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@billie48, thanks for the encouraging words! I have seen you around here from my early days with tinnitus and always deeply appreciated your...
I did turn this around 2 times with white noise generators and so can you. Unfortunately there is no quick fix. You have to give it time.
My tinnitus high-pitched and very unstable. It is not masked by anything but the shower. Sometimes not even that. My audiogram is fine up to 6000...
It took me well over a year until I started to see signs of improvement. 2 years until I forgot my 3M Peltor earmuffs every time I went away from...
There is no magic with the Sound Oasis. It is just a decent speaker with a sound catalog. Any good speaker would do. Pick a sound that you like...
To me there is no general rule for benzos. We all seem to be very different. For me they were a lifesaver. Once I got my panic under control, it...
I used Ativan and Ambien for many years on and off. It worked well for me and did not affect my tinnitus. When at my lowest point, I popped 3-4...
Hyperacusis and reactive tinnitus can get much better over time. I was so bad that I needed to use 3M Peltor earmuffs inside at home when the...
I am here to give hope. I lived more than a decade with severe reactive tinnitus, and for many years endured with bad hyperacusis as well. I live...
No, I did not. But except for that I tried pretty much everything. For me an SSRI and benzo worked fine, but did not do too much for the tinnitus...
I cut grass for 30 years without any problems and no hearing protection. Most ears can handle this but once your ears are weak, you have to be...
The goal of treating severe tinnitus should always be that you can learn to live a good life despite your diagnosis. For the ones that suffer the...
And do not blame yourself too much about that. That is how life can be from time to time. Take it day by day and week by week and improvement will...
@gameover, I have been exactly where you are now. I am your age, married with 3 grown up kids. I know things can be turned around. You need to...
I will try to explain this better. After 12 months with sound generators: Overall mood: Significantly better. Reactive tinnitus: Much better....
All I can say is that this is by far not a linear improvement. Even though I had had great success with sound generators in the past, it took me...
Yes, I would say that I am still improving. Day by day. It took me well over 12 months of consistent use of sound generators to get where I am now.
I have been around here for almost 10 years. For the second time, I have been treating my severe reactive tinnitus with sound generators with...
Being outside. Family chatting. TV on low volume seems to be ok as well.
I agree. Digital noise is by far the worst. I hate those speakerphones that we have in the conference room. I try to stick to natural sounds.
Yes, I very much do. High pitched, unstable, unmaskable as well. The reactive part is the reason I come to Tinnitus Talk at all. I have a lot of...
Travis, I know you have been going trough a really rough time. I have been there too and know the pain. I think we have some similarities. I...
I actually think that my tinnitus is a little bit worse compared to when I started with sound generators. To me it is all about reaction. I will...
Even if @Michael Leigh could come out as being a bit intolerant, he is very sincere in promoting sound generators for severe reactive tinnitus and...
@DeanD, yes, quite bad hyperacusis. I used to protect inside of my house from some quite normal sound coming in from the surroundings.
@ErikaS, as you've been reading, I had some severe tinnitus periods a couple of times after stupid noise incidents. A few times i totally lost...
@Eleanor89, @MindOverMatter, @Michael Leigh: Hope you all are fine :) I just want to thank you for giving me support when I needed it the most....
Keith, this is what I am using, very easy settings and can do both white and pink noise: [ATTACH]
@Kevin4444, I don’t think this is too much of a problem but long term it is not a good idea. Having said that, I have been using Zopiclone and...
@RadioKid722, and how much did your tinnitus improve with B1? Do most environments mask it now? Thanks!
@RadioKid722, so happy for your success! What product were you exactly taking? Where did you order it from? What type of tinnitus do you have?...
@Chinmoku, I admire your focus to pull this off with severe disabling tinnitus. I sincerely hope this works for you.
How did you treat your hyperacusis? Sound generators?
It was a big struggle to get going with the sound generators but I think it is slowly improving. Mine is reactive to all types of fans, frying...
Seems quite similar to mine. Mine is also reactive. I am treating it with pink noise for a month now. Still too early to say but I have a feeling...
Michael, you know I am a great supporter and highly appreciate you advice. I just have one question. Even you must have had your doubts about TRT...
One thing that I noticed after starting to use the sound generators daily is that my tinnitus changes a lot more. From ringing to hissing to more...
@bikerbandito, good to meet you! How would you best describe your tinnitus?Pure tone? Unstable? High pitched? Cicadas? Morse code? Hissing?
How many hours of sleep do you get every night? Have you considered Z-drugs or benzos? I use that in combination with an SSRI. As you know, benzos...
@Michael Leigh, you often mention the risk about setting your sound generators too high (masking tinnitus or close to masking). What about the...
@BrysonKingMe, thanks for reporting back to us. Means a lot! What type and how much of benzo are you using? I have used two types, Zopiclone 10...
We might be 50 people active here on Tinnitus Talk with really severe tinnitus. It must be at least 100,000 people with that diagnosis per year in...
This means that you should never try to mask severe tinnitus. It might just make your condition worse. The sound generators should be set very...
@Michael Leigh, in a lot of aspects of life I am very fortunate and I also got a lot of loved ones. I need to keep remembering that when at the...
The catastrophic days are really a challenge to handle. I get paralyzed pretty much for a full day. How to learn to live with that?
@Michael Leigh, you are perfectly right. After 2 good days (tinnitus 3-5), I am having a setback (tinnitus 7-8). The old bad intrusive reactive...
@Wrfortiscue, will you have any amplification on your sound generators? Mine are very simple. I can choose white or pink noise and volume up and...
@Eleanor89, I also felt that my ears were exhausted in the beginning. It is not too bad anymore. I just kept telling myself it was similar to...
That´s good news. Are you on any meds? Did you start on the sound generators yet? I think sound generators would be the best way to get full...
Tinnitus wise I had my best day today in a very long time. I have a lot less reactivity and sound sensitivity. It could be the sound generators...
Hi @Stacken77. I think my sound generators still make my tinnitus a little worse at the end of the day. I try not to think to much about it. It...
Happy that you got some relief in Korea even if it did not help with the reactive part. Let's hope there is some more effect to come later. What...
@DaveFromChicago, that might be the weakest point of TRT. The counseling is given by an audiologist: They are simply not a trained professional in...
@DaveFromChicago, just curious, is it cost involved with TRT that makes you negative or is it sound enrichment and counselling in general?
Michael, Did you use sound generators the second time around for 4 years? How long did it take before you noticed any improvement? First time...
Michael, I know this was a long time ago but do you remember if the improvments was linear or did you see most benefits in the late part of the...
@Silentreign, I take a SSRI called Escitalopram. I also take a benzo called Oxazepam (but not too much anymore). For sleeping I take Zopiclone....
@Silentreign, I also have a terrible reactive tinnitus. I am treating it with sound generators and a high dose of SSRI. Just almost stopped all...
@Michael Leigh, @MindOverMatter, @Eleanor89: Just a short update. Some minor improvements! I can use the sound generator with pink noise set at...
@LilCC, I am struggling with severe reactive tinnitus. I would not completely exclude a high dose of SSRI. I would also consider sound generators...