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As some of you know I have tinnitus and pain hyperacusis. I have been in treatment at the Metro Tinnitus & Hyperacusis clinic in Mississauga for...
@Vassili, wow, pretty excited to see you posted. Have been checking to see if you have been posting and haven't seen anything from you since...
Where did you find this information? I am waiting for changes to MAID in Canada (if it does not take too long) and hopefully qualify for...
Book recommendation: If you haven't seen the movie or read the book, "Catch Me If You Can" is a great read. It's the true story of Frank...
@Vassili I'm so sorry you are feeling down. I don't want to sound like a Pollyanna, it's just that sometimes when we are down, we see...
@Rosie-ORose Thank you for sharing your story. Your attitude is inspiring and gives us hope to cope.
@Ava Lugo With ear plugs I can still hear sounds and still get pain. If I wear ear muffs, then most sounds are pretty quiet. The sounds that...
Yes, it is reactive.
I did not find a difference in the tinnitus & hyperacusis with the taper. I know your appointment with the neurologist isn't until February......
@PeteJ My deepest sympathy for the loss of your father. May you find comfort from family, friends, and this community.
@David Vance I am in Simcoe County.
@David Vance Hello David. I have discontinued the Gabapentin. I was put on 300 mg a day, then 600 mg, then 900 mg, then 1200 mg and it wasn't...
@Jazzer My sincerest, heartfelt condolences to you on the loss of your beautiful wife, Sylvia.
I got tinnitus back in April. At first it fluctuated but then seemed to settle down. It also got quieter. I was doing really good. Then, I had...
It sucks big time not being able to listen to music or watch TV. Actually, I do watch my two favorite TV shows every week but with no sound...
@Michael Leigh I find great comfort in corresponding with you. Thank you for taking the extra time to look up my previous posts in order to help...
I cannot use sound enrichment to distract from the tinnitus noise. I get burning pain and the tinnitus gets louder. My hyperacusis seems to be...
@SummerDreamer Thanks for the info. I get a lot of burning pain top/back of head (even in silence). I sure miss it... my sewing room is my...
Thank you sharing. Your story gives hope.
Hello LilSass Thank you so much for the information! I will look in to this. How are you doing?
I'm glad you found the book "The Girl With The Dragon Tattoo"". Sometimes I have trouble reading too. So I don't. Then, I will pick up a book...
@Rjbookworm Hello Ava Thank you for posting to me. I have not been able to see anyone yet. I was told getting in to see the other ENT who...
Yes. I am in Canada and the wait times for specialists are obscene. I called around a number of offices, and one neurologist had a wait time of...
I am so tired of the pain. The tinnitus, which gets much louder at night is bad enough (sometimes fire alarm loud) but the burning pain on...
Awesome! I am so happy for you! :)
@100Hz I am so sorry to hear of your plight. Like you, I am unable to live a normal life. I am housebound. Inside 98% of the time. I cannot...
@100Hz Your avatar states you have had tinnitus since 2015. Have you had pain hyperacusis since then as well? Are you able to live a somewhat...
@SummerDreamer You wrote: I actually had a measure for this when I used my sewing machine (I’m making a quilt!) - before it would cause me...
@weab00 I feel for you. Like you, I too have noxacusis and find it extremely difficult to know what will set off pain/setbacks as it is...
@100Hz Thank you for the great article. Just want to clarify the portion below. I am cautiously optimistic that FX-322, OTO-413 and SPI-1005...
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@Marin Marin, I am so sorry about your setback and hope that it will improve soon! I will be thinking of you. :huganimation:
@Marin Ditto. I am so sorry that you have to deal with this as well. Like you, I do find that some days my ears can't tolerate being outside....
I have found this to be true for me as well.
@Marin Our tinnitus & hyperacusis situation sounds very similar. Not sure what kind of ear plugs you have. I have custom musician ear plugs so...
Some things make you laugh out loud even when no one is around. [ATTACH]
@serendipity1996 I believe I read that you had pain hyperacusis but it has improved? How long did it take to improve? Did you do anything...
@Kirstystired I too am so very sorry to hear about your friend.
What an awesome idea!
I like the way you think! :beeranimation:
@Zugzug Not sure, but I thought I read you had noxacusis that went away. If, this is correct, how long did it take to go away? If I am...
@Vassili How are you doing these days? Is it next month that you see your neurologist?
I have come across many success stories for tinnitus and some for hyperacusis but looking specifically for success stories from pain...
@Juan You mentioned in one of the posts above that you had severe hyperacusis at one time. Was it pain hyperacusis? How long was it severe...
I'm still experiencing nerve pain on the top/back of my head and either burning or stabbing pain in my ears and cannot get in to see a neurologist...
@Juan Thank you for clarifying and the additional information. I think I am going to wait until the spring to visit to give my ears a chance to...
Can you clarify your comment above please. I have pain hyperacusis. My son and his family live 1 hour and 40 minutes away. Since the onset of...
@David Vance Hello David I too have pain hyperacusis and get burning pains in my head and like you I am also on Gabapentin and Trazodone. I...
@Vassili Are you still experiencing head pain? I am still experiencing pain (still sometimes burning) on the top and back of my head. And for...
@simb999pe Thank you for your post. I am dealing with tinnitus and pretty bad hyperacusis and your post gives me hope. I have bookmarked it to...
@Jazzer Hi Dave I look forward to your posts. I am so sorry that you are on this forum (sorry that you have this affliction like the rest of...
@Andymo Thanks for asking. Hanging in there. Hope all is well with you. LindaS
Thank you @Zigs. I hope you will find a way to get better soon too.
I suffered a setback almost two months ago (bowl accidentally dropped on granite counter). I'm still getting burning ear and burning head pain...
@HolyKnight94 You are very early in this. The best person to speak to on this forum is @Michael Leigh. He has numerous well written,...
@xyz I've wondered this too (Inflammation) and feel that I should be cutting back on everyday noise. Your avatar mentions mild tinnitus in 2016....
@Contrast Thank you for replying. I'm sorry you are having other health issues. I read through some of your posts but couldn't find anything....
@Contrast Do you still have trigeminal nerve issues or have you had improvement or has it gone away? I have a lot of pain and would be grateful...
@xyz Silence is exactly what I crave but everything I've read says that will make it worse. I have no idea what I should be doing!
I thought it would be nice to have a place to go to when your spirits need a lift. Where every one could post something that helps them. So,...
