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Doing pretty well my man @Damocles Had a setback a few weeks ago because I put myself into a really bad situation but trying to stay calm, and...
Just checking in because I caught wind of the results from Dr. Shore’s study. Wonderful news for a lot of us folks…
Thank you everyone here on TT, this community has been paramount in helping me get back to a livable, and “normal” life. Take care :)
With a combination of feeling immensely better, and the unfortunate news regarding OTO, I’m off here for awhile.
Anyone with H & T ever see a spontaneous recovery in their symptoms? After 13 months, my symptoms are the best they have been since trauma.
Don’t want to jinx anything, but H & Severe reactive T are definitely healing. A few weeks ago I never guessed T & H could be this tame.
@Wrfortiscue yea I have to imagine if I had children that would 100% be a trigger too. Other peoples loud voices, and screaming should have been...
I laughed at this more than I’d like to admit lolol @Damocles
@Wrfortiscue have you narrowed down your triggers? I’m finally starting to find out what makes my ear piercingly chirpy, and I’ve found that my...
@BrOKeN_1 the one bar we went to and played darts was definitely pushing the limit because of their shit speakers, but any spike was temporary....
Reactive T on the other hand won’t give up and I’ve kind of relegated myself to just having this for life. Kind of what I alluded to in the...
Yea man @Wrfortiscue i think I’m finally getting to the point where I just don’t care if I spike after doing something fun, and within reason....
But y’all, I’m having a fucking great day today and I can only describe myself as “jovial”. Stable T = Stable Me
Friends took me out for my birthday on Saturday (29, yikes) and it felt good to just not give a fuck. T was fussy after, but such is life.
Lmao yup I haven’t switched on a light in my place in years. Philips hue bulbs rock. Haven’t had to replace some of mine for 6+ years.
Took a few weeks off here. Felt like I was doing pretty good. Past 3 days have been the loudest chirp/twinkle has ever been :/
@BrOKeN_1 I actually love politics and debating. I come from a family that is very politically active. However, one look at the politics thread...
I’m more depressed reading the “2020 presidential election” thread than the Suicidal thread. Holy shit.
To add to the below, I haven’t had 3 quiet days of chirp T since this started 6 months ago. Hopefully turning the corner on this.
Well, I hope I don’t jinx myself, but I’ve had 3 days of pretty quiet chirp T. If this is the new normal, I can deal with it. Nox still mild
Barely got sleep last night because of a huge storm. T very loud today. Fuck it I’m wearing my headphones - can’t get any louder lol
Pain Hyperacusis does seem to be waning, albeit slowly. Thankful for that. Just can’t get over how my T distorts when I type on a keyboard..
All I want is stability
Sounds pretty identical to me for the most part. Had head T for around 20 years. Picked up a new tone in 2017, and what I now realize was my first...
@aura has it always been like this, or is this a new development?
@ZFire that sounds like me for the most part, except for it being quiet in the mornings. For the most part, if it’s loud and reactive in the...
Anybody else have fluctuations throughout the day? How is it half of yesterday my ear was quiet but the other half it was a reactive mess?
Yep…I want to be positive and say that it’s probably so amplified the past two days because I had a such a good day on Tuesday. At the same time...
Fantastic day Tuesday. Thought I was turning the corner. No pain or chirp. Nope…louder and louder the chirp goes
Chirp was not as bothersome in the month of April. Stopped using headphones around this time and changed my lifestyle and now I’m worse?
Just so confused on how this is getting progressively worse. I stopped using headphones completely, eating healthier, consistent exercise..
@Steph1710 so annoying how variable this one is. It’s been so shrill for the past week and reacts to everything. Quite honestly, I’m not doing...
Hey @felix100 I hope you are doing well. How is the reactivity these days? I’ve been dealing with two different kinds since last year and would...
Chirp is here to stay. Is incredibly reactive and the loudest, most shrill T I’ve ever had. I can’t escape this one.
Sort of similar, but I had this same thought when Covid started in the US. As weird as this sounds, I welcomed Covid as my life was slowly...
Sprained my knee at softball this week. Looks like I’ll be forced to isolate now. Maybe this is a blessing in disguise.
How do people in here assess setbacks? Does everyone here equal pain to a setback, or is there something that I may be overlooking? I don’t have...
I couldn’t have put it better myself. Although my condition seems to not be making any progress since I acquired it last year (in fact it’s...
Been said a million times here and elsewhere but the fact we don’t even have a viable treatment for this yet is absolutely insane.
@Guywithapug its insane. I don’t react to my faucet at home but my friends faucet? Absolutely insane how loud the reactive t gets. @Marshall my...
These conditions have turned me into a bright, positive young man that enjoys life to someone that cannot even enjoy my days off work.
How am I supposed to live the rest of my life like this? Honestly would take more pain H if reactive T would just fuck off.
Take enough and you’ll get visits from the Hatman :p @BrOKeN_1
Wtf - took two Benadryl pills (allergies) and the most intrusive tone I have essentially disappeared. Anyone experience this before??
Basically 20+ years of stable T, now I can’t even predict what’s it’s going to be like hour by hour. So fucking over this shit.
Just fucking mad. Been like this for almost a year and I’m definitely worse off than last year.
Hey @Steph1710, let’s just say it: we are freaking frustrated and fed up. It’s impossible to live a life without these kind of “mishaps” such as...
Hey @Steph1710, I’m reading about your last bout of COVID-19 and just want to tell you I’m so sorry you are going through this new, increased...
Reactivity still sucks, but haven’t heard the “chirp” T for a few days. Ear discomfort only coming from voice. No more radiating face pain.
Unfortunately, things still seem to be progressing, and I have developed mild pain hyperacusis, as well as TTTS that is uncontrollable. Reactivity...
@Brittany95 oh no need to apologize I totally get it! I am so happy to hear that things are moving in the right direction for you. I hope that...
No doubt that my TTTS is interconnected with my newly acquired pain hyperacusis. Still fairly mild pain. TTTS is just out of control tho…
TTTS symptoms basically gone last week. Back in full force this week
Thanks Daniel. It’s been a rough go at things lately, but just as I have alluded to in my post, I really don’t have another choice. I can sit...
Okay, just wanted to make sure I wasn’t putting words into your mouth. Have you experienced any prolonged period of time where the hyperacusis...
@nogg, I am not sure if I am interpreting this correctly, but are you saying you’ve had hyperacusis for decades?
Yea I’ve been noticing that wearing ear plugs let’s me talk without reactive T/ pain H. Gonna have to start doing that moving forward I guess....
Thanks man, been following your story since last year. I’m truly sorry for what you are dealing with. How do I protect against my own voice...
Getting used to new T. Progressing noxacusis is starting to really scare me though…
Of course I am not correlating this at all, but man every night that I take magnesium and melatonin before bed the next day is much quieter.
