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There's schemes like the NDIS here in Australia that will pay for such things and look into getting you the relevant appointments with the doctors...
At the stage I'm in I'd go for this treatment on my own dime if it was available here in Australia. Unfortunately it isn't and I'm having a hard...
I can answer that. I applied for the study from northern NSW and was told that they were limiting the study to the Melbourne area for the moment,...
Thing is most of those clinics are in the U.S right now which stinks for those of us that don't live in the U.S. Once they roll out Phase 3 I'm...
So if and when FX-322 is released, will I have to go through an ENT? Or could I just contact the drug company that they have the right to...
I'd like to get into the trial as well, but seeing I live in Australia and the trial in is the U.S with the current circumstances, just getting to...
So any idea how long these studies take to achieve some results that they can give a definite answer to? I'm just extremely impatient to try...
So does them going to Phase 3 mean that they can't apply for compassionate release next year if they decide to take that road? As I was really...
[ATTACH] I have some semi-good news. I contacted MyTomorrows regarding Compassionate Use of FX-322 and from the sound of the message I got, it...
I don't suppose there'd be a similar agency I could contact regarding FX-322's compassionate release here in Australia? Or when it's released in...
My ears are suddenly making a pulsing, ringing noise under my normal tinnitus. Is this tinnitus as well, or does anyone know what's going on...
I don't think all ENTs think that way, or I'd hope not. Seeing a lot of the ones I've seen seem to have tinnitus themselves, surely they'd want a...
Well I've already tried TRT via a company called Neuromonics, and due to them not really explaining what was going on, or doing any form of...
Thanks for that, as right now any encouragement is appreciated.
At least TRT and CBT are something to try, until new drugs come in that could provide more of a benefit. As I said I need something as due to...
I wish that when it's released Frequency Therapeutics would have some kind of general list of all ENTs in all countries that were willing to work...
Exactly. I feel the exact same way, that unless I have some means of coping with this insidious noise that IS DESTROYING MY LIFE that I'll go...
@Michael Leigh Just curious, but is it possible for tinnitus to develop into something else, due to improper due of masking devices? As when my...
Hopefully if that's the case they supplement with additional information to that fact. I know they are limited on what they can publish by the...
I hope not. I was hoping it'd be released sometime next year, early if possible, or am I being over-optimistic on that? I really want this to be...
I think when FX-332 and SPI-1005 are released, as from my understanding those are the two closest to being released, it will be the light in the...
I didn't think SPI-5557 was even close to being released yet, unlike SPI-1005 which according to Sound Pharmaceuticals' web page is in phase 3...
That may be the case, but I really wish they'd apply for compassionate use now. My tinnitus is driving me mad and I'm not sure if i can hang on...
I'm sad to hear that you have encountered mine and yours Tinnitus as a friend. Hopefully a cure will come in the next few years that will allow us...
Me as well. A real cure for this thing is being awaited on by many people I suspect.
Yeah, according to my dentist, I don't have the symptoms of TMJ. Only thing I can think of is that the chronic headaches I've been experiencing...
I'm not sure about that. I have no history of head trauma and I can't think of anything I've done that could've damaged my cochlea. Yet I have...
For the last few months my ears have been making strange ringing-pulsating sounds which has me worried. Anyone know why?
It would depend on the price of FX-322, but if it's going to help me at all, I'll move all stones I can to get this stuff. Anything to help rid me...
That's nice as my GP and audiologist have repeatedly stated that my headphones are safe to use. Now that I find out that this doesn't appear to be...
Seeing that my first ENT told me that there was no cure or even a way to mitigate my tinnitus and that I had to learn to live with it, I think...
Sometimes I wish they prescribed such things as morphine for tinnitus,as mine's driving me insane. Anything to get at least some respite.
Hopefully it is approved,even though it's a wildcard. Anything to kill this hellish thing that's ruining my life.
In my humble opinion I think that FX-322 and OTO 413 are the closest to being released as SPI-1005 is still going through phase 2 testing. The...
I'm hoping those those as well,along with PIPE-505 if that is released anytime soon.
I've got an appointment set-up in a few months so hoping for some good results. Wish it was sooner, but it's always hard getting in to see any...
Pity that it's too strong to use on living patients, as I understand it. I'd very much like to know what's going on with my ears.
Is there a way to find that out, as I understood that such things were beyond current diagnostic means? Just that it'd be nice to know so we know...
I only wish I lived in the U.S as here in Australia I'm not really sure on the "best" interventional radiologist is to see on my issues, but...
I wish the same thing as most of us don't have infinite resources to experiment in this manner. Finances for me are limited, and I'd hate to spend...
I'm hopeful they accept your invite. I'd really like to hear from Otonomy on any insights or progress they feel like sharing on OTO-413 and its...
Unfortunately, no. I'm in Australia where we don't have such things.
Sounds like grounds for a lawsuit, if they continue that up. There is such a thing as false advertising, among other things.
You need to find one that specializes in ETD. Just any ENT wouldn't do.
Mine changes both pitch and sound on certain jaw movements,but for now that's only temporarily.
More than a bit. The longest waiting list I had for a neuro was 6 months and my current referral for an Interventional Neuroradiologist resulted...
I'm really hoping that Frequency Therapeutics decide on a lower price than that. $2000 initially plus $500 for each additional shot is still a...
I can't donate money right now, as before I found Tinnitus Talk, I depleted my bank account looking for a way to get at least some peace of mind....
The song of tinnitus sufferers,or it fits me anyways Never Ever https://www.youtube.com/watch?v=nPXqkjpXZ_k
Could someone take me out of this Black Hole? Cicadas seem to have moved into my ears again..
Could someone convince the cicadas that have moved into my ears to take a break and go annoy someone else?
I hope this is so, and soon. I've been trying to get into a study for some time since I learned on how to do so, but have been unsuccessful so...
I know of at least one ENT that offers hyperaccusis management services. I guess it would depend on the patient's level of hyperacusis severity.
You might want to be careful with masking your tinnitus fully. I did that for an extended period and found my tinnitus reacting to the masking...
If a drug like FX-322 is released, are there any diagnostic tools currently available to make sure that it will actually work on the patient? Or...
To be honest, I'm hopeful that both FX-322 and OTO-413 can be released together, as in my case I suspect that I may need both to fix my tinnitus...
I just received an e-mail stating when the results of the FX-322 trial will be released, if it's of any interest to anyone. [ATTACH]
What I've been wishing for is something like "tinnitus house" where we could go, and have access to all the treatment and support we need without...
I'd second that. Maybe also another interview with Frequency Therapeutics for updates on FX-322 and how's it going?
I think I have hyperacusis, or something was causing my ears to generate a pulsing-ringing sound in response to my computer last night, which does...