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That's a very important point about T and I would guess that it applies to many of us. I am also realising that it is not the volume or pitch of...
I used to do the exact same thing. There was a time when I would lie in bed listening to generalfuzz ACRN tones on an mp3 player to quieten the T...
@smel - I have played around with ACRN (courtesy of generalfuzz) in the past and experienced temporary benefits very similar to what you describe...
I agree with @bill 112, you might think that T has impaired your cognitive ability but your T is only weeks old. There is still time for it to...
@Telis - I think you are correct that severe T of the type which can be heard above almost any level of external sound is a different phenomenon...
People with T are often told that they just need to wait for habituation to occur but habituation never happens to those who are consciously...
The interim analysis carried out by the Independent Data Monitoring Committee looked at trial data on 58 subjects. I don't think we know whether...
My cat often pricks up its ears when I use the TV remote. Not being technical, I had assumed that the remote control technology made use of...
The findings will be published in due course, therefore any speculation is essentially futile but I can't help wondering if the failure to obtain...
@valeri - who knows? All we know at the moment is that the CLARITY study into AUT00063 as treatment for age-related hearing loss is still going...
For anyone who wishes to know more about the role of Data Monitoring Committees in clinical trials, this document may be of interest:...
Is it standard practice for a Phase 2 clinical trial to be abandoned mid-way through due to initial findings showing no indication of success? I...
You're right that the study seems to be taking a long time due to a shortage of eligible participants but I don't think the size of the UK...
I think the info in the email from Autifony quoted by @Dubbyaman (and earlier by @111) should be treated as reliable and is the most authoritative...
Your information is slightly outdated, @Danny Boy - An NHS prescription currently costs £8.20....
I got Puretone Audimed masking devices on the NHS about 18 months ago. I wore them for a while but didn't get much benefit from them. Most of the...
It's annoying when doctors and ENTs say "nothing can be done about the noise in your head so the only possible treatment is to work on your...
No-one knows yet whether AUT00063 will need to be taken indefinitely. I do not think it is accurate to call it "another anti-epileptic" because...
I can identify with these feelings about life not being the same. All I can say is that there will be times when you are thinking about other...
I have seen Autifony described as a "spin-out" of GlaxoSmithKline. I don't know anything about the specifics of the relationship between GSK and...
@Gill Hayes - sorry to hear that you didn't get on the trial. I didn't get on either. In my case, it was high blood pressure which made me...
Apologies if this has been discussed elsewhere on the forum but I am wondering what to make of this article on the BTA web site:...
If the phrase "placebo hospital" implies a belief that there are some hospitals who are giving out AUT00063 exclusively and other hospitals who...
I initially thought it would be imposssible to continue working full time in an office with T but it has got easier as time has passed. Mild H is...
I was prescribed 5 day course of 40mg prednisolone back in March for a persistent cough. By day 3 I was getting blood in nasal phlegm and also...
Hi @Juan Carlos - no I don't think the level has changed at all since my T first began, the difference is the result of spending less time...
Thanks for asking. I am pleased to say that over the last few months I have become much better at ignoring/disregarding my T. It is still there...
Been away from here for a while and I am no longer a frequent visitor to this forum but I just wanted to state that I was eventually ruled...
Haven't checked the board much recently and it is a while since I've posted on here but just wanted to say hi to everyone. Some of you may...
@amandine - OK, I guess you are right that there was a difference in the overall impression I gave on 12th January compared to what I am saying...
The inclusion and exclusion criteria for the AUT000063 trial have been published and are freely available at the WHO Clinical Trials web site and...
I'm just wondering about the optional "brain encephalography (EEG) and/or auditory brain response (ABR) tests" which are mentioned in the patient...
I can confirm that the doctors and nurses dispensing the pills will not know who is getting the real drug and who is getting the placebo. However,...
MRI scans are loud but you will be given hearing protection to wear. Also, they normally provide you with an emergency buzzer which you can press...
@2131e - The official position is that the placebo group do not get the opportunity to try the real drug (even after the trial is over). I think...
@Katkin - Salford
@Katkin - You need to ask your GP to provide you with a referral to the trial co-ordinator at Salford Royal Hospital. Contact details at...
Have you applied for the trial @Katkin? It looks like you are close to the 18 month limit but you might just make it if you're quick.
Thanks @RoadToSilence - Incidentally, I also asked at what point the participants will find out if they have been given the real drug or the...
@tomm - I 've had my hearing tested a couple of times within the last year and I have been told that it is within the boundaries of what is...
I attended my screening interview for the Autifony Trial this morning. I had expected that I might be ruled out for either of two reasons: 1)...
I've now got my initial screening appointment confirmed for Monday 12th January. I don't think it is likely that I will meet the hearing loss...
@JC1859 - If I don't seem particularly angry about the variable quality of NHS provision for T sufferers, then it is probably because I never...
Maybe the reason for lack of responses is because your question is somewhat ambiguous. You have referred to the list at...
Buying or selling a house and moving house are some of the most stressful things that we do in life. If you are worrying about the house move,...
Welcome to the forum, Paul. Tinnitus floors everyone at the beginning but don't believe the horror stories. For the mast majority of people, it...
Thanks @undecided. That's useful to know. I am hoping to be able to keep off the Fluoxetine for a while. Part of the reason is because I will not...
That's quite a subtle point and I think you make the point very well. For someone so young, you have a very mature and intelligent outlook and I...
I instinctively agree about the possibility of a link between T and sudden hearing loss of the type that might be associated with a serious...
From a quick perusal of this thread, I am getting the impression that opinions are divided as to the usefulness of Fluoxetine but I just wanted to...
If we're making a list of the type of events or hazardous situations which can cause T, then I would want to mention exposure to burglar alarms....
Sorry to hear that you are still struggling with your T spike @derpytia, but like @Markku says, we have not yet seen any feedback from anyone...
I am sure @Neenie is capable of defending her own views but I do not think she said that all T is the same. She said (correctly) that most T is...
@Viking - I do not think we need to be worried about this. Autifony obviously believe that Kv3 potassium channel modulation is likely to have a...
@Dr. Nagler draws a useful comparison between the heightened acuity of our vision in a dark environment (pupil dilation etc.) and our heightened...
Interesting to read Rousseau's description of his tinnitus. It makes me realise how (relatively) fortunate we are to be living with T in the 21st...
Hi @Martin69 - I was wondering if you have tried any sound therapy. Earlier this year, I spent a lot of time experimenting with ACRN. To be...
@Dr. Nagler - I just wonder what is the basis for your assertion that AUT00063 is unlikely to be helpful to someone such as yourself who has had...
Hi Joseph - you've found the right place. There are many other Tinnitus forums on the internet but this one is the best. Your experience of...
I disagree. Over the last 120 pages of this thread and also in the Retigabine - User Experiences thread, the trialees have described the effects...