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Being in extremely hot temperatures lowers my tinnitus by about half. I only realized this past summer and I'm sure it's related to either muscle tension or vasodilation. Something to remember

It’s probably from Clarithromycin and Doxycycline. Drugs with those suffixes are known to be ototoxic. Anecdotally, I noticed my tinnitus became a bit louder after a short course of Doxycycline back in 2018. It sounds like you’ve got it under control now, though.

A decrease of 13 TFI points was used as the threshold for success. If they had lowered that to 11 or 9, there would probably have been many more responders than the reported 60 percent.

Penicillin and Amoxicillin.

Wi-Fi routers definitely emit a very high-frequency sound, but it should be at a very low decibel level. I have two decibel meters, and neither of them can detect the high-pitched squeal that my Wi-Fi router makes when measured in A-weighted decibels.

Give it time and stay hopeful. Anything that can cause headaches and seizures can also cause tinnitus, as they are intricately linked.

@OjaiTed, was it loud?

Well, don't I feel stupid 🤣 I was imagining a sea of earplug-laden tinnitus people. Thanks again for arranging this.

I really wish I could go to this. I think those of us with hyperacusis tend to be more of the homebody type. Is there any chance we can submit questions online?

The Bionics Institute found that people with very severe tinnitus have reduced cerebral blood flow in certain areas of the brain. Whether this is caused by the stress of having tinnitus or is actually contributing to the generation of tinnitus itself, no one knows for sure. In my opinion...

Thank you for spreading positivity, Billy. Did you find that hearing loss made it harder to deal with your tinnitus? That is honestly my biggest fear in life.

It is the opposite of residual inhibition. When you block out external sounds, it amplifies internal ones. I am actually surprised that anyone answered “no” to this question.

Let your son know that extremely severe tinnitus after acoustic trauma is often temporary, and it usually improves over the course of months or years. Habituation also tends to develop over time, making everything more manageable. In the meantime, tell him not to panic. Encourage him to stay...

Remember everyone, brain implants require a Brain MRI, and most of these scans exceed 100 dBA. There are plenty of alarming stories about this on here. I am not saying you should lose hope, but it is something to keep in mind.

He looks amazing for 94! Shatner is proof that having tinnitus does not have to destroy your health or your mind. Thank you to the team for arranging this message.

The last couple of trials showed clear efficacy, and her results have been reproduced at least once. This method definitely seems to work for somatosensory tinnitus. What I do not understand is why it still has not been tested on non-somatic tinnitus, which makes up roughly half of us. How hard...

That's great! Thanks for contributing your experience.

That’s disappointing. I was hoping Nebivolol might be the one beta blocker that we could take. Was it a severe increase or a mild one?

Every source on the internet says that a CT scan can absolutely detect a fistula. Keep in mind that the cochlea is a macroscopic structure—you can see it with the naked eye. It is about a quarter of an inch in diameter.

I used to believe this but I'm not so sure anymore. There was a wildly successful tDCS study last year which gave people a -30 TFI score and I'm sure it entails actual volume reduction. tDCS only affects the cortex, which is the outer layer of the brain; it doesn't even affect deeper...

I lost a ton of money on FREQ as well. If I recall correctly, the placebo group showed unprecedented improvements, which likely means some participants were dishonest about their scores. However, there's no reason to suspect any deceit on the company's part—they genuinely believed their product...

You might want to look into Tofisopam. From what I’ve researched, it seems to have one of the best efficacy-to-side-effect ratios among available drugs. Some people report that it reduces their tinnitus by half. Plus, since it doesn’t act on GABA receptors, it’s associated with minimal tolerance...

Lenire and Auricle operate in different ways. Lenire works by increasing hyperactivity in the dorsal cochlear nucleus (DCN) to distract the brain from tinnitus. In contrast, Auricle reduces hyperactivity, aiming to address the underlying issue directly.

I've been out of the loop on this for a while. What do we think now? 2030? 2050?

Wish there were more Tofisopam reports, seems like the promising drug for tinnitus

My other health issues are worsening my tinnitus. UGH.

Residual inhibition is real. If you could boost low-decibel noises whilst not boosting loud noises -- maybe having a cutoff around 55 dB, it could theoretically work to suppress tinnitus. I'd probably be scared of it accidentally boosting loud noises, though. That would have horrific consequences.

Some machines are noisier than others. I had to take Valium to avoid a panic attack, but I wouldn’t call the experience traumatic—just panic-inducing. The Siemens Aera with Quiet Suite is genuinely pretty quiet when used with tightly inserted foam earplugs and headphones on top. I recommend the...

It happened again today. I am certain it is something of cochlear origin—there is no way it is just in the brain. I have dysautonomia, so I have attributed it to either vasospasm or vasoconstriction in the inner ear, or perhaps fluid pressure buildup, similar to what occurs in hydrops. I cannot...

