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Hi @Strawberryblonde! Yes, things are still going well on my side. H pain has mostly subsided and still T fluctuates but is much easier to manage...
@ZFire By SJW I meant Saint John's Wort and not Social Justice Warrioring lol
@makeyourownluck definitely still being careful and protecting whenever there's a risk! Good luck with that tan :)
A lot of good stuff in here since I last checked the thread! Here's a slice of mellower Detroit techno I've been into lately. [MEDIA]
Been seeing solid improvements in H pain and T intrusiveness since January. Started weening off SJW around the same time...coincidence?
Hi @makeyourownluck :) nice to hear from you! I have indeed been able to enjoy music again for the last few months, which I'm super thankful for....
What do you mean by open earplugs?
Thanks for the information, I'll look into a pair of Earasers as a complement to my custom earplugs then. The occlusion effect in mine is as you...
How would you compare Earasers to custom earplugs regarding the occlusion effect?
Hang in there, I'm sure it will settle down in time <3
I am less experienced with tinnitus and hyperacusis then @Benjaminbb and @MindOverMatter but I definitely agree with both their posts. The key is...
I remember doing a bit of research on them and finding out that the most dampening model is the "night" one. Pros actually dampen a bit less than...
I've been cross-country skiing a lot in this Canadian winter. It's a great sport: a full-body, low-impact workout practiced in the calm of nature....
Thinking of you man, hang in there❤️
Hey @Strawberryblonde, thanks for the message :) I've been managing pretty well since the new year. Back working, and seeing a therapist regularly...
Sorry to hear man, hang in there! Thinking of you often, hope you start getting some improvement/stabilization soon ❤️
Ok, which one of you is it that's posting the funny stuff on Frequency Therapeutics' Twitter? [ATTACH]
I hope the audiologist is right! But there's really no way for anyone to know at this point. I totally agree about the feeling of dread... I still...
That's amazing progress! Happy for you
@Mister Muso I'm coming up on 10 months since my initial acoustic trauma. Doing better than I was last summer but ways away from live music still....
Sorry to hear about that, and thank you for documenting your experience with the microwick! Hope your worsening settles back down to baseline.
Yes, teaching and completing PhD studies at the same time sounds quite stressful and demanding! Sounds like you are handling it just fine though...
Congratulations! And good luck on the remaining half. I defended my PhD two weeks before onset...not sure if I would have been able to write my...
Hang in there buddy, you got this!
Having had three intratympanic shots over three weeks, I'd argue that once a week would make me think twice about it. Especially given the fact...
As slide 7 on Frequency Therapeutics' corporate presentation illustrates, FX-322 reaches mostly the outermost portion of the cochlea, which is the...
I wish I could tell you what was going on with your fluctuations, but this stuff is so different from person to person. From what I've read on...
Sorry to hear about that. Do you feel the shots worsened your condition? If so, in what way?
I remember my symptoms taking a few days to settle down after my second shot too. I wouldn’t worry too much for the time being. Sending good vibes...
My feeling is some of it has to do with the media attention the company has been getting lately (CBS segment, etc...).
That's a very interesting detail you highlighted here. There's a significant difference between this drug and XEN1101/Trobalt, and that is that...
I'm inclined to believe the chances of Kv7 modulators helping with tinnitus are bigger than "a glitch in the matrix", but you're right about us...
Please please hang in there man. You're stronger than this, you can do it.
I met Emily Haines while on a snowboard trip to Whistler! Pretty sure I have a picture of it somewhere, I’ll try and find it. I was definitely...
[MEDIA]
@Nadia231 I'm really sorry to hear that, and hope you find some stability eventually. Crossing my fingers that this change of approach helps you....
Thanks for the information! I wonder if hyperacusis / noxacusis sufferers would qualify for the chronic pain study.
This is extremely encouraging! Dear Santa, if you're reading this, please give us positive results for the Phase 2b trial <3
@Nadia231 Of course, I always still protect in noisy situations and avoid very loud situations, but I feel more in control when I frame it this...
@Nadia231 That's the attitude I'm going with. My H pain has been stable in the sense that I've been getting better at knowing what triggers it and...
@ErikaS Happy to hear the injection wasn't too painful! Every time I got the shot, my T increased temporarily and the tone became sharper. But...
Hang in there buddy ❤️
Photo of future Tinnitus Talk members?
H pain is constant but seems I stopped caring about it as much lately. I guess it's true that humans can habituate to most everything?
I think you might be reading into her writing a bit too much. Looks like typical boomer email to me.
Had a series of 3 shots about the same time after onset as you. Not sure it helped much, but no worsening! Uncomfortable procedure but worth a try...
@Hamspanner, @AndrewLee, sorry to hear about your COVID-19 induced tinnitus. Have you two gotten your hearing tested since? Could it be that the...
I just skimmed over the full text of the paper. Volume does not appear to have been measured in the study.
The cat one... so many questions... pre-fur? Yikes.
What if you’re asexual?
Frequency Therapeutics has uploaded their latest presentation slides to their website. They can be found here:...
I'm experiencing 100% of my symptoms in my right ear, which has a 30 dB notched hearing loss around 6 kHz. Today, 6 months after onset, my left...
Very interesting article. This passage appears specifically interesting to me: Could SSRIs/SNRIs then cause or worsen hyperacusis by increasing...
The way I see it, the fluctuation could signal a slow and uneven settling down of your symptoms after your spike at the concert. Hang in there!...
I’ve read from many on here that fluctuations are a good sign if they hint towards reduction. Stay optimistic <3
This one's a classic!
@MindOverMatter @ZFire @aura Thanks for the positive comments guys. Working hard with my therapist to accept and move on, but it's difficult....
Hi @MindOverMatter, sorry I just saw your comment now. Yes, I have met with several audiologists and neurootologists over the last few months. I...
6 months with T and H. Still struggling. So hard to grieve lost hearing knowing it will never come back. Such guilt for not protecting.
Interesting about the LLLT. Which model did you use? I'll try anything at this point.
