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Any idea why your sources would claim this? They have done several double-blind studies with over 500 patients each and rare side effects seem to...

Hi It requires several injections. You can find more links etc. among the posts in this thread. Grate_biff is possibly the second person to get...

Sounds fantastic! Glad you are doing better. I hade not realised that the SGNB was side specific. But if the noxacusis was bilateral and you noted...

I am sorry to hear that, and also glad that i seems to be OK. This spring I was 100% dependent on my mother for surviving and she was there for me...

This is a bit worrying... I thought she was doing a trial to follow up on the case study. Did she mention why she and the pain doctor have not...

Just one more month! Really hope it works for you. The impression I got from the email with Myriam was that Botox had the most permanent effect....

Hi Matt, Do you live in Australia where Myriam is based or is the consultation done online? Also, what is the difference between H and Acoustic...

Hope your condition has stabilized and that you are back to normal. I had lidocaine a couple of years ago during surgery and remember waking up...

I have it most of the time, and it is increased after noise expousure. It started out as pure loudness hyperacusis, but hte last couple of months...

I get pain in my ear, jaw and even tongue after exposure above my LDL. Does the gabapenin affect that pain as well in your case? (Do you also...

There is a Facebook group called "Hyperacusis Surgery Success" where more information is shared, though mostly in anecdotal format. The papers...

@Markku and @Hazel, I realise I am past the deadline. I have not been able to follow the forums lately due to photophobia and I must limit my...

Congratulations Sean! I eat a lot of carbs and dairy.... maybe I should try this. How long after changing your diet did you notice these...

I came down with severe Photophobia, primarily from computer screens and phones. So I have basically been offline for 6 weeks now. Just received...

They are continuing doing this procedure. There is a new FB group that Herbet Silverstein actually joined, though he is not very active. They...

Switch earmuffs to Bose QC35. They are as good as your earmuffs for engine and road noise, and you can play the radio through them. Of course you...

Fascinating story. Really. I am considering to take "the leap" and stop using plugs at times... but then I hear a sound and feel pain, and decide...

This relates to Hyperacusis in particular: There is basically no research. There is are some CBT studies and low quality sound therapy/TRT...

I have had an mild impingement in my left shoulder for many years, and yesterday I made some movement so that I injured my healthy shoulder. I now...

Liberman et al. wrote that. If it is that simple to regenerate just to inject, why is the drug still in "Drug Discovery" phase of Decibel...

The Swedish equivalent to the FDA has Tinnitus as a "Common" side effect for Venflaxine, meaning 1% to 10%. Im sure this is based on something...

*Update* I have not read all the chapters. My view so far is that as a book it is a schizofrenic mishmash. There are many high quality components...

I bought the book. There are 16 very interesting pages in the chapter "Peripheral Mechanisms for DST". They cite Liberman many times when...

Hi, I had been using Peltors X5A and X4A constantly from October to Jan. I never felt any problems... Then one night in January I slept with the...

There are millions of Americans with hearing loss, and only 16 of them had a FX-322 injection. I guess there are a couple of thousand active...

Are there any statistics on this? I realize they all might be clueless, but the ENTs I've met (some with Tinnitus focus) all say. "Take ADs and...

It can get extremely bad. I went to clubs and concerts for four years after initial onset of mild tinnitus and hyperacusis, and I was fine. I got...

https://www.entandaudiologynews.com/reviews/book-reviews/post/hyperacusis-and-disorders-of-sound-intolerance-clinical-and-research-perspectives I...

Do they actually have this at your library? This book is only about hyperacusis, while the other one was about tinnitus and hyperacusis. That's a...

Maybe... "This book highlights the importance of a multidisciplinary approach and discusses the importance in creating clear definitions of each...

Fascinating statements. I wonder how they view cases like us. I got my 2nd relapse from a restaurant that had safe levels (i'd say 75 to 85 dB)...

Can you link to this article? I am seeing an ENT tomorrow because of my jaw pains... I don't know what to say when I read this. Going back to...

I read your post now. I was in your position... I had had very mild tinnitus for 4 years and it had basically disappeared. I thought I was OK....

@marge Exactly! You might have hearing loss. But it does not mean your T will not get better which is what matters. And whatever hearing loss you...

What parts specifically do you dislike about their view?

When reading this I just think of how far the scientists are from understanding tinnitus and hyperacusis.

There is a risk you will get pain from this test (if you dont say "stop" early enough) The value could be to measure improvement or if you are...

Thanks for the great input and research. Some comments and questions: Do we know that this compound is difficult to manufacture? Or reasons to...

Just an example: Say it turns out you need the cochlea to be continuously exposed for 10 days for a hair cell to fully grow. If an injection...

True as well! Conclusion: We have no idea :)

True, assuming a linear improvement. However, the effect might be exponential...

True. Still. If they had absolutely zero improvement in phase 1, I doubt they would be so cocky to talk about fast tracking the drug (?). They...

https://www.wcvb.com/article/local-company-working-on-treatment-to-reverse-hearing-loss/26596728 Frequency Therapeutics is a Massachusetts...

This was discussed a couple of weeks ago. Frequency Therapeutics has had their current CMO since Spring 2018, so Weber did not leave them...

Pain Doctors https://www.smartkliniken.eu/om-oss/personal/l%C3%A4kare-3321285

I think it went on from 2016 to 2018 as there were several inections. She is soon finished with the case study paper. No info on the trial. Might...

If you speak Dutch and live in the area, maybe this is of interest? https://www.brai3n.com Over at ChatH there is a guy who got a patch on his...

There is a risk... but I the most likely scenario is that you will get better unless you have a another noise accident during recovery. I actually...

I might have mentioned this before, but same thing happened to me. Things got better after 4 weeks, started using less and less earplugs, and...

I had the same thought... We don't want to suddenly experience the setback of our life after the nerve block wears off... On the other hand, if...

Seems to work for acute pain: "For five days after the first stellate ganglion block, the stabbing sensation disappeared. “That night, I noticed...

I have exactly the same... a spike since 10 days has irritated my right ear's ear canal combined with the Trigeminal nerve. If i put in an earplug...

I stress at work, but no spike. But after a dinner I enjoyed with friends... why would I get the worst setback ever? I had not exposed myself to...