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@MartyJ We are all on the facebook group: https://www.facebook.com/groups/3477917998900326/ I think the things that have helped me are a night...
Hello everyone, I wanted to give an update for old and new members. I have had only mild thumping (1-2 thumps every few days or so) for the past...
Have you heard of patulous Eustachian tube? I think it can cause ear fullness and strange reactions to from talking and maybe ear ringing, since...
Who was your doctor in NYC?
@Sarah101 Mine may be improving slightly. I've noticed the episodes have less thumping (there is more space between each thump) and that if an...
@Sarah101 Mine is the same :( I don't really know how I am coping. Just trying to take one day at a time. I started wearing a mouth guard and I am...
Has anyone had the surgery or tried botox? Or know of anyone who has? Thanks, Aimee
@Sarah101 Where do you live? So you can't see an ENT until June? Could you try seeing a neurologist? Or even a dentist about TMJD? In my...
@Sarah101 I’m so sorry you are dealing with this too. I know how awful it is. Soma (muscle relaxer) has helped me the most. What doctors have you...
@Sarah101 I have tried flexeril, klonopin, and soma. All three helped somewhat, but the thumps always came back eventually. I do not have tinnitus...
@Sarah101 mine will thump consistently for a few days and then stop for a day or so. Not sure why. I’ve seen some improvement taking muscle...
@Sarah101 no, still trying to find answers and treatment. When did yours start? What are your symptoms?
@ZZZK have you ever tried acid reflux meds?
@Oswald @Jessica Moore Hello ladies, I similarly suddenly starting experiencing thumps in my left ear (mostly). They are also triggered by yawns/...
@cheyennes I also get thumping, but mine is triggered more by burping/hiccuping/yawning. Sometimes it just starts out of nowhere. It's maddening....
@ZZZK thank you for your reply. What do you mean by fasting most of the day? I'm getting an MRI done Friday to rule out any other causes. Mine...
@ZZZK Mine started 3 weeks ago. Looking back, I think I had a mini episode in July 2018. I had just flown to Philly (from Dallas) and I noticed...
Recently diagnosed and going crazy. How long did it take to notice the effects of not drinking caffeine @steffatkings?
anybody find anything that has helped the myoclonus? It's driving me nuts and I can barely do life.
has anyone found anything that helps? I have been recently diagnosed and am struggling to keep up with normal life.
Has anyone found any treatment? Recently diagnosed and really struggling to keep up with normal life.
