Tom Cnyc

    I'm Fine — Tinnitus Is Basically Not a Thing Anymore

    At 14 months, I started to feel better. My hyperacusis went away. By 3 years, I was much better, living a completely normal life and not thinking about my tinnitus. Around 4 years, it was basically gone. However, this does not mean anything for anyone else’s timeline.
  3. Tom Cnyc

    I'm Fine — Tinnitus Is Basically Not a Thing Anymore

    You can reject this concept, or you can try something different. How well has your approach worked for you? People often reject this concept because they feel attacked. “This is not my fault, I do not want this.” “I am a victim of this.” “This is not all in my head, I am not crazy, it is...
  4. Tom Cnyc

    I'm Fine — Tinnitus Is Basically Not a Thing Anymore

    Reminder. I am posting here because, for the second time in my life, I had an injury that the world will tell you is permanent. You think tinnitus is bad? Try a brain injury on for size. I became obsessed with forums again, and the negativity made me MUCH WORSE. And now? I am dramatically...
  5. Tom Cnyc

    I'm Fine — Tinnitus Is Basically Not a Thing Anymore

    I am sorry you people are suffering. But that does not change the fact that nearly everyone will be OK. And it also does not change that it is really quite unfortunate for you to kill a positive post in an otherwise highly negative place. You are not raising awareness. People here obsessively...
  6. Tom Cnyc

    I'm Fine — Tinnitus Is Basically Not a Thing Anymore

    OK, since people can’t seem to resist posting negativity in a thread meant to be positive, I’ll share a quote from Sarah Polley: “Everyone tells you to listen to your body, but very rarely does someone ask you, ‘How much are you listening to your body?’” Yes, be careful. Wear earplugs. But...
  7. Tom Cnyc

    I'm Fine — Tinnitus Is Basically Not a Thing Anymore

    You are completely ignoring everything I have written. I am not suggesting a four-day rave on the first day. What I said is that you need to balance your nervous system and gradually reintegrate. Honestly, you might want to give it a try.
  8. Tom Cnyc

    I'm Fine — Tinnitus Is Basically Not a Thing Anymore

    So, your body releases cortisol heavily twice a day. The first time is when you wake up, to help you get going. The second time? Around 2:30 a.m. This release helps transition you from deep sleep into REM cycles. If your baseline cortisol levels are too high, that 2:30 release can mimic the...
  9. Tom Cnyc

    I'm Fine — Tinnitus Is Basically Not a Thing Anymore

    What helped you was exposure therapy, which is exactly what I am recommending and what you are dismissing. What is not helping you, or anyone else reading this, is believing that pizza will make your ears ring. I mean, maybe it will if you convince yourself of that. Salicylates are only...
  10. Tom Cnyc

    I'm Fine — Tinnitus Is Basically Not a Thing Anymore

    Exactly. You just described the type of people who visit forums more than two or three times. More negativity. Honestly, moderators should lock comments on success stories. As a musician, all my friends have various levels of hearing issues. Most went through an acute phase and are now doing...
  11. Tom Cnyc

    I'm Fine — Tinnitus Is Basically Not a Thing Anymore

    I feel for you, man. Ultimately, when you say you come to forums looking for hope, I get it. That is the whole point. But I am a good example. I got better, and I waited six years before saying so. Most people never come back to say they improved. That is why it is so rare to find hope here...
  12. Tom Cnyc

    I'm Fine — Tinnitus Is Basically Not a Thing Anymore

    Dude, again — I’ve told everyone to feel free to reach out to me. I’m not going to write out a step-by-step guide to my recovery. It took three years, as I’ve mentioned earlier in this thread. It takes time to get back out there, but a journey of a thousand miles begins with a single step. And...
  13. Tom Cnyc

    I'm Fine — Tinnitus Is Basically Not a Thing Anymore

    Well, given that my tinnitus is gone most of the time, yes, it has improved. I cannot stress this enough. I used to have to wear earplugs just to talk to my wife. My tinnitus was louder than my dishwasher, television, washer, dryer, and air conditioner all running at the same time in a 619...
  14. Tom Cnyc

    I'm Fine — Tinnitus Is Basically Not a Thing Anymore

    You have this experience because when you wake up, your body performs a kind of “systems check.” Asking yourself, “How do I feel?” upon waking is something we all do every single day. And quite literally, if you always search for your tinnitus when you wake up, you’re creating a neural network...
  15. Tom Cnyc

    I'm Fine — Tinnitus Is Basically Not a Thing Anymore

    You completely missed the point of what I wrote. But cool—spend as much time thinking about this as you’d like. There is no magic bullet for this, and all the science points to a hyperactive amygdala, as shown in fMRI studies. This is your nervous system caught in a negative feedback loop...
  16. Tom Cnyc