It's marginally off-topic, but the entire FDA is getting gutted, apparently. The last time Trump was in office, he cut a tremendous amount of red tape within the FDA. Regardless of your politics, this should be good for us, right?

She speculated that it might work for both in the Q&A. Technically you can't ask a guinea pig if it has somatic tinnitus, then again you can't ask if your tinnitus machine worked either.

Apparently, Tofisopam can cause tinnitus as its sole withdrawal symptom. How perfect for us. Source: A Comparison of the Anxiolytic Properties of Tofisopam and Diazepam: A Double-Blind, Randomized, Crossover, Placebo-Controlled Pilot Study

Ugh. This just happened again, and it’s so scary. I really hope it’s benign.

There are two components to the etiology of tinnitus: the peripheral issue and the central generation. TMJ dysfunction and Meniere's disease are fundamentally different conditions, so it's reasonable to consider their resulting tinnitus as having different etiologies. However, the tinnitus is...

It might not be the only treatment. There was a recent double-blinded randomized placebo-controlled trial that showed tDCS over the auditory cortex reduced TFI from an average of 75 to 45, and I'm sure that entails volume reduction. No one talks about it, but it had incredible results. For...

Many of us with damaged ears can get an acoustic trauma from noises barely north of 100 dB. Mine was a deaf cat screeching 5 feet away from me.

There's a user experiences thread with 50+ reports. Most people say it's trash.

Has anyone tried this yet? It seems too good to be true.

I think Dr. Shore's placebo was related to the timing.

Is there any update on the Cerebrolysin? That's great that something seemed to work.

By some accounts, it helps MOST people—I've heard 75%, according to one audiologist. Never forget the sampling bias of getting your reviews from a sick-person forum. Don't get me wrong; I'm still afraid to try it, but thousands of people have now used Lenire, and almost no one on Tinnitus Talk has.

It depends on how often it gets catastrophic. I've had horrific 9/10 tinnitus plenty of times, but I've been blessed with a 4/10 baseline for the better part of the last couple of years. In essence, anything that is temporary is bearable when it acts up. It's the only mentality to take for such...

I was just exposed to a very loud firework from a distant neighbor. I don't know how far away it was, but I'd guess it was anywhere in the 95-102 db range. It was a very low-frequency "thud" sound and even had a bit of a shockwave. Like most people on this forum, I have noise-induced tinnitus...

Microsuction is the worst. I've had it done twice, and the second time gave me a horrible spike. In the future, find a skilled ENT and insist they get the wax out MANUALLY. It's very safe if done in the right hands. My hyperacusis went 90% away over the course of 1-2 years. I can finally go...

I don't know if this has been mentioned yet, but XEN1101 is supposed to have side effects comparable to those of most other anticonvulsants. I specifically remember that from one of Xenon Pharmaceuticals' PowerPoint slides after the Phase 2 trials came out. I'd rather not go digging for the...

tDCS has some solid evidence that it helps tinnitus, but very few mentions of it in the community for some reason. I would trust tDCS WAY before I'd trust TMS. I personally know of three cases where TMS made the patients' tinnitus worse; two were former patients of my audiologist, and one was...

The more I learn about this device, the more optimistic I get that it does actually work. The only thing I'm still apprehensive about is the tone matching. Many people here have crazy broadband sounds that would be challenging to match correctly. Personally, I've had sounds that are like if you...

Botox should have the same effect, no?

Vinpocetine does the same thing, I believe, but without the erections.

Some cannabinoids are also modulators of 5-HT1a. This is 100% anecdotal on my part, but CBD (5-HT1A agonist) tends to make my tinnitus worse than CBG (5-HT1A antagonist).

I agree with almost everything you said, but the CEO of Neuromod has a PhD in biomedical engineering and did his undergrad in electrical engineering, and has explicitly stated that the latency has been corrected for.

That's really unfortunate. Hopefully, it lightens up eventually, as it does with many other people. You're not the first person on here who's gotten worse tinnitus from the iodine contrast from a CTA scan; that's what it was, right? Or was it an MRA scan?

Verapamil is also an L-type calcium channel blocker, and it's a much more commonly used drug than Nimodipine. A quick search of Reddit yielded 1 improvement and 2 worsenings of tinnitus caused by Verapamil. That makes sense, given that it drops blood pressure, and hypotensive drugs (like...

The two-year threshold is so out of their ass. At the risk of coming across like a simpleton, it'll either work for tinnitus or it won't. I don't believe this condition has a million and one different etiologies.

Don't forget, we also have @kelpiemsp here who says Hubert Lim's method worked for and it actually eliminated his tinnitus, not just improved it.

YMMV, but muscle relaxers have this effect for some people.

"Like the shirt on your back" —Hubert Lim

People with mild tinnitus talk about a placebo, but people with soul-shattering tinnitus know that a placebo doesn't touch it.