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Hi Greg You’re wonderful. I’m popping back to DM. Will post there.

Time for an update. It has been confirmed that my son has hyper mobile EDS, which helps to explain the neck injury. But not to treat it, sadly,...

We saw the specialist yesterday. He was excellent. Over the years of searching for a way to get rid of this tinnitus, I spent many months trying...

Serves me right for being dozy. Should have woken up and realised it wasn’t your story @just1morething ... I’ll go back to sleep now...

@just1morething that is such good news! I am absolutely delighted for you. I will let my son with tinnitus know. He is working on this too....

@Lane Apologies for butting in to your conversation with Greg, but my son also has a whiplash-type tinnitus. We are currently looking in to the...

Hi @Coyotesheaven Did you ever have Botox? We are considering it in the neck muscles would be interested to hear of your decision. Kind...

I just realised that I never came back to finish this thread. Unfortunately, after dental work with an appliance to reduce the stress at the jaw,...

@kelpiemsp thanks so much for keeping us posted on this!

Just to check back in. Two months on the keto diet (<20g carbs daily) but no change to tinnitus, although not really expected as my son's...

I received the email too. We are in the U.K. and so won't be volunteering to go at this stage. Clicked through, though, and I see that to date 75...

@Markku @kelpiemsp Brilliant. Thanks very much. This is spot on where my interest lies for my son.

@kelpiemsp thank you so much for posting the diagram above. Extremely interesting. Did you put it together or can we see it in situ somewhere else?

Yes, we went through a rollercoaster of expectation and disappointment with TRT. It put my son off talking therapy in general in a big way,...

That’s really interesting @Bart . I hope you find it beneficial. Who is running the Research project?

Well, my general wish would be for bigger trials with enough participants in clearly defined subgroups for the results to be mathematically valid...

@andee555 great you have found that a keto diet has helped you feel so much better. About how long did it take for the tinnitus to fade away?...

@Greg Sacramento If only we knew which neck exercises are the correct ones! May I ask who has been giving you treatment guidelines so far?...

@Codaz Thank you very much for posting this. I am really interested to read it as my son has been wearing an occlusal splint now for about a year...

From reading various research papers I understand that it has, in the past, been easier to help those whose tinnitus decreases on modulation,...

I will be interested to hear if the latest work helps, @just1morething. I hope it does!

Shame they didn’t offer the information on rejection. I know I was told why I didn’t get on trials (not tinnitus) when I applied. For me, once...

Sorry you didn’t get into the trial, Geoff. Do you know why you weren’t included?

So the tinnitus has to be able to be modulated by some form of movement. But what about the original cause of the tinnitus? Do we know what types...

Btw @Louise what about Nottingham? Don't they do lots of hearing research at the Uni there?

Well, we are not sure, but damage to the TMJ and/or neck is causing the tinnitus most probably. Wish we could find the injury and sort it!...

@Louise so sorry to read that you have had a hard time getting help. If you ever decide to travel, Dr Palanniapan is an NHS ENT consultant at...

A link to this lady popped up on my Linkedin account today. I wonder if anyone has had any dealings with her or the department for their neck pain...

We are in a similar position to you @threefirefour . No hearing loss, TMJ problems and maybe some upper cervical problems - who knows what causes...

@Ambassador I do hope you manage to get on the trial. Are you close to the location? We have registered our interest in it, but as we are in the...

Hi @Mathew Gould I suspect you may have seen the paper written by someone who solved his t using a neck brace? If not, you can read it here...

Hi Well, we are one week after the appearance of a new loud tone in my son's other previously quiet ear. I believe that the spike has reduced...

Thank you very much! I have downloaded it and look forward to reading it. Kind regards Shirley

Quick update: Spoke to helpful doctor and he is letting us have some steroids. Even if they don't work, at least we will know that we tried :) !

@Greg Sacramento Hi Greg and many thanks for replying. Thank you for explaining what the enlarged node could be. It has been like that for a few...

@JasonP Thanks for your reply and good wishes. I'm really pleased that your new sounds have gone. My son just woke and I was so willing his new...

@Agrajag364 thats really encouraging to hear. Have you any suspicions as to what promoted it to appear? And have you done anything in particular...

Thank you very much Bill. I appreciated the hug too - I'm rather in shock myself that it's happening again. I'll look through your list to see...

Just dredging my memory... should our son get prednisone or hyperbaric oxygen sessions? What would you advise ?? He was discharged by the ENT...

Thank you @Greg Sacramento I have looked at NUCCA for next. It is very good to hear of people with t getting relief from it. Unfortunately there...

Thank you. I am really sorry that you have had tinnitus twice now, but very pleased to hear that it faded first time and is fading again. That's...

@jjflyman thank you so much for your lovely reply! No, he doesn't feel that there has been any improvement at all really. We will just keep...

Hiya I have just posted about a flare separately but remembered I had promised to get back to you about our consultation with Dr Sanchez. It...

@Steve I was wondering how you are getting on with your massages? Are they helping?

I know, Zug. Having tried so many approaches already, my expectations are just gently hopeful. Gotta have hope lol!!

Hi @funkyfrog Thank you for asking and for the advice No, no progress at all. Nothing. I believe that his jaw is properly aligned, but I know...

Hi @Charbeld ! Yes, my son has a forward head posture and he has spasms in his neck too. Not sure of the exact muscles where it's happening. He...

Hi @Charbeld ! I am here on behalf of my son, who has had t for a year following a weight training incident, which damaged jaw and neck. We too...

Hiya My son has TMJ related tinnitus. It is constant and a high pitched electrical type scream. It only varies, to worsen, when he moves his jaw....

Zach, I'm so sorry your t is flaring. How annoying when you were just trying to make it better. I can't provide you with any direct help, I'm...

No, I guess with NIHL it might not have helped much. My son's t was caused by a jaw joint injury, so it does sound more relevant for him. He's...

Hi Fangen Thank you for your reply! Sounds like you didn't find your consultation that helpful then. That's a shame, I'm sorry it didn't help...

@Astro haven't seen you here for a while. How's things??

Hi CallMeTC Really sorry to hear that you have developed tinnitus. If you have no hearing loss and the t varies when moving head/neck/shoulders i...