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I know this is really old, but I met with a really good TMD physical therapist this week and she did say that if you can get the medial pterygoid...
Happy birthday!!
Yeah I tried to get Canon Pianissimo done last fall and it is quieter hardware but still hits 110+ dB. Turned out a lot of these places don’t use...
MRIs are tremendously loud. They peak at 130-140+ dB. For those of us with significant hyperacusis/noxacusis, it’s out of the question. For people...
I looked into the MDD study ages ago and it requires an MRI, which eliminates the possibility for many/most of us :(
Praying for you!
liquid ionic magnesium is the only mag that works for me. I'm also looking into botox into the tensor veli palatini muscle
Can you post a link?
mine is med induced and louder in one ear. they don't know what they're talking about as usual hahah
Glad you're doing better. Did you have loudness hyperacusis, pain hyperacusis, or both? And how long were you on Retigabine before you started to...
Yeah, it