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I miss all of my friends from here, you all always encouraged me to keep going when I didn’t think I could. I really need that right now. IDK how to do this all over again.

I don’t understand how I managed to fall out of habituation so randomly and suddenly. Every little sound is freaking me out. I can’t stop listening to the orchestra of tones no matter how hard I try ;(

New problem: sudden onset vertigo and nausea. Urgent care says it’s benign positional vertigo, which is fairly common. Hoping it subsides and isn’t anything more severe

I just want to be okay. I want to get back to my mostly habituated state, where my T was just a nuisance and not causing me an “oh shit, I’m freaking out” moment every 2 minutes.

My T is making me anxious again and all I can focus on is the sounds in my ears. I thought I’d moved past this

Long time no see everyone. My tinnitus is back to making me extremely anxious because for some reason I’m hyper aware of it again. I’m sure it will pass, I’ve been thru this before. But I’m really scared

Haven’t had my TTTS flare up in a long time but it’s back today. Frustrating, but scrolling thru my own posts helps reassure me that it always does eventually settle after a few days.

Today is day 5 of taking lamictal/lamotrigine. Last night I noticed a new tone in my right ear that is still there today. Could just be a spike but if it persists tomorrow I’m probably going to stop the medicine.

Due to my mental health, I have to start taking the mood stabilizer lamictal/lamotrigine. I’m terrified that it’s going to make my T worse. I have a friend who takes it and also has T and said it didn’t make it worse, so that’s good I guess.

Hey all. Hope everyone's hanging in there. Thought I'd pop in and say I'm having more anxiety with my T, which happens every few months but eventually settles. Thinking about you all.

Yesterday was 2 years with T. It’s been making me anxious again lately. IDK if it’s actually any worse or if I’m just more aware of it. But for the most part I handled my T much better this year than the last. Hoping each year is easier. Hang in there guys <3

2/2 I’ve never had spikes, mine have always been permanent increases. How do you know if it’s a spike? How long do yours last?

1/2 I think I’m having a tinnitus spike? A tone I haven’t heard for a long time is back and pretty obnoxious. Sounds like a tornado siren.

My TTTS settled for a bit but it’s been back again for my birthday which sucks. Hopefully it dies back down

Officially 24. Second birthday with tinnitus. I hope this year is better for me mentally and physically.

I turn 24 in a little over 2 weeks… oh boy

@snizzleberry Hang in there. You and I have similar issues, with distortions and TTTS and all of that. Mine improved after the first year, and my TTTS was absent most of this year. Having a flare up of it right now, but it’s happened before and eventually goes away. Hopefully yours subsides!

I literally have evidence of TTTS going away because it’s gone away many times for me. But my OCD is like “nope, it’ll never go away again”

Just used my gua sha on my cheek/jaw muscles for a solid 20 minutes. Didn’t realize how tense my jaw is. So many tender spots. Def recommend

Day 4 or 5 of TTTS flare up. If I remember correctly, past flare ups were ~ 1 week. Hope it settles soon. My anxiety is def making it worse

Trying not to worry about my TTTS reappearing is harder than I thought. I just want to be okay, I don’t wanna go through this again

My TTTS has made a reappearance. It’s hardly happened at all this year. Trying not to stress… it’s settled before, it can/will again

Also update re: my pulsatile T surgery a few months back. Throat complications have gone. Follow up with laryngology to reassess in 2 weeks

Thinking of you all. It’s 4am & my tinnitus is screaming a bit louder than usual. But I know it will settle soon & am not panicked. Progress

Of course! It definitely was gradual for me. I remember last summer, I was getting back into Skyrim, and I could hardly focus on the game because of how much I was actively listening to and checking on my tinnitus. The stretches of time where I wouldn’t think about it or “hear it” were very...

I’m not sure if there’s any particular thing that helped me; I think it was a combination of things. I focused a lot on distraction. I watched a lot of YouTube and TikTok, read a lot of books, played a lot of video games, discussed my tinnitus in therapy, and did an outpatient anxiety program...

However if it were to worsen again I would be back at square 1. But for now I am adapting and habituating somewhat.

I’d say I currently go maybe 90% of my day without thinking about my T. It’s still there, multi-tonal and unchanging, but I am… adapting?

If I think/focus too much on the orchestra of sounds in my ears, I get anxious. But I am doing better with it this year than the last.

I’ve had pulsatile tinnitus for several years (right-sided). I underwent a stenting procedure in October 2023 for my Venous Sinus Stenosis. This did not cure my pulsatile tinnitus, but I did not have complications. My interventional neuroradiologist found a jugular bulb diverticulum and another...

Saw a specialist and due to my surgery I have an almost fully paralyzed right vocal cord and partial paresis on part of my palate.

My surgery for my PT was May 1st. I’ve since had a complication and it’s not looking good. Too long to post update as a status lol

10 days until my surgery. Trying not to be pessimistic about it, but also don’t want to get my hopes up either. Hard to balance it!!

Your story sounds similar to mine, although I don’t think my tinnitus is reactive (but certain sounds cause distortion - I hear a Morse code beeping over fans, A/C, etc). I had pretty severe TTTS to the point where I couldn’t even talk without my left ear thumping. My ear burned from the...

Any good vibes would be appreciated. My PT bothers me more than my T. It would be a relief to finally get this cured after 2 surgeries