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Dude, will you just stop with the gaslighting? I have many people message me, furious with what you are always saying. Saying you know best, Pawel...
I did not have the surgery. I ended up getting so bad that the drive isn’t even an option. The noise from the surgery and all the beeping machines...
Give it time. Noxacusis can take a long time to heal. Hang in there. Keep doing what you are doing, and protect your ears.
Okay, nobody should harm another person due to their medical conditions but you come off horribly arrogant. “A bit of ringing in the ear.” Never...
I have to make sure I’m in a quiet room and no noise in the house at all, take my hearing protection off, use a manual toothbrush and brush as...
Well good for you!
You’re a much nicer person than I am. I would have gladly fought him. I’m sorry that happened to you. People suck. If there’s anything I have...
Feeling better? Nice. It’s comforting to read realistic stories, not those TRT, positive thinking, retrain your brain crap lol. Glad you got some...
If the pain can be described specifically and doesn’t linger, it’s probably not noxacusis. I wouldn’t classify tingling as noxacusis. It’s...
That’s temporary; in no way can overprotection make tinnitus permanently worse. Temporarily louder, sure. And why did you tag me and my comment?...
Good for you. Nobody is trying to be doom and gloom; some people want reality. The majority seem to want false hope and to be coddled and lied to....
I had them over every sound yes, different for different frequencies. The voice ones were the first to go away. I never got tested but I probably...
I have a bad case of distortions. I’m about 3 years in. The first 6 months I had beeping over every sound, not just my voice - it was horrible. I...
Thanks. I hope you start feeling better too. This is not fun at all. Try Mack’s Ultra Comfort earplugs, the skin colored ones, they protect way...
Well said! I was looking back at this and it was funny how you said people feel better when doctors tell them no physical damage has been done....
I might eventually try those CGRP drugs people keep telling me about. I can modulate a couple of my tinnitus tones with my jaw but the other 6...
I have heard of noxacusis sufferers having Eustachian tube issues. It wasn’t their main issue but it can’t hurt to try and figure that out - maybe...
My advice is to avoid sounds that trigger lingering pain. I’ve dealt with every level of hyperacusis and noxacusis. I’ve never experienced...
Maybe there’s a couple, but most people didn’t have noxacusis. I have read some bad stories about all 3 drugs; that’s why I’m still trying to...
:dohanimation: only 5 more years
No, I’m not going to try it, I haven’t really seen any noxacusis cases improve from it, more loudness hyperacusis. If anything, I’ll get on Lyrica...
How long have you had hyperacusis? If you have had it less than 6 months, 99% of the time it’s not because you didn’t protect from sound; it’s...
You are a new case. Rest your ears, get silence and don’t take meds. Whatever you do, just don’t do TRT, lol. Things will most definitely calm...
I’m 3 years in to noxacusis and my days vary too. They’re usually all bad and I’m always in pain but it’s definitely more manageable if I’m in...
Well hang in there. I hope for better days for the both of us. Nobody should be dealing with this stuff it’s horrible.
Yeah, I remember reading his posts when I had just got tinnitus and loudness hyperacusis. It shook me to the bone. Hopefully he’s doing ok. It...
Thanks! And try My Social Security -- that’s where you apply.
It’s definitely possible. I know quite a few people who are on long-term disability because of noxacusis, including myself. You need to be...
Yeah, I’ve cut all of it out for about a year. My ears were improving a little in other frequencies but I still can’t do it or I get bad pain. I...
Try to use subtitles if they offer it. Zoom has it I think. I have very severe noxacusis and I’ve learned my ears just cannot do artificial...
She is? It seemed like when she was asked about it, nope, and that’s it.
Dr. Shore really didn’t care about hyperacusis and noxacusis, did she lol.
Not sure who knows. They haven’t posted any more information about their delivery method. Maybe it will work. The Hough Ear Institute guy seemed...
Yeah, they would definitely sue without a doubt. This company has been holding onto this drug for over a decade and won’t do anything about it....
Wow, I hate these people LOL. Let’s do a study on one person. If they did me and a few others like they were supposed to, they would actually have...
Every time I see new posts on this thread, I’m like oh no, lol.
I’m still on Naltrexone, yes. It helps the pain like 10%. I’m also on CBD, have go ice my ear twice a day and stick garlic oil in it. Double...
No, noxacusis is definitely not in the brain. The lingering nerve pain is most definitely middle or inner ear related. I’m sure some degree, and...
You are literally putting words in my mouth. If you have a setback, don’t read success stories about TRT, lmao. Go read posts of people improving...
They won’t ever understand. Why do we even try to convince them? No, we’re negative and horrible because people don’t want to hear the truth and...
Oh yeah, I’m soooo toxic. LMAO, funny when people post things that can actually help. I’m pretty supportive. Go post this garbage elsewhere with...
Hyperacusis can be cochlear, middle ear, or brain related. It depends on the person and the case. Each theory has articles and information behind...
No, absolutely not. You’re arrogant and it’s all in your reptile brain that hyperacusis can be cured with TRT, $6,000 sound generators and CBT....
Thanks for the kind words. I hope something helps the rest of us; we really need it. You’re really humble and I respect your opinions.
The thing is that we don’t deny your experience, we know gradual sound exposure works for some. We get angry and upset when people who are TRT...
You sound like you work for Jastreboff, lol. I’m glad it helped you but hyperacusis is usually from hearing damage, sometimes it’s in the brain,...
I'm glad they tested people who had had tinnitus for 5-10 years. I've never seen a good trial that has allowed new sufferers in, which definitely...
This is such good news. My noxacusis is what’s killing me but I’ve had tinnitus way longer, almost 8 years now. I can’t imagine the people who...
I agree. I just think it’s time we end hyperacusis and tinnitus gaslighting and search for things that actually help hearing damage, not...
Yeah, just be careful, do your best to get quiet for a while and let everything rest, then test the waters when you’re ready. It’s too bad ear...
You were smart for wearing earmuffs. In my case, airbags turned moderate loudness hyperacusis into the worst case of noxacusis ever. I'm surprised...
Well, thanks for not gaslighting severe people, we all appreciate it. If this works for you, great. It can definitely help a lot of mild/moderate...
There’s no convincing these people bro. Thanks for commenting though.
Remember that ears hurting from the slightest sound is not deep ear burning, stabbing, razor wire pain, aching and neuralgia. You seem to be very...
Thank you, I try to stay off forums because of all the gaslighting but I gotta say something because some people are just so wrong, they could...
Michael, you give some people good advice but you don’t have noxacusis and you have never had noxacusis. Stop telling people false information...
LDN spiked my tinnitus in the beginning. I had to start on a small dose at 0.5 mg and work it up every week. Once I got to 1.5 mg, it stopped...
Overprotecting does not make hyperacusis worse. Not sure why people still say that even in 2023. Yeah, you might notice sounds are a little louder...
Yeah, it helps a little with the pain, but nothing makes it so I can leave my room. Lowering the pain in silence is nice.
If I’m in complete silence for months, I get a little pain relief, and my tolerance doesn’t go up much. I still live in a room, wear double...
