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That’s amazing!! Am I correct in saying you had it in the ear and not the whole head? Did it feel it was very localised to the ear? x

Yes TMJ here too... but that doesn’t mean it’s the cause so not sure what to do... I have a splint but I don't notice any difference.

@nobhillian it's supposed to help with tinnitus, not create more on the other side. The brain is a mystery when it comes to tinnitus. Sorry to...

I had ear pain for many months but then it went. It was years ago, before the tinnitus. Nobody could work out what it was. TMJ in the end...

@Ed209 Poor you, hope your wife and little one are ok... we’re not supposed to call 111 even if we do get symptoms in the UK, unless you are in a...

MML = they measure your Minimum Masking Level i.e how loud your tinnitus is... you may not want to know it which is understandable...

$50billion US fund to fight the virus...think what we could do to fight our cause with just a little funding.

@Lurius what was your MML?

Sometimes when there’s a temporary threshold in hearing the brain picks up on it and generates tinnitus. If it’s gone once it may go again. Lots...

Can you get them tested? Thinking of you xx

Incredulous...

Interesting - be careful you don’t want to end up with TMJ... that causes tinnitus as well and you may end up in lots of chronic pain.

Yes I have always had that fullness before tinnitus when exposed to a thud, bang etc.

I think as a community that’s definitely a project we should get behind - PIP for tinnitus.

Hi all, This is for US people, right? I will do the MP letter soon. Amazing work and templates are the way forward. Thank you.

@spedgas read all his messages from the beginning.

Well it’s hard to say if someone’s tinnitus is not constant and has got better before...

@Damien McGowan a 3 is mild, how often do you get mild days?

I’ve read @kelpiemsp posts from the beginning - it seems to me his tinnitus was intermittent. He referred to bouts of tinnitus a lot and tinnitus...

@Autumnwillows show your doctor the petition on Change, it will show him that lots of people are distressed by tinnitus. Don’t let them treat you...

It’s more to do with keeping the jaw open during the op. Is the orthotic a night time appliance?

Yes I don’t know what to make of it, certainly not taken off here in the UK, there’s one guy only. It’s holistic basically as opposed to main...

@DebInAustralia yes, it will slowly get back to where you were. Mine is now in a new phase after 3 years of the same tinnitus and not reacting to...

You will, especially if it’s mild...

Good point - I have had TMJ for many years - it was bad in my twenties, now settled as I have limited mouth opening...

@Phat Tuna are you on the LVI Facebook page? Asking because the founder of LVI himself has tinnitus hence would be cautious.

@FGG what is your hearing profile? Do you have low frequency hearing loss?

Very rare, most of us get tested for that... if it is that and they remove it you may see improvements. Stay strong, you are still early days, it...

@Autumnwillows There is a way out. Are you in rented or council accommodation - try to get moved as getting out and about is important. Stay...

@Lucy79 tinnitus could still be in your deaf ear, it’s not an external sound so one can have it in a deaf ear. As it’s in your better ear having...

Oh darling it’s an awful roller coaster. If you can continue to work it will be beneficial as it will distract you from a multitude of problems....

@DebInAustralia I know, been there - can’t even what has happened over the last 9 months. For me no stress contributing. You beaker is very...

Yet some people who are born with it struggle with it. It appears we’re not designed to have that level of intrusion.

Sorry to hear that, there was another guy in here with tinnitus from a slap recently. Hoping that it fades as the drum heals.

They’re not magic pills and the root of your anxiety will not be tackled by a small dosage of SSRI - I’ve been on them for years and can’t get off...

Hi Lucy, Is your tinnitus in both ears? Have you considered a cochlear implant in one ear as I believe it can help with tinnitus perception? Not...

Interesting, I have a neck injury which I did physio for and can't look up much so my neck would be on agony if I did this exercise.

Welcome to the forum, oh dear tinnitus has a life of its own. In your case it sounds like somatic tinnitus. There’s some research Dr. Susan Shore...

@Mike T does the decibel reduction make any difference to you?

It doesn’t but at the House of Commons roundtable the BTA was told that there needed to be patient voices to show that there is an unmet need for...

I will be writing to my MP, that may help. Have any of you done so?

Thanks for sharing your story. Once you have cracked the hyperacusis things will get easier. Regular exposure to sound does work and in time you...

@Samantha R Three sounds like the perfect number... I am very risk averse so didn’t go for number three for one or another reason. Well things...

@Samantha R how are you?! Remember the days when you were the only other mum I knew with tinnitus and you had just givem birth to twins. What a...

Sounds unlikely, maybe a coincidence? How loud is the buzzing? Seriously don’t beat yourself up as tinnitus is a joke when it comes to its...

@Autumnly that's what TRT specialists will be telling their patients one by one. The irony is that on this very site many of the people who...

@Ste S love your attitude... you are right after all we do live one day at a time, I do get overwhelmed thinking about the future.

North of Corfu, you can fly there directly the cricket sounds are great maskers... Tuscany, try an agriturismo. Puglia, try an agriturismo or a...

Masking is making my tinnitus horrible at the moment. Any advice?

@brownbear have you found anything that helps, mine is though the roof, I am struggling see a way forward. The maskers make it worse... Don’t...

Thanks all x

I’m taking a flight Boeing A380... 8 hours. Should I wear hearing protection such as noise cancelling headphones? It’s supposed to be relatively...

We need press. The Daily Mail is a tabloid... however it has a big readership.

T-Minus - this guy has been all over the press. Any thoughts?