    I'm Fine — Tinnitus Is Basically Not a Thing Anymore

    Hey all, I haven’t posted a success story here in many years, even though I’ve been doing well for a long time. Not sure why, but I want to share something positive now. My tinnitus is gone most of the time. And it used to be awful. Louder than a teenager blasting terrible music just to annoy...
  17. Tom Cnyc

    Low-Level Laser Therapy (LLLT) for Tinnitus — Long-Lasting Everyday Home-Practiced Experiences

    I used the Red Light Man before work for like 5-10 minutes per ear, and again at night. Typically I'd just do it when my wife was getting ready to leave and I was sitting there watching TV. I'd just lean it up against my ear. No need for safety glasses or anything but don't be a moron and stare...
  18. Tom Cnyc

    Low-Level Laser Therapy (LLLT) for Tinnitus — Long-Lasting Everyday Home-Practiced Experiences

    Your mileage may vary. If you want to experiment, Red Light Man (google it) makes very cheap lamps with multiple wavelengths. DO NOT pay tons of money to one of the hucksters like Wilden or the dude in Sarasota. The lamp is like $100 as opposed to their $1000s. I am not affiliated. I did...
  19. Tom Cnyc

    Is Going to a Beyonce Concert with Tinnitus Safe or Stupid?

    Personally, I spent years terrified to live my life because I spent too much time here with people telling me how dangerous the world was, which only made my mental state, and ironically, my tinnitus worse as it's absolutely related to the body's fight or flight system. Honestly, I don't give a...
  20. Tom Cnyc

    Is Going to a Beyonce Concert with Tinnitus Safe or Stupid?

    My tinnitus was anything but mild. I sat in a small apt with a washer dryer/tv/dishwasher, and AC unit running and it screamed over all of it. I wore earplugs to talk to my wife because my hyperacusis was awful. It's very mild now. I'm in a quiet office and I can only hear it if I cover my...
  21. Tom Cnyc

    Is Going to a Beyonce Concert with Tinnitus Safe or Stupid?

    Thanks for your permission. LOL. Jokes aside, I never once had a spike from a show. My ears predictably ring a little louder during the winter months, and then quiet down to a mild hiss for the other 8 months of the year. If I get sick, they'll be loud for 2 weeks. I have Westones, from the...
  22. Tom Cnyc

    Is Going to a Beyonce Concert with Tinnitus Safe or Stupid?

    If it's too painful to enjoy, don't go. My first live music experience, believe it or not, I performed at. It was at a bar with an open setup - front wall was a gate that goes up on the beach. When it wasn't my hour, I stayed outside, but it was still kinda loud. Much louder "inside". Point...
  23. Tom Cnyc

    Is Going to a Beyonce Concert with Tinnitus Safe or Stupid?

    DO NOT SKIP CONCERTS UNLESS YOU HAVE HYPERACUSIS. And get REAL earplugs. Customs, with good filters. Not for more protection, so you enjoy the show more. I go to like 20 shows a year. It is safe.
  24. Tom Cnyc

    Tinnitus Absolutely Does Get Better — Most People Just Don't Come Back to Tell About It!

    You're staying pretty urban in those areas, but you'll def be happier. I planned to move to Weehawken before exploring further out... Honestly, take a look, you may be surprised how much more you get for your money just adding 15 minutes to a commute. Just watch out for plane lines because...
  25. Tom Cnyc

    Tinnitus Absolutely Does Get Better — Most People Just Don't Come Back to Tell About It!

    I moved to Essex county. I still have to commute 2x a week to the city. Yes, I hate how loud the city is. I'm pretty open with friends and coworkers about what I went through years ago (they see me wear musician's earplugs in loud bars and on the train etc) and I've had many ask me where I got...
  26. Tom Cnyc

    Tinnitus Absolutely Does Get Better — Most People Just Don't Come Back to Tell About It!

    I know many people who had dramatic improvements and I am one. Not everyone who leaves gets better, but most who get better leave.
  27. Tom Cnyc

    I Invented a Sound That Knocked Out My Tinnitus

    Has David actually solved ANYONE'S tinnitus on THIS SITE? How is anyone still talking about this? This thread is 5 years old. Where are the success stories?
  28. Tom Cnyc

    Are Custom Earplugs Worth It? Any Other Good Options? Foam Ones Keep Coming Loose

    Custom earplugs are one of the best purchases I have ever made. I still use mine 6 years later all the time, even though I don't have hyperacusis anymore...
  29. Tom Cnyc

    don't expect much. its highly unlikely you have anything that shows up on MRI, however its good...

    don't expect much. its highly unlikely you have anything that shows up on MRI, however its good to check. If they DO find something, keep calm also. a family member has had an acoustic neuroma for years. they're not life threatening. DEFINITELY BRING FOAM EARPLUGS. The protection they give...
  30. Tom Cnyc

    Tinnitus Absolutely Does Get Better — Most People Just Don't Come Back to Tell About It!

