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Gabapentin made my tinnitus much worse after only one dose so I stopped. I tried increasing Flunarizine but did not see much difference. I also...
I have no idea.
Hello, Glad to hear your story. Can you tell us a bit more about how you are managing your tinnitus & hyperacusis these days? How could I make...
Glad to hear that Botox has helped you. You can continue using Botox every 3-4 months. Where exactly did you put the Botox?
Yes it has, slightly. I now feel confident to go out around London with earplugs and be fine. I still avoid noisy interiors, restaurants etc.
I am currently on Ajovy (Fremanezumab), which is similar to Rimegepant, but injections instead of oral tablets, and it is cheaper In the beginning...
With Flunarizine, I saw improvements just after 2 days of taking it. Pregabaline only helps with sleep, and again after just a few days. I am...
Rimegepant did not help. I don't have noxacusis.
I am assuming that you do not have hyperacusis and/or reactive tinnitus (you said that you had an MRI without wearing hearing protection and your...
Hi @DeepakB, I am a CBT therapist and something that I learnt in my consultations is that there are situations that will make you feel miserable...
Hi Nadia, I am also a Spanish living in the UK, but in London. I also have H & severe T. Also struggling a lot with these conditions.
With moderate and stable tinnitus it is easier to meditate and find peace. Since having severe intrusive, reactive tinnitus, it has been...
Just curious, what is your tinnitus like?
wow sorry to hear @LostTruck. what happened ? any triggers?
T & H for nearly 2 years. T for 3 years. how about u ?
It is now available in the UK via The National Migraine Centre. I am going to try it.
No improvements I’m afraid. I’m actually worse :(
That is good that you can manage work. it will help you with your mental health. I work from home, I am a CBT therapist and can not tolerate going...
Yes it is hard to live a normal life. Can you go to work with reactive T? where do you live by the way?
Hi @scared8, Sorry to hear about your pain and suffering. I also had severe fatigue and dizziness around 5 years ago after a stomach procedure,...
I am a tinnitus loser. It has come to a point where I am giving up the fight. I feel similar to you, the intrusive tinnitus, the life/social...
I totally empathise with your situation and understand your despair. Of course, I wish you were able to keep going but I understand and respect...
Easier said than done. 1. It is easy for someone who has never had severe tinnitus 24/7 to say that it is just a fucking noise. It is not, it is...
I know that we think differently and that is fine, but I think it is wrong that you place your moral judgment on others who are suffering a lot...
This is not the point. Telling someone who wants to terminate their life because of too much suffering 'do not do it because of children will...
I respect your thinking and your choice but my body is my body. First of all, I have a responsibility towards myself and my suffering and it is my...
Manipulative and so unfair! Please, this is a support group. He is not only speaking about the loss of silence but about a level of tinnitus...
For how many years have you been taking this combo? For how long can you continue taking these?
Where are you from in Spain? I am also from south Spain. Don't you have hyperacusis? I do have severe reactive tinnitus and mild hyperacusis. I...
Hi MatthijsDJ, It is sad to see how people like you lack empathy in this thread. You are lucky that medication made you feel better and that it...
Wow, it sounds devastating. Do you still have that level of tinnitus?
I hope that you realise that your comments are unfair, it is like telling someone on a wheelchair that it is unhealthy not to go for a run.
My symptoms are still distressing; severe and reactive tinnitus and mild hyperacusis. But I know that without Flurpax (Flunarizine) I would feel...
So why are you on this forum then? Following your logic, we should not trust you (as a random person on the internet). It is ok if you don't want...
I am taking 5 mg. I noticed an improvement in my tinnitus after the first dose, and in my hyperacusis after a couple of weeks.
I am taking another anti-migraine medication (Flunarizine) that is helping with my tinnitus & hyperacusis. This is why I want to continue...
Did you or anyone else try Rimegepant for tinnitus and/or hyperacusis? I am tempted to try it. Diego
Sorry to see you in this thread. What is your story and your struggle?
Do you have any digestive issues? Also, drinking water makes my tinnitus worse. I don't know why but I had a stomach surgery a few years ago, just...
I also need to book a filling for myself. I have hyperacusis & tinnitus. Do you prefer electric vs. laser drill? Did you have another permanent...
Thanks for sharing your positive story. I am also in the UK. Who is your audiologist?
For how long does IV Lidocaine knock out your tinnitus?
Did you respond badly to the Clonazepam from the beginning, or once you started tapering? Did it stop working for you at some point? That's...
I am confused, last Monday Dr. De Ridder told me that someone can build dependency, but NOT tolerance to Clonazepam. I am surprised as many people...
Hi! Thanks for sharing your situation. My tinnitus got severe after developing hyperacusis and I am struggling to manage everything, but it has...
How often do you take Klonopin (Clonazepam)? I am only taking 0.5 mg every other day because I have strong difficulties to sleep at all. I am...
Thanks for your bright story. Can you tell me how do you protect your ears? What protection do you use and when (e.g., all the time when you are...
I hope you realise that your current feedback and old posts are pretty much based only on your unique experience and often not applicable to most...
I agree with you. The NHS did not offer anything to me, apart from a hearing test and an MRI. At least, my private psychiatrist and neurologist...
What is Auditory Stroop Training?
What do you think is helping the most, Latuda or Lepraxo? My tinnitus spiked with Lepraxo 10 mg.
I feel that DBS is the only thing that might help my severe tinnitus. I cannot wait 10 years for it to be available for tinnitus. Does anyone know...
I dropped Deanxit after four days as I had a spike, but not sure if it was the drug or the tVNS I was doing at the time. But I decided to end it....
Sorry to hear that you are suffering. Can I ask what happened?
Thanks for the feedback. I'm also meeting Dr. De Ridder this Thursday and I will do an EEG on the brain but am not willing to go for the brain...
Hi @Theezy. Sorry to hear about your terrible free fall. Suicidal thoughts in these situations are pretty normal because we do not want to suffer....
Hi Freerunner, how are you doing? are you still taking Deanxit? if not, did you have withdrawn effects when discontinuing it? Dr. Ridder also...
What is your experience with Brai3n? Did you pursue other treatments? How many days did Deanxit take to start working for you?
It is still early days. This is my 4th day on this combo. I am surprised that there are not many people on this combo.
But do we know the formula?