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So, I was just on here answering a PM and thought it might be time to post this nugget. I've been taking generic Zicam - Zincum Acetium and...

Thanks for keeping us informed.

The numbness could be an indication of thoracic outlet syndrome. Definitely see a chiropractor. They vary greatly in competence, so you might...

That's pretty suggestive that there is something that is working for you, just maybe it needs a longer exposure to make definitive change to your...

That is crazy talk if they haven't had any more concrete results than our members experienced. I mean, 300,000GBP? Isn't that like,...

Thank you, Fernando. I'll watch with interest. May I ask, is that supplement regimen something suggested to you or of your own devising? Also,...

It's off topic here, but just to clear up, I was talking about my experience with Potiga (I think Stina got that, just wanted to make it plain for...

No need to state again that experience with this drug is very individualized, but I agree you'll likely feel something at 300mg TID. However, I'd...

Just did some quick research, and can say definitely that MEM and Tensor Tympani Syndrome are different conditions. MEM involves the stapedius...

This is a good point. Since I started backing down on Retigabine I've noticed that I've had noticeable effect on lower doses than when I was...

I got one from ATEOS, same convo you were on IIRC. ATEOS's source was excellent. The other was...

I was just walking around my house thinking how quiet it still is on 150mg of Potiga every 6 hours. Two new versions of Retigabine have been...

Progress Report Progress Report Date: Feb 12, 2015 Current Retigabine Dosage: 150mg every 6 hours Current Side Effects: Brief manic...

I was steady, Juan Carlos is steady. Danny Boy had a big dip in his efficacy before getting on the right dose. These are very complicated,...

@Nils In my experience, the big "how not to" is, don't go up too fast once you start experiencing side effects, or you reach 300mg TID. It's...

This would go along with the low-laser therapy, the idea that the ears can heal themselves given proper rest and extra energy. Have you been...

Progress Report Progress Report Date: Feb 10, 2015 Current Retigabine Dosage: 150mg every 6 hours Current Side Effects: None Current...

That was my experience at the first neuro I asked. They never gave RTG if there was any other way. But from their comments, it was as much about...

Progress Report Progress Report Date: Feb 1, 2015 Current Retigabine Dosage: 300mg every 10 hours Current Side Effects: Hmm. Well at the...

Speaking as a Retigabine user, now on 300mg/TID for about two months: it takes some time to ramp up. I mean, I felt like something was happening...

1MW, I had that briefly as a side effect. It went away with time and "familiarity" with the drug, as nearly all symptoms I developed at 300mg TID...

I feel guilty for how little I've involved myself in these discussions since starting Potiga, but you can take that as an indication of efficacy....

Excellent work spotting that, @OptimusPrimed. I had read many moons ago that SciFluor was interested in Retigabine, but had no idea if they would...

I don't recall reading this, Rich, can you point it out? To anybody who has not had experience with this: taking a pill everyday is no big deal....

Before tinnitus, I thought my wife and daughter had really good hearing and I was normal. My hearing went down a bit with the event that gave me...

Quick post to say to @Christian78, @tomm, and anybody else having bad experiences - HUG - hang in there my friends. You have at least seen that...

Progress Report Progress Report Date: Jan 7, 2015 Current Retigabine Dosage: 300mg TID Current Side Effects: Juan Carlos is not alone. I...

Now THAT is very interesting and helpful. Retigabine is definitely still helping me at 900mg (and the side effects are present - typing this is...

@Christian78 My friend, I am always impressed to see you have suffered so much but your attitude always returns to positive. Even when you are at...

Sounds like an event I had one morning at 300mg TID (900mg total), but mine went away within and didn't repeat. Have you tried cuddling with your...

http://www.gizmag.com/zero-sr-2014-electric-motorcycle-review-test-ride/32015/ For a mere $17,000, you could be on the road with no worries! ;p...

Just doing a quote because I haven't been able to do a @ with your name for some reason, doctor. I've now had personal experience with Potiga...

Progress Report Progress Report Date: Dec 20, 2014 Current Retigabine Dosage: 300mg TID Current Side Effects: If other patients are...

I have not had time to read any posts on this thread or any other today but I must post this before I forget. It is for anyone who has wondered...

@Christian78 Just saw your latest User Experience. If it helps to know this, I have had similar experience with going up and down. I think most...

Progress Report Progress Report Date: Dec 12, 2014 Current Retigabine Dosage: 200mg TID Current Side Effects: None Current Tinnitus...

Progress Report Progress Report Date: Dec 10, 2014 Current Retigabine Dosage: 200mg TID Current Side Effects: None Current Tinnitus...

AUT00063 and the derivative of Retigabine that ATEOS posted about previously. Less toxic, more effective, according to the researcher/developer....

@Christian78 It sounds like you have reached the limit of what Retigabine can do for you at this time and you should consider tapering down....

Agree, that's the main reason, but hey are also hoping 063 helps with processing-based hearing loss issues. Two birds, one stone. Any updates...

The whole approach of using Kv channel modulators to effect inhibition is, I think, partially to avoid having to do so through modifying...

@RaZaH What was your dosage before taking a break? I mentioned in my User Experience update that I had a day when I got back to "normal" on...

Progress Report Progress Report Date: Dec 7, 2014 Current Retigabine Dosage: 150mg TID Current Side Effects: None Current Tinnitus...

Specifically I was talking about what ATEOS posted. Maybe AM-102 will turn out to be a similar approach. It's clear the medical researchers...

The field of ion channel modulators is opening up rapidly. There's at least one other drug with a similar mechanism of action that should be...

Personally I went to my audiogram, added up the threshold numbers and divided to get an average, which for me is 25db. Not sure if that's exactly...

On retinal pigmentation, I found out a little about how it operates in the eye. Not anything you can't find elsewhere on the internet most...

@locoyeti, can you give an assessment or your rationale for the 300x4 approach over 400x3? I've seen half-life estimates range from 5 to 7 hours,...

I feel a bit guilty, having a mild case of tinnitus anyway (close to habituation) and not getting side effects, rather I've had the good feelings...

Those of you who keep up with the UE thread will see that I've started my dosage. The prescribing neurologist suggested starting with 100mg TID,...

Progress Report Progress Report Date: Dec 3, 2014 Current Retigabine Dosage: 100mg x 3 Current Side Effects: None Current Tinnitus...

New User Information Gender: Male Age: 38 How Long Have You Suffered From Tinnitus? (Date of Onset): Jan 15, 2014 How Did You Get...

Members have communicated with Dr Tzounopoulos. Unfortunately any work he is currently doing must be at a very early stage, as he didn't say he...

@NGC891 thanks for your encouragement. Certainly if you are getting some results after this many years, I have good reason to be hopeful. Well,...

@locoyeti, thanks for the advice. My next appointment is Dec 16 so I'll see how long it takes to get my supply. @cdog I've looked and may look...

All, I now have a prescription for 100mg TID (300mg total) of Potiga. It's just a one month, no refills, and I'm scheduled to see the doctor...

That's the main topic of the thread now, beemovie. Trying to find people who qualify and get them in. I believe Freddie qualifies, but has not...

@undecided I'm sorry you haven't had lasting results. Thank you for sharing your story. I think that what it suggests is that if a person has...

We should start a club!

@MattMSP it's a different drug and you get on a full dose immediately, unlike Retigabine which you have to get on gradually. A month may be all...