    I definitely avoided it for a bit... I'm glad to have started playing again. I never said it was psychological or that I am anything more than 1 person. I know my outcome isn't always the case. My point is that people who get better, leave forums, so people shouldn't project their prognosis...
  31. Tom Cnyc

    Tinnitus Absolutely Does Get Better — Most People Just Don't Come Back to Tell About It!

    The Combo Mini. It had like 4 colors, some IR.
  32. Tom Cnyc

    Tinnitus Absolutely Does Get Better — Most People Just Don't Come Back to Tell About It!

    It's something I'd say was crazy to try if I didn't have tinnitus. Just sharing what I did. Can't say that it works.
  33. Tom Cnyc

    Tinnitus Absolutely Does Get Better — Most People Just Don't Come Back to Tell About It!

    Yeah. I had a few periods of silence early on. You also trimmed this post. I was basically advocating getting drunk at the time. Alcohol abuse absolutely quieted my T, and I was abusing alcohol then, and even in that post down playing how much I actually was drinking. Don't trade one issue...
  34. Tom Cnyc

    Tinnitus Absolutely Does Get Better — Most People Just Don't Come Back to Tell About It!

    Yes. SCM muscles being tight is a big issue. This was where I started. Go see a pro though. I took lots of supplements and used a Red Light Man light. It's like $100 so I figured why not? They say LLLT is bullshit for your inner ear and it's probably true but it does help muscle...
  35. Tom Cnyc

    Tinnitus Absolutely Does Get Better — Most People Just Don't Come Back to Tell About It!

    I'm not a doctor, but my hypothesis is that hyperacusis is the tensor tympani muscle stuck in activation mode - essentially trying to guard your hearing. Think of a clenched fist. Doesn't hurt - but if you held it for a month? A year? Even gently touching it would be agony. It's that, but your...
  36. Tom Cnyc

    Tinnitus Absolutely Does Get Better — Most People Just Don't Come Back to Tell About It!

    Well, I have a small child these days - so I don't really go to raves at this point. But I absolutely have gone to them, and I frequent concerts - like 15-20 a year. Hell I've done a few 3-day festivals. I wear custom molded earplugs. Usually 25 dB of reduction ones. When I'm in loud small rooms...
  37. Tom Cnyc

    Tinnitus Absolutely Does Get Better — Most People Just Don't Come Back to Tell About It!

    I do not post here much anymore, and rarely check in. But this is the type of thread that deserves more attention. For anyone whose been around long enough to remember me, I had it pretty awful. I wore earplugs to do literally anything because of the hyperacusis. Tinnitus screamed over...
  38. Tom Cnyc

    Psilocybin Stopped the Ringing in My Ears

    Basically, yes. My ears would be totally silent. And believe me - I looked for it. I can't say what works better for tinnitus. MDMA is more fun than mushrooms are though. Lol.
  39. Tom Cnyc

    Psilocybin Stopped the Ringing in My Ears

    The kitchen sink. Lol. Jokes aside, MDMA primarily. But yes, mushrooms.
  40. Tom Cnyc

    Psilocybin Stopped the Ringing in My Ears

    My tinnitus faded to nearly nothing since having extreme tinnitus and we'll call it "bad" hyperacusis in 2016. Through this time I am not ashamed to say I used psychedelics quite a few times, and each time my tinnitus completely went away and stayed away for some time afterwards. If we are...
  41. Tom Cnyc

    I Invented a Sound That Knocked Out My Tinnitus

    Gotta be Koss headphones though, right? Time away from headphones is part of what helped. Definitely wasn't sleeping while wearing them. Lol.
  42. Tom Cnyc

    I Invented a Sound That Knocked Out My Tinnitus

    Honestly I slowly reintroduced sounds into my life and rested my ears a lot. I did use a very cheap LLLT therapy but candidly it probably did nothing. It's hard to say what worked because I'm a focus group of 1. I tried every affordable treatment.
  43. Tom Cnyc

    I Invented a Sound That Knocked Out My Tinnitus

    I'm fine. My ears hiss a bit. I played drums and electric guitars daily.with moderate protection.
  44. Tom Cnyc

