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I just thought I'd jump in and say that is interesting that Neuromod have US approval for Lenire now. I have been away from the thread for a few...
I don't take anything anymore, but I didn't have any issues with Trazodone. I just try to live with this all the best I can.
That's interesting. When I picked up my device they told me the tongue tip was good for about 240 hours. Before I went there, I had read about...
I just thought I'd share this video from my local TV station here in the Minneapolis/St. Paul market. As most of you know Dr. Hubert Lim is an...
Well it looks like I am taking a break from Lenire for a while. My tongue tip has died. I now wish I would have gotten a second one when I...
Honestly, I think you have a chance. It seems that people with no hearing loss and hyperacusis respond better to the treatment. Thus far it...
I haven't posted for awhile, but thought I would do a quick update. I have been using Lenire for about 26 weeks now. I have been pretty much...
I would say I'm in a different boat. I have been using PS1 for five months and haven't had any luck with it. I am hoping someday I can get it...
That is true. Neuromod uses the tongue, Minnesota uses the ear (though Lim in his research mentions the tongue as a good pathway as well), and...
That is my understanding. They were pretty much ready to release when Neuromod brought on Lim. He mostly did presentations at various...
I haven't heard much from the Minnesota team for some time. I am on their mailing list for a possible next phase study, but I haven't heard much...
Thanks @Autumnly, @PeterPan, @Markku, and @Hazel for all your hard work on this. I hope my data was helpful! I was wondering if I could...
That is what they found in the trials. Most people with hyperacusis were "super responders". Interestingly enough they told a few users they...
Thanks @PeterPan for all your work on this. You are truly and asset here at Tinnitus Talk. I can't wait to see the results and see how they...
It looks like he is still there. LinkedIn Chief Scientific Officer Neuromod Devices Sep 2017 – Present 2 years 9 months Dublin, Ireland But...
There just really isn't a lot to report. I have been on my same setting for over 12 weeks since I can't get back to Ireland. I think the most...
Week 10 Update I am on their newly suggested appointment schedule of going every 10 weeks. I was supposed to go to Ireland Monday of this week,...
I ended up moving my first follow up appointment from next week. I realize I can still get to Ireland from the US, but everything is changing so...
You are correct. I still wonder if it is worth the bother. I am sure there is going to be a lot of extra scrutiny coming and going. I am still...
Well it doesn't look like I will be going to Dublin for my adjustment in two weeks. It looks like no travel to the US from Europe for the next 30...
I had my follow-up call from Neuromod today and told them about my lack of improvement and they said from what they are seeing that isn't abnormal...
The thing for me is that I do the treatment in pretty much that same location daily. The only variable would be that both the battery charge on...
I know someone else mentioned this earlier in the thread, but it now appears my Lenire device is having some weird feedback or Bluetooth dropping...
6 week update Today I finished my sixth week using Lenire. I have had 100% compliance with using the device twice a day and tried to make it...
For those traveling to Dublin I would also suggest the Free Now app for taxi service. It is similar to Lyft or Uber in the United States. The...
3 week update: I thought I'd post a three week update. I don't go back to Neuromod for another 7 weeks, since they are now suggesting 10 weeks...
I did ask about this again at my appointment last week. They told me they are focusing all their efforts on getting the peer review papers...
They are very open about it at the appointments that this is not a cure. They are also very open that it may not work for everyone. This is...
I just wanted to update everyone since I got back stateside yesterday. I received my device on Friday and everything went smoothly. I was able...
Rest in Peace Allan. You will be truly missed.
Heading to Dublin tonight for my Friday appointment to pick up my device. I will post in the Lenire User Experiences thread when I get back early...
So sad. My condolences to his family. I had several private message conversations with Allan over the last year trying to help each other....
Happy 2020 everyone. Here's hoping that this year is the year we finally see some help with awful @#$%!
Donny this is simply not true. Their trial criteria states "Diagnosed with somatic tinnitus resulting from head or neck injury." If they...
If you are worried I wouldn't tell them. They don't ask for your medical records or anything. My only concern would be if that they found...
I was honest and did tell them everything. I took antidepressants, but I had been off of them for almost a year before my assessment appointment....
Lurius - Honestly, don't worry about it. I was not trying to scare you. I just want to prepare you. I will say that I had their new audiologist...
And also in Susan Shore's current trial you can't have more than 55 dB loss in the tinnitus frequencies. I am not sure what exactly the tinnitus...
They are going to tell you "No". You are expected to make all follow up visits and on the device pickup appointment they train you how to use the...
Depressed, Stressed, Anxious. I think they are more geared to see if other problems are causing your tinnitus. I was also told that it is...
Lurius, you are going to get asked mental health questions in your assessment interview and those alone will exclude you from the treatment beyond...
Ross talks about it in the video here: [MEDIA]
Yes, basically if you can modulate it by neck or jaw movements or pressing on certain areas on your head or face. I was just curious how Lenire...
@Drone Draper, I am just curious if your tinnitus is somatic?
Finally got back to the States and wanted to update you all on my appointment. My hearing test came back pretty similar to what my test was in...
Heading out to Ireland tomorrow for my appointment this week. I took a few notes of some of the questions asked in this thread and will ask at my...
Agreed. I am going to push them on these reports at my assessment next Friday.
I think the thing is with neuroplasticity is that it is different in everyone. Some may be early responders and some it may take some time. The...
I haven't posted much in the thread, but I am still planning on taking my assessment appointment two weeks from today. From what I have read...
@Lucky97 I question the fact that the audiologist states that it works better in patients without hearing loss. Tinnitus is from hearing loss...
I thought you all might find this quote interesting from the Neuromod website and their TENT-A2 study. "We thank Dr. Susan Shore (Professor,...
I know that @Clare B said her results came some time after she ended the treatment. I know at least one user here was asked to continue the...
I wouldn't read too much into the criteria from Shore's trial. You have to set criteria for scientific research and peer review. It doesn't...
Here is her inclusion criteria for one of latest trials. It is interesting about the hearing loss threshold. Granted this is just for trials....
Sorry, but Lim's research was what this was all based on. Even Neuromod themselves admitted they used his research for their device. You could...
I don't think it needs to be a battle between the two. I have donated to Susan Shore's cause a few times and looked into taking part in her...
@Redknight, @Liz Windsor, I am just curious if you have somatic elements to your tinnitus?
I got a response back from Neuromod this morning. It came back from an Audiogram Review email address. There was not much information in the...
I sent in my audiogram last night. This audiogram was taken within the last year. Based on their criteria I should be fine. I have no loss up to...
I would assume so Alice. The only other thing I could think of is that they are trying to streamline the appointment to get more people through,...