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I think you've hit the nail on the head. Our collective experiences in the real dark world of living with this condition show that 99.9% of the...
@ErikaS - it's great you don't need to come on here much anymore and getting on with your life :)
@ErikaS - I went for an allergy test and it came back with lots of things, I'm ruling them out, it's making some difference but depends what it...
@ErikaS - thanks for the reply. I think possibly vagus but the ENT and Neurologist I have spoken to are clueless on the subject and they're not...
I'm trying to do this too in my 40s, it isn't easy! - I think sometimes finding someone with this condition would make things soooo much easier
@Hazel, I'm following on from another thread on Tinnitus Talk, but from time to time, case studies and tests seem to be carried out by researchers...
I reached out to a couple of clinicians who published papers or results on tinnitus tests which linked closely to my own experience (constant...
Comparing different people (sufferers and non-sufferers) using EEG and MRI is a good analytical test, but I have never seen a test which takes the...
Your ears do not shut off when asleep or unconscious, it's the body's safety mechanism - meaning, in theory, you still 'hear' what you normally...
I damn hate the naive stupidity of audiologists at times! What do they think we do, sit around making this shit up. If they listened to the...
No, I don't think so. I can cause this crackling with a very slight tense of what feels like my eardrum, although it may be my Eustachian tube....
I feel it's more eardrum-related, yes. I can initiate it myself by tensing 'something,' which feels like it's within my ear but at the same time...
You read such cases, but very rarely is the sufferer a severe case, plus you do wonder whether the mechanism for the tinnitus was an underlying...
It's not surprising, considering Pawel Jastreboff doesn't know what to do. Unfortunately, everyone's experience is different, so I don't think...
Until there is a real test that shows tinnitus and its severity, companies will continue to exploit the market looking to make as much cash as...
If it's hearing loss as a result of the acoustic trauma, he 'may' prescribe steroids, but it depends on how long ago the trauma happened. Then,...
Can I ask how your tinnitus came about - was it stress-induced, or was it through an acoustic trauma? Did you experience hearing loss, or has...
The merit is sharing information that may provide help to the sufferers on here. Aren't other sufferers on here entitled to the best shot with a...
I have been through the NHS system twice. My experience is different. ENTs hear 'tinnitus' and are not particularly caring. They simply carry out...
It sounds as if you had an amazing experience randomly finding the right medical people. I wish we all had such success. I've seen a number of...
No, he means more likely temporary - i.e. a temporary spike. Most spikes often return to baseline after a couple of days, or reset themselves...
I guess it depends on where you're flying to and who you're flying with. As the Airbus A380 is such a large plane, I guess it's really used...
I know you were contemplating the Airbus A380. I flew that a week ago and was on the upper deck. It's quiet. Surprisingly quiet. I didn't measure...
Thanks for the feedback. I saw another ENT last night and got him to listen to the crackle (as I can voluntarily induce it, along with...
@ErikaS - I asked for a swab test, and they found staph a and strep (I don't think Im symptomatic) but I was given Prednisone and Amoxycillin but...
@ErikaS - Ive seen three neurologists. None of them mentioned vagus, but on the back of your thoughts I suggested to them. Two dismissed it out of...
Hi @ErikaS - Im glad you're back getting on with life again, and saw in a recent post you've returned back to school which is great! Unfortunately...
This, 100%. Anyone with existing tinnitus should have their earwax removed with a curette. The benefit of a reduction of risk of an ear infection...
Unfortunately, you won't find the answer to this question here, or at least not for yourself. I have had mild to moderate tinnitus for 44 years...
It was an audiologist who put me here in the first place, either by negligence or a lack or knowledge - probably both. I already had (moderate)...
It's possible it's the Eustachian tube. I can voluntarily bring this noise on by tensing 'something' in my ear, which raises the soft palette....
Are you still getting the crackle when you swallow? I am, and I saw Professor Bance about this - along with other symptoms. He could hear the...
No science has ever proven this.
Depends. The Calmer earplugs are easy to wear in a work setting as they do not reduce decibels or volume, only higher frequencies. They aren't...
If you're anything like me, the harsh speaker sound can cause problems. Mine still isn't great, but I feel I have managed to reduce the effect...
I am going to hold on to the hope in that story, but you do wonder how many people with severe tinnitus go back to seeing their audiologist...
I'm so sorry you are having to deal with all that. Unfortunately I couldn't say it's got any better. Whether it's got any worse is difficult to...
No problem. No, the EEG was silent. It was over a year ago I had it but I don't remember any noise. I have had a number of CT scans in the past...
I do get this, yes. I don't think it's all the time, but certainly I do get internal vibrations. I have had an EEG and CT scans (across various...
@Kiyomi - thanks, Ive been fighting this dysphagia for a year now. Seen 20 consultants, every test, nothing shown so they won't offer treatment....
It was fine. You'll never know though until you do it.
Reactive severe T is so much easier to deal with than dysphagia. Never knew or could even imagine that, until I got both.
I thought there was surgery available for SCDS? I've had a couple in the past year, CT scans are relatively quiet and probably do not exceed 50...
Perhaps reactivity and hyperacusis is where it works best. I had a neurologist appointment who did deduce (theory mind) that reactiveness is a...
He may have pulled them out to speak in to the microphone. Occlusion effect in any earplug is crazy. No way I could do an interview with foam...
@HopeForAll96 - not great unfortunately. No mine never really did go down to be honest. People certainly get more used to it after a period of...
@Heal82 - sounds like a possible tempor tympani muscle contracting, or myoclonus, this sounds like a fluttering or maybe a banging on the ear....
@Jammer - I have no GP, and no doctor to speak to. I either go along with the NHS standard MRI scan - or pay privately to speak to a consultant...
@Jammer - my hospital will only do a closed MRI, but this is due to budget constraints. My other option is to pay privately for an open MRI and...
@Heal82 - what noise do you have? I have a cracking (like whip crack) every time I swallow, and has been this way for over a year now. An ENT said...
Need to go for an MRI. Been putting it off but can't now. Reactivity is a concern. Anyone tried an open MRI?
Hi @Heal82 - tbh I'm not sure if it's ETD or not. I get some pressure build up but that's just one of many symptoms. I do have dysphagia though...
@billie48, your positive posts are what gave me hope in my early days. You mention that you now cruise. Have you ever measured the dB rating...
For the media to give tinnitus any attention, it is going to take a lot, or a couple of high profile, bad news cases in quick succession on the...
This is an interesting thread and shows how food, drink, supplements, medication, etc., have different effects on our tinnitus, as mine spikes...
Do you remember where you read this? Genuinely interested.
Although you only have to read through the hundreds of success stories on here to see that hyperacusis symptoms typically reduce or disappear...
@Scott T, sorry to reopen an old thread, but do you still have Achalasia? Did you end up with POEM surgery? I've also heard that Cialis can help...
I was only diagnosed a week ago and have to wait until April to see a TMJ specialist and a fitting for a mouth guard. Out of curiosity, if you...
I'm sorry you're going through this. I have just been diagnosed with TMJ, which came on after the tinnitus - as I guess many of us start...
