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Have you thought of exosome injections into the ear? If you're in the US, this doctor will do them and also make house calls. I've received the...

I'm mot an expert in this area and I don't want to say anything that will influence anyone's decisions to take or not take certain medications....

I'm only on 10 mg of Nortriptyline which is somewhat low - that helped the central pure tone "whistle" sounding tinnitus in the middle of my head...

Yes, it's more of a zzz electricity sound, not really a hum. When it starts to get lower on a medium day the "electrical stream" in the center of...

Thanks for the info. I know it's easy to get hopeless but if it's gone in the past, there's no reason why it can't go again. Please do check back...

Mine somewhat started all at once but it fluctuates from being just in the ears to the head and the ears and alternates. Check out this related...

Please let us know which antidepressant you switch to. I would highly advise against Celexa. If you're going to take an SSRI, Sertraline has been...

The stem cells didn't do much for the tinnitus (perhaps for the reactivity a little bit) but it had small permanent improvements for hyperacusis...

I had IV stem cells. I usually notice the improvement after about 2 weeks or so - but as mentioned, it's minimal.

I'm not really sure how those were produced but I think they are all generally produced the same way for the most part. I have a tiny improvement...

Sure, it's Dr. Ed Park from Recharge Biomedical. He doesn't claim to "cure" anything but he's always willing try different treatments and methods....

I just got exosome injections behind my ears for better access to the facial nerve branch. I get sharp pains in these nerves every now and and...

Exactly what I have going on. The electrical is impossible to mask because it seems like it's already in the auditory cortex before the ears...

Hi @Lurius. I already had the electrical quality but I feel like it made is slightly worse. I can't say permanently or not because I feel like...

I have had similar results, mine was prescribed as well. I feel like the electrical quality tinnitus (brain) felt worse. That is basically the one...

COVID-19 Novavax vaccine is different from the others in that it is a "Protein Subunit Vaccine". So far the mRNA vaccines (Pfizer, Moderna) have...

I plan on dosing with 1200mg of NAC for at least a few days leading up to the vaccination. It might also lower anxiety if you know you're going in...

25 mg once per day, I am already on 10 mg of Nortriptyline which causes blurriness so I couldn't go any higher with the Lyrica so I stopped after...

I have tried Lyrica as well but only a small dose (then it made my vision blurry so I stopped) - what dosage are you on and have been further...

Not sure if there is another thread on this, but these guys, "Otolith Labs", officially have a tinnitus trial. Here's the qualification link:...

Well perhaps that means it will likely go away. If not, the study will probably be active for several months.

I just received this email today from [The Shore Lab] - I think the criteria looks more lenient and the trial has officially resumed. Dear...

I just wanted to repost the criteria info here because I want to emphasize that two of the points include the word "preferably". So they might be...

Mine gets lower by pushing/tucking my jaw. The criteria change is insane and I'm approaching 4 years, this makes me lose some hope in this...

Sorry if I missed something here but are the current trials for FX-322 already using an enhanced delivery method different than the previous trial...

Filled this out - thank you for well-written info.

@JasonP Hi Jason! That's an interesting connection. Unless I read incorrectly, the orotate should decrease the sensitivity of the norephenerine...

I actually ended up losing the device which was a bummer. The Konftec laser is pretty close, around $800 if you want to save some money. I felt...

Perhaps we should remind them of the billions of dollars that get paid out to military related disability for tinnitus each year that could...

Hi Chris, can you let us know where to send the email for the FDA and also provide your template?

@Telis Please PM me - over time, I've read your posts and noticed we had a lot of similarities (I also have the sound reactivity when someone uses...

Please keep us posted on if they are able to remove the white noise sound. I also get increased tinnitus from the same types of sounds.

You guys may have already seen this but I just received this notification from the university - perhaps a continuation of the previous study. I'm...

I don't think it's that expensive, I just received a newsletter announcement from a local medical office office in San Diego - "Our first Spravato...

I was hoping they might be opening the study up again sometime soon. But the design of a wearable device is definitely a step in the right direction.

Do anyone have a link to the correct study page?

Is there something very specific that happens when one is getting fitted for the device in regards to settings, etc.? Aside from it only being...

Can someone point me to the URL of the actual study details? All I'm seeing is a completed one for safety... Thanks!

Sleep is the main modulator for me. If I have a low day and wake up super early, that low day can continue into the next. My theory is that if I...

Once again, it really depends on how much take - that's the same with most OTC substances. Here are some VERY positive comments from Amazon:...

@JasonP 3-4 lithium orotates per day is A LOT. I have tried a lot things in the past with no success and didn't expect anything from the LO. I had...

Thanks. For the next infusion, I was going to move up the dose a little. I will keep everyone informed of any changes.

My experience: I thought this was a logical approach for trial so I made my own trial out of it since their method was pretty basic. I decided to...

This a weird drug in terms of mode of action, it's hard to figure out why it would impact tinnitus. Does it have something to do with circulation?

So far, it seems very promising and I think it's definitely worth trying even if it doesn't work for some people.

Isn't the equipment being used in this study is already out in the field so just the protocol would have to be mimicked? I sent the study details...

In regards to inner ear issues (myoclonus/TTTS) this paper was interesting in terms of diagnostics. https://www.ncbi.nlm.nih.gov/pubmed/24232057...

I think you will find this info helpful and perhaps you may have some guidance for me as well. I have several different sounds and as well as...

This is an old thread but I wanted to clarify here that Zyprexa is Olanzapine (an antipsychotic) not a benzo. It is available via injection but...

@Craig W - perhaps I am more qualified to provide a diagnosis than most ENTs or least I'm willing to try (which many of them are not)... The...

@Craig W You might have some mild hyperacusis but I'm certainly not diagnosing you as I obviously don't have the qualifications to do so. If...

@Craig W sorry to hear you’ve been suffering with this. My guess is that you have some form of hyperacusis if certain sounds that aren’t very...

Women can also get an iron deficiency due to their periods.

Watching movies if the H isn't too bad

On my lower days, once every 3 days, I can somewhat ignore while I'm working by listening to low level music. On the loud days, unfortunately...

I also agree with 10 minute sessions. For me, it was the 30 min sessions that caused the ear pain. I'm seeing some improvements as well. Whether...

How long were you on it? 25mg 3x a day sounds very high for this medication - that's probably why your side effects were so bad. I would think...

@Cheza I loved your section on cycling tinnitus which is exactly what I have. I also agree that someone with this type of tinnitus is a novel test...

I thought I knew them all but Serax is probably the only benzo I haven't heard of until now. I'm glad you got it under control. It gets scary when...

I'm pretty sure the hissing is nerve related from all the cases I've read here. Seems also that many people with Hyperacusis have hissing which is...