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Hi! I take 1 mg of LDN.

Hey my friend! I’m doing great, super well, basically no tinnitus anymore! No I’m not taking Curcumin anymore. I take low-dose Naltrexone which...

Hi! Sorry for the late reply. No real flare ups of note. My Hydrops seems to be hormonal. I have birth in June and stayed on the diuretics and...

Hi @Zach777, sorry to hear what you are going through. I have Cochlear Hydrops. Indeed low frequency hearing loss, tinnitus and ear fullness...

Why doesn’t Dr. Bance think you have MEM? I do know of Dr. Bance, and have connected with several of his patients. Many who’ve had him perform...

@Ben Winders, my honest opinion is this low drone, at least for some, and particularly for those that can stop it by plugging their ear, is that...

Hi and sorry for my late reply. No, I haven’t stopped the LDN. I have given birth just 2 weeks ago, and at times during the pregnancy my...

Sorry for my late reply, I’ve had a busy time having a baby! I stayed on the diuretics. I think the diuretics cured the Hydrops. I had a tiny...

The LDN basically cured my bothersome tinnitus, but before that, I’d say I wasn’t habituated. I was ok with things, but still not habituated....

Thank you! I had gotten used to my tinnitus, so it wasn’t the main focus of my life BUT I still needed to mask at night and it irritated me when...

I wouldn’t go to a GP. They know little about Naltrexone at low doses. It’s just not mainstream sadly. I’d seek out an integrative doctor. I...

Hi Malin, I am on 1 mg. I am currently pregnant and under the guidance of my doctor increased 2 mg as I noticed the tinnitus ramping up again...

Late reply, sorry. How you doing these days? I stopped the diet because salt does not affect my Hydrops. I just eat what I want. I’m 24 weeks...

My dose of diuretic is 50mg of Moduretic. If you respond to prednisolone then consider seeing an immunologist who can prescribe an immune...

Hi Brian, I have/had cochlear Hydrops most likely because of hormonal IVF treatment. A diuretic will only work if your inner ear has Hydrops...

Hi @Malin, I do check in from time to time. I am still on LDN and it’s still working its magic. My tinnitus is barely audible unless I think...

Hi Billie, Are you completely deaf in the left ear? Don't give up hope yet, but your attitude is just great, I guess we learn a lot from our...

Hi Juan, Yes, I’m taking Moduretic (a diuretic) and I was also prescribed Betahistine. Personally, I think a diuretic is essential to drain the...

@Matchbox, I feel like I can sympathise and understand what you are going through. About 6 months ago, after an IVF cycle, I developed what I...

Absolutely it’s indicative of both Meniere’s and SSNHL. I was initially misdiagnosed with SSNHL, I had no vertigo. Prednisone did nothing and so...

@billie48 The pressure in the ear and full / blocked feeling also sounds typical of Meniere’s. A suggestion to see if it helps is to ask your...

@billie48 I am so sorry to hear this has happened to you. It could possibly be one of two things. SSNHL or Meniere’s. You should get on a course...

Hi Steve, To me, your symptoms don’t sound like an inner ear problem, more like a problem with your middle ear muscles. I have experienced this...

Sorry I didn’t see your post until now. I’m in Australia, so can’t help with doctors. A good start is to find an otoneurologist as opposed to an...

Hi, I’ve tagged you in another thread. What treatments are you being given for the hydrops? If you are not on a diuretic - get on one. This will...

sorry to hear about your cochlear hydrops. Ear pressure can be relieved and hearing May recover with the help of a diuretic. This will drain the...

I'm not sure if I'm a success story. Cochlear hydrops (if that is what I have) is a lifelong condition and I may have flare ups in the future....

Hi Lucy, Sorry to hear you are still struggling. I think the ‘thuds’ you are experiencing are Middle Ear Myoclonus. We may have had this chat in...

All my symptoms have resolved, thank goodness. The feeling is that I have Endolymphatic Hydrops. I've got in under control with diuretics and...

I take Moduretic for Endolymphatic Hydrops - no adverse affects on my tinnitus. In fact, I recovered my hearing and the horrible tinnitus,...

Hi Guys. LONG POST AHEAD. PLEASE READ. Hope all is well in these crazy times. It’s lockdown madness in Victoria Australia, incompetence abounds...

You should see a doctor and be assessed for Meniere’s Disease.

An update for anyone who is interested: My low frequency hearing loss has completely recovered. Back to normal. The diplacusis is gone. The...

@Poseidon65 if your ears are clogged, the pressure in your middle ear changes and it's likely your tinnitus is amplified. You could have a...

Thank you. I should have mentioned the IVF procedure but didn't think there was a connection. I received: Follicle Stimulating Hormone (Gonal-F,...

Thank you for your reply. Yes, I agree. Something physical is going on in my middle ear is my suspicion. Probably the worst part is the...

Edit: I meant to say ‘middle ear muscles in spasm’, sorry, not the inner ear.

Sorry to hear about this new tone you have. It’s hard to know if it’s permanent or not, it really is just a waiting game. I hear my tinnitus in my...

Thank you for taking the time to reply. This is very interesting and I'm going to look more into this. Sounds like I won't be diagnosed if this is...

Actually, I have a very comfy couch and have become accustomed to sleeping on it. It's a corner lounge and I place a pillow behind my back and one...

Hi, I’m so very sorry to hear of your struggle. I am experiencing the same sensation as you. I believe it’s the inner ear muscles in spasm. Mine...

@TheDanishGirl I’m experiencing the same thing. I am getting over a head cold and my ear started vibrating and roaring after I’d wake up. Took...

@Greg Sacramento Thank you for your response. I’ll sleep easier tonight now, you have put my mind at ease. My ENT appointment is in a couple of...

Hi Greg, I noticed you are following me, but I still can't start a conversation with you, not sure why. I agree that I don't think it's vasuclar...

Thank you Greg. Just what I needed to hear. You are an angel. I don’t seem to be able to PM you though?

@Greg Sacramento Do you mind if I send you a message? I'm experiencing symptoms similar to the OP here. Would greatly appreciate your insight. I...

@Candy I had a similar experience - couldn’t pop my ear for weeks. I bought an Ear Popper - it worked wonders. Google it and see what you think....

@Candy Hello! I do remember those early days and it was nice to connect with another mum! They were hard. We are not really trying.... I had two...

@Sam12 Well, fate stepped in and she suffered a miscarriage at nearly 7 weeks. She told me a few weeks ago that she felt ready to try again. She...

@Markku and @Hazel, Thanks for all you do, because you care about us and want to make a difference, for no financial reward. I have nothing but...

Rest easy Allan. This is such sad news. I know he was growing increasingly desperate from his last few posts... I am so deeply saddened and will...

Within the day, maybe a couple of hours or so.

Yes, very few, but I think a relatively large % of people would have had acoustic traumas / hearing damage. Mine's unknown and it's so...

Yes, there is treatment for otosclerosis in terms of surgery, but my understanding is it progressively worsens. As @GregCA (who has otosclerosis)...

I’m also three years in and things have drastically improved for me. Curcumin has helped immensely and I rarely get these night spikes anymore. I...

It was such a fluke as initially I had a really bad flare up of a skin allergy and the doctor gave me Prednisolone. I noticed when taking the...

@JasonP, I’ve taken it since October last year and as long as I keep taking it, my tinnitus is so much better and I go days without even thinking...

100% spot on Allan. I totally get how you are feeling. I hope though that the changing tinnitus is a good sign that you'll respond to the device...

Sure will! So far so good. I've lost about 3kgs in 2 weeks and my head is feeling a lot clearer. Tinnitus is low, but that's normal until the time...