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You all are referencing the work of Dr. Matthew Carlson, with whom I have spoken on a few occasions. Net, net: Dr. Carlson is in Phase 2 trials...
Hey Bob, Sorry for the late post. I have had Signia Go with notched technology for a year and it hasn't helped my tinnitus at all. In fact, my...
No, but I'm not sure it was the Ami. I think anxiety and constant hyper-vigilance to the T are the key factors
In light of OTO-313 not planning out (and that path now possibly in doubt), I hope this path can somehow get expedited.
Thanks! I may just get in under the wire...
Does anyone know if there is an age limit for the potential efficacy of these treatments? I'll be 60 this year, and I keep being told that hearing...
Hi Danielle, I hope you are doing well. My tinnitus has been quite bothersome, lately, especially since my ears have become very full on both...
Thanks. I'll wait to see if I am accepted and go from there.
True. I also have a big dropoff at 8 kHz, as well.
Thanks. Still not sure whether to participate, or not, if accepted...
Thank you, my friend, for a really inspiring and heart-felt post with some great ideas. I really like the idea of using one word to describe each...
That's the one! The question is whether to go through with it, if selected. Is FX-345 so much better that it merits waiting for those trials??...
Thanks, Scotty---I will check it out. Best of luck, and looking forward to reading your results!
You make a good point, of course. I'm just really struggling, right now, and I'm getting very anxious and depressed about my condition. I guess I...
I'm not sure what to do, at this point. It takes up to eight weeks to determine eligibility, so I will see if they even accept me...
Bruce has four tones in one ear and three in the other. He described them to me and they sounded awful. Somehow, he blocked it out. He may be...
Same with me. I wonder, though, if it is worth it to participate in the FX-322 trial when FX-345 seems to be much more robust? Is it worth the...
I did two sessions with Bruce Hubbard. Bruce is rather a "tough love" kind of guy. He doesn't think we impact our tinnitus in any way...
I was most interested in the cochlear implant video. The researcher stated that patients that had asymmetric hearing loss, which I have, showed 80...
Thanks for such a great episode! Brian Fargo is a really bright and successful guy (look him up on Wikipedia), so it gives me a lot of confidence...
Loud music from years ago. Current spike from. Covid vax
It depends on the day. Today it's terrible. Many days it is bothersome, but I can deal with it
I don't know enough about it, yet, but it looks promising, as does OTO 413, which may be more relevant to Tinnitus.
Brilliant!
Yeah, I think my mom told me to turn it down a few times. My band was so loud that an old lady heard us from miles away and called the cops on us....
Same deal, George. I played loud guitar, shot guns, used loud saws and such, and it took until 59 to get the major spike in tinnitus. I'm paying...
Right there with you, brother. I grew up in the 60's and 70's, when ear plugs were primitive, at best---hardly anyone wore them. I had a bunch of...
Cool. I've been playing guitar for 50 years. Probably a big reason for my current issues. I had 58 pretty good years, at least...
Good to know, thanks. May I ask your age? I'm 59. I just did a session with Dr. Bruce Hubbard and he thinks tinnitus is really a factor of age and...
Did you taper off of the drug? If so, what was your schedule (how many weeks, and how much, per week)? I am tapering really slowly from...
It really is a Sophie's Choice, frankly. I need to sleep, and nothing knocks me out like amitriptyline. However, the extra tinnitus in my right...
I was on Amitriptyline for nearly 25 years and it was fine----slept like a teenager. Then I got this huge tinnitus spike (likely from the Moderna...
Dr. Grundfast is a nice guy and spends a fair amount of time with each patient, which is great. But no one has any answers, it seems, so yes...
Hi Danielle! I have seen Noah Siegel and Kenneth Grundfast. Nice gentlemen, but no solutions, of course...
New Hampshire, here! I really hope their research is successful.
If not mistaken, that other trial involves MRIs to look at how the Lidocaine affects the brain. You also can't be on any ADs, either.
Hey Ben, I was prescribed Gabapentin but I haven't tried it, yet. I have a meeting with a Chronic Fatigue specialist, today, and I want to get her...
Glad it is working for you, Ben!
I actually had a bad experience with Paxil, which I am told is a lot like Trazodone, so I was advised against it. It also gave my fiancee a...
I have heard of Seroquel. Any side effects? How long have you been on it, and what dosage, if I may ask? Thanks.
I try to stay off of the benzos as much as possible. Lorazepam still does the trick, though today I woke up with the worst tinnitus ever, and it...
I have looked into both, yes. Lorazepam has a half life of about 12 hours, so it is out of your body in about 3.5 days. This is why it is so good...
I take Lorazepam on a regular basis, for the simple reason that it is the only reliable drug that can get me to sleep and I am guaranteed to have...
I actually applied for this trial, but was denied, due to the fact that my scores on the questionnaires were too high, indicating I was too...
This sounds interesting. How long would it take to get this to market, in your opinion? If it's successfully marketed in the EU, I wonder how long...
I think Neuromod is grasping at straws. I spoke with an audiologist in Boston who was going to do a trial of Lenire with 10 patients, this winter,...
I guess I see a bit of a disconnect, here. There almost seem to be two paths: academia and commerce. On the one hand, I know that Dr. Shore needs...
Hey Ben, Does this app come in an Android version?
Fingers crossed, my friend! They need to do so, and fast. Their cash burn is $43 million per year, which means they will run out of money by Q2...
Thanks, Diesel, very informative. My tinnitus has been at about a 2 for a very long time. If I can just get it back to that level, or even a 3 or...
It seems early 2023 is important to several of these companies. Otonomy has enough cash to get until the spring of '23, for example. These...
My question is simply what does one year mean? I probably have had tinnitus for close to 40 years, but at a very low level. The Moderna COVID-19...
Impressive results, indeed. I wonder, however, if the fact that all of these tinnitus patients in the study had had tinnitus less than one year...
Ben, 110 percent. I know that we have to accept the condition in order to help the process of habituation. I guess we just have to stop listening...
Thanks for the good wishes, Ben! Lately, I have noticed my tinnitus becoming more high-pitched and consistent (could be the Amitriptyline?). So...
Hey Ben, Sorry to not reply sooner. I have had the hearing aids now for about 7 weeks. The notch concept of making the tinnitus sorry of fade...
Thanks so much for you input, Roy! What dose of Gabapentin do you take? My psychiatrist prescribed 300 mg twice a day, or 600 mg per day, total....
Great post, Roy, thanks! How long were you on Amitriptyline? I've been on it for 6 weeks, and last week my tinnitus spiked. So I was just...
Interesting experience with Amitriptyline, DoesItStop. I'll share my experience with the drug. I have had chronic fatigue syndrome for 32 years...
I saw two ENTs in Boston, recently, and one of them said he could get me into the study. At the current time, I'm not really interested in doing...