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Hey! I’ve read through some of your posts on here and you yourself describe things in a wonderful way! I know what you mean about renewed resolve,...

Hi everyone, it’s been a while! Thought I’d stop by and see how everyone is doing. I’m not really sure what to say about my own situation, just...

Hey, I’m doing ok I think, getting loads of rest and taking it a day at a time. I’m having a bit of time off work too. How are things with you? xxx

Thank you all so much for your kind words. Life really does throw us some curve balls, doesn’t it. It’s been an interesting time for sure. It...

Hey, I guess that’s what it comes down to, yes, despite the enormous variations and fluctuations in the noises. I had to consciously choose to not...

Hi guys, thought I’d check in and see how everyone is? I really hope you’re all doing ok and managing to find some peace. As usual, it’s been...

Billie you are a true hero. What amazes me about you is your ability to separate an uncontrollable physical ailment from your core being as a...

Oh no, this was never about being cured. It’s more that it was at a level where it didn’t bother me so much and it didn’t consume my life. I...

Hey everyone, I hope you’re doing alright. I thought I’d give a quick update on the situation... Last weekend I woke up and couldn’t hear out my...

Hey, nice to hear from you. How are you doing now? I know that feeling of struggling through a train of thought. Sometimes I feel like I’ve been...

Hey, thank you for your reply, you’re so very kind. I’m so glad you’re doing better now, I still find it alarming how tinnitus can devastate a...

Hey, I’ve never read a Charlotte Brontë book I’m ashamed to say! I may have to give that a go. I read When Breath Becomes Air, an account of a...

I have that sporadically, and I think the honest answer is... you live with it. You live with it the same way that others live with other...

Hey, that’s a lovely thing to say, thank you. It’s been a while since I’ve been on here and things are ok. Am I cured? No. Do I care? Not really....

Hey, so sorry for the mega slow reply. No, there’s no difference with a whole head or IAM scan, the images will be the same but the IAM will cover...

Hey, nice to hear from you :) Wow did I ever. It wasn’t days, it was months. Literally months. Every day felt like torture and like I was...

Hey, thanks for the reply :) you make a really interesting point about the audiologist and it’s something I’ve wondered about many times before....

How are you xxx

I totally agree. There is no answer that fits everyone, because everyone is different. We will find our own ways and find peace in a multitude of...

Hey, no, I don’t actively seek any treatment. I’ve given up on all that as the disappointment is hard to take. I’m very wary of anything that...

Hey, I’m sorry it’s bothering you still. And it’s ok to be bothered. This is the most insanely annoying, relentless, pointless shit EVER. Dark...

Hey, it’s been a little while and I thought I’d come back and say hi. I hope you’re all doing ok and getting through as best as you can. I’m not...

I get where you’re coming from, and the anger at no one being able to fix this is apparent. But here’s the thing. Habituation is not a cure, we...

This is going to sound really weird, but I’m glad that you had tears in your eyes. You see, your emotional and psychological self are still in...

Yeah, things can and do change. I’ll be honest, the pulsatile noise really freaked me out, that one really got to me and made me feel sick. Not...

Hey, it’s ok to care and to worry, this thing is horrid and it’s totally understandable that we don’t want it to get worse. The pressure and...

Hey, I believe you’ll make it through. I also had the pulsing on the left for a while, I don’t have it now so, I hope that gives you a little...

Ha, I wish. It’s more like being tasered for a split second. But what can you do :rolleyes:

Hey, absolutely no idea. They general consensus is it’s neurological as my hearing is fine, excellent for my age even, and I get other strange...

I’m not going to lie, it took a good few months for me to even be able to consider living with this. And the odd thing is, you’ll improve...

Hey, I’m really sorry you’re struggling so much. I just want to let you know that a few months about, I was 10/10 suicidal, often unable to speak...

Hey, nice to hear from you. How am I? That really depends on in what respect! The tinnitus is as vile as ever, head zapping, constantly changing...

Totally agree with you. I wonder if I hadn’t panicked so bad initially then would it even have become so much of an issue? I will say this...

I genuinely think it’s different for different people. Tinnitus itself is nigh on impossible to accurately quantify in terms of characteristics...

It is definitely hard to decide and as you can tell from the responses of the people who work there, there’s no definitive answer unfortunately....

Hey, I don’t think anyone can truly advise you on this, as you can see some people appear to have worsening after an MRI, a lot of people don’t...

I 100% agree. Throughout all this I’ve often felt lost amongst the noises, and maybe this is what it all comes down to. We have got so wrapped up...

Hey, nice to hear from you. I completely get where you’re coming from, it can be incredibly difficult to step back and realise exactly how much...

Hi, just a little update for anyone who’s interested. I have been back at work for around a month now, working full time again and doing just...

Hey Billie, nice to hear from you. It’s like I’ve said earlier on I guess, no matter how you feel, facts in life still remain. These weird...

Hey, no. It will randomly shut off for a few seconds and oh my days, it’s like coming back to real life, but other than that it’s there all the...

Just came across this on my friend's Facebook page. It wasn't posted in relation to tinnitus but I can't think of anything more fitting xx [ATTACH]

Anxiety 100% makes it worse. You literally become so sensitised to any noise, your mind will play tricks on you, you become terrified about the...

Hey, yes, I think you may be right. I felt unusually tired the day before this started, not ill as such but not quite right. I’ve never been...

Hey, nice to hear from you :huganimation: How are you doing? xxx

Hey, I saw the neurologist, he showed me the MRI, said it isn’t MS. Have you had any imaging done? As far as I can tell it’s pretty rare to have...

Hey, nice to hear from you, how are you? It’s been a pretty big week for me, I finally went back to work after 6 months off. I’m not going to...

That’s really interesting because I saw my neurologist today and he’s convinced that my tinnitus is linked to migraines, even though I’ve only...

I definitely think the brain. The brain is the perceptual center of us so whatever else is going on in the body, it’s the brain that perceives it....

Hey, I don’t even know where to start, all yours words are so lovely. I’m rubbish with technology, don’t know how to tag people so here goes...

I don’t think I could have described it any better myself. I feel like I’m in a constant state of irritability, and my confidence is pretty much...

Hey, thanks for your reply xx Yeah 100%, the possible potential of hearing damage may need more attention in regards to MRI but we also have to...

Hey, you’re right, you don’t know how bad mine is, but let’s just say that I ended up in a psychiatric hospital after my work colleagues found me...

This is the thing, how far do you go trying to solve something that isn’t actually harmful but can definitely make life miserable? This is...

That article gives no indication of the individual’s previous lifestyle etc so we have no idea how healthy his ears were previously, again it’s...

You said it’s not the noise that’s the issue with MRI, then gave an example where noise is believed to be the culprit? I’m not disputing that...

Hey, I’m sorry you’re dealing with this. I also have crazy tinnitus, sounds constantly changing etc, it’s not pleasant. I am certainly not...

Thank you, that’s sweet. Getting out more is definitely a good thing, a bit of sunshine and exercise is great. Yeah, negative thinking doesn’t...

Hey, no problem. I think we are all very much the same, if there was an identifiable cause that could be corrected then we would all jump at that...

Hey, nice to hear from you. I’m doing OK I guess. Tinnitus is still an absolute joke, I can’t even count the number of noises etc., but I feel...