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has anybody yet posted any positive/negative feedback from autifony trials or is it too early?
has anybody else had as much steady success as @Danny Boy ?
good luck friend
so who's had the most success with trobalt, apart from dannyboy? I read somewhere that viking had 70% relief but had to stop using it, a shame....
well, let's all hope we hear something good come out of the autifony trials. agreed, dannyboy is yet to come off RTG but at least he's been able...
I guess we are all waiting for feedback from an autifony trial where the person says "yeah, it nuked my tinnitus" ...something definite like that...
it's possible you've just got the placebo. we're much hoping to see great things with aut63 at the moment, trobalt is yielding better results!
so we need to closely watch Dannyboy once he comes off RTG hopefully it'll be good news like it was for mpt
next question... how may people do we know on the trials, inculding other forums? is there any way to increase the number of trial responders on...
can anybody guess the earliest we are optimisitcally likely to hear any feeback from the autifony trials? NOT from official figures but from...
to the best of one's knowledge dannyboy's story has probably been the most successful to date. and even if he needs to keep using it, many drug...
thanks for the guess, hope you're well i was talking less about official figures and more about leaked opinions during the trials
one BIG success story not talked about much is @Danny Boy Does anybody know how he is doing these days?
can anybody guess the earliest we are optimisitcally likely to hear any feeback from the autifony trials? wild guesses anyone?
your doctor or some on here get it from china ask amandine, dannyboy,tomm, etc
Maybe we can now see Christian's experience as a SUCCESS story.
Agreed. My doctor in UK is unsure about helping me. Are you able to share with us where you got your trobalt from? A lot of people here would try...
Many people trying Trobalt are actually experiencing real measurable reductions in tinnitus and hyperacusis. Dannyboy, for example, has turned his...
good point. but trobalt seems to be doing more than getting people high there have been solid reports of tinnitus and hyperacusis levels lowered...
what dose are you taking? i understand different doses achieve diff results anybody know about Dannyboy? apparently it's turned his life around...
so many people are starting trobalt, it's amazing really
@Viking it's a real shame you couldn't continue with trobalt ...would you ever try again?
lately, more and more people are trying trobalt the word is getting out at last soon we'll have an even better picture
GOOD LUCK
yet another success on this thread
very happy about your progress on potiga
how come so many people have now got trobalt? is it easier to get in some places?
Hi Tomm I now live in the UK also How did you get your trobalt/ any technique I can use? My gp wants me to go thru a specialist
so we have albertus and locoyeti experiencing much reduced Hyperacusis after trobalt . I wonder who else.
Hello Dr.Nagler, we all appreciate you taking an interest in this thread. If one of your patients asked for retigabine, might you be likely to...
Pay attention everyone Here we have TOTAL SILENCE from a chronic Tinnitus case on low dosage. I have a feeling that as more people come forward...
@dan i havent taken any klonopin for a while no point until i can get rotation set up as i remember the pills come as 0.5mg i'd take maybe 4 or 5...
so how many of us on this thread are critical? i know that martin69, telis and hazar have it severe/intrusive whilst some others may have an...
Hi Zimichael, thanks for your input do you think the rotation would invite problems i just wanted to mainitain long-term effect as i've been hit...
hello my friend, hope you are okay it's interesting, a big enough dose of klonopin dampens my tinnitus/perception of it to make things more...
the point is this approach leaves you very strong and stable, rather than being over-dependent on one drug. taken once in a while, lyrica and...
When I try Trobalt I will ROTATE it with other drugs that suppress my tinnitus. This means I will not develop tolerance, will not need to keep...
i am not angry! I am very grateful that you have found keppra thank you very much for trying it...it seems like an amazing breakthrough...
everyone should keep close eye on Viking's keppra thread, link above. its an alternative to trobalt that apparently targets same spot as autifony...
btw hearing tests do not cover your full hearing range so you may have hearing loss even if your test is 'perfect' this is commonly the case
please post links to studies linking keppra to helping tinnitus this is what we need to show our doctors to get it off-label, unless we can take...
good luck @Viking keep this thread alive it could become bigger than the retigabine thread we must tell everybody to come to this thread, it is...
@Zimichael, thanks for the positive post I intend to try trobalt soon, if gp can't give it to me off-label, i'll ask ent i guess
thankfully looks like not everyone is having bad side effects this widely available epilepsy drug is bound to disagree with some will be...
Hi RaZaH, hope you are well, how much of any silence do you think you can attribute to trobalt? were the '3 beautiful quiet days' the sort of...
How is dannyboy doing? I wish him well. Looking forward to seeing more progress.
CONGRATULATIONS!!! This really is the best news all week. Hopefully continued suppression of the tinnitus signal will lead to permanent plastic...
Hi Danny Are you now taking 1200 regularly? It seems to have had a good effect on you, congratulations. How long do you plan on taking trobalt?...
ive asked dannyboy, but does anybody know of any uk gps happy to prescribe trobalt?
with trobalt, dosage is critical the european paper looks to 1200mmg/day as optimal so it's good you increased dosage what you need to do is keep...
wow, trobalt sounds like a miracle drug + it's working on tinnitus which is OVER 2 years old. are there any other similar cases? note: 100mg is...
from what i read in the european journal of pharmacology paper (Calvin Wu,2014), the dosage needs to be a minimum of 1200 to work effectively to...
A UK GP ,it was easy because lyrica's an aticonvulsant also prescribed for pain and GAD
it's hard to believe that just one lyrica pill made your T worse it has a two-stage action, one of which activates gaba to CALM things down it's...
hi steve, i've mentioned this before but maybe with insufficient emphasis lyrica reduced my T substantially for a few hours and is good for sleep...
Congratulations RaZaH if something like this happened in the autifony trial, they'd no doubt be calling it a miracle drug. We look forward to your...
MPT cured his tinnitus permanently with retigabine. His tinnitus was 6 months old. If tinnitus is the same whether its 6 months old or 5 years...
@RaZaH, take strength just imagine you take the trobalt at a sufficient strength and your tinnitus disappears forever wow...that's the dream we...
when does anybody think is earliest we'll start getting feedback and rumors from autifony trials? would be nice to know its helped somebody.
nearly every prescription drug i've taken has an endless list of potentially nasty side effects, it all depends how desperate you are...some are...