    I Invented a Sound That Knocked Out My Tinnitus

    Very, very bad. I used to wear earplugs to do basically everything due to sound intolerance. Many frequencies for me would cause secondary noises and distortions, and I could hear my tinnitus in a 600 sq apt with a washing machine, dryer, dishwasher, AC unit, and TV on. I could "feel" it...
  45. Tom Cnyc

    I Invented a Sound That Knocked Out My Tinnitus

    Do as you will. I personally think hyperacusis is a muscular disorder where the tiny muscles of the inner ear are desperately trying to protect themselves. Like a fist that was clenched for months and doesn't know how to stop aching. I'm a firm believer that psychedelics and entheogens may have...
  46. Tom Cnyc

    I Invented a Sound That Knocked Out My Tinnitus

    Take a look at my posts in here. I'm one of the most positive people in this forum about your chance for recovery. If you want to play harsh high pitched noises into your ears to cure your tinnitus, I honestly don't care. But for anyone else with full cognitive function reading this, I...
  47. Tom Cnyc

    Anyone's Tinnitus Been Reduced or Eliminated Through Prayer, Fasting, or Good Deeds?

    Sounds like God doesn't like you then, given you're on a support forum for a torturous affliction. And I guess he likes me despite me talking shit because my tinnitus is 98% gone. So maybe prayer means nothing here? Honestly pray in one hand and shit in the other and see which fills first. I...
  48. Tom Cnyc

    Going to Order Dr. Wilden's Laser

    I'm not remotely qualified to comment on whether or not this thing can regenerate the cochlea. Further, nobody really is. You have to kill the patient to do a test. I have about 20 dB of hearing loss. I haven't had an audiogram since I used the device, nor am I a believer that an audiogram...
  49. Tom Cnyc

    Going to Order Dr. Wilden's Laser

    As a focus group of ONE - I think, yes - the RedLightMan laser is effective. but I don't think it is for the reasons Dr. Wilden claims. I believe that muscular tension in the neck and ear make tinnitus worse, and these lights are proven to reduce inflammation. My tinnitus went from wildly...
  50. Tom Cnyc

    Dr. Wilden's LLLT Laser Machine Reduced My Tinnitus to 1/2 of What It Was in 6 Weeks

    Yes. I used the Red Man Light. At $100 it seemed like a low risk endeavor. I can't advocate for spending thousands without concrete proof there is any difference at all.
  51. Tom Cnyc

    Dr. Wilden's LLLT Laser Machine Reduced My Tinnitus to 1/2 of What It Was in 6 Weeks

    The times I really heavily used the light, I have noticed that my sound got louder, but also less tonal after multiple days. So, instead of a eeeeeeeeeeeeeeeeeee on volume 5, it has a hissssssssssssss on vol 7. Which to me - is easier to deal with. The hiss volume increase was temporary. I...
  52. Tom Cnyc

    Is There Such Thing as *Too Much* Masking / Sound Enrichment?

    Bill, I have absolutely no idea what point you're trying to make here.
  53. Tom Cnyc

    Is There Such Thing as *Too Much* Masking / Sound Enrichment?

    I'm mostly fine these days.
  54. Tom Cnyc

    Spontaneous Recovery Stats: Many Recover (3 Studies)

    Mine started like that and over 2 years got to the point where it basically stays at its lowest form.
  55. Tom Cnyc

    Spontaneous Recovery Stats: Many Recover (3 Studies)

    My tinnitus spikes with the beginning of allergy season every year for like 5-15 days. Once my body adapts to the pollen it calms down.
  56. Tom Cnyc

    Spontaneous Recovery Stats: Many Recover (3 Studies)

    I started to get meaningful improvement with my tinnitus at 14 months. Hyperacusis started to fade after about 9 months. From there it has gone up and down over the course of the 3 years that followed. But each time it goes down, it seems to get lower, and the spikes - while still loud and...
  57. Tom Cnyc

    Spontaneous Recovery Stats: Many Recover (3 Studies)

    I don't have the patience to debate this with you anymore. @Autumnly I had bad hyperacusis for most of a year. I avoided loud sounds and wore earplugs most everywhere during that time. I don't advocate for people with hyperacusis issues to strap in some foamies and go see bassnectar. I've...
  58. Tom Cnyc

    Spontaneous Recovery Stats: Many Recover (3 Studies)

    Nobody attacked Bill for telling people to avoid loud sounds. People have criticized him for going far above and beyond that. Like removing fire alarms from his home. Like removing airbags from his car in case they go off. He has advocated some truly dangerous behavior on this site. I'm...
  59. Tom Cnyc

    Spontaneous Recovery Stats: Many Recover (3 Studies)

    I've had both. If you're still struggling, read "A headache in the Pelvis". This info and a good PT changed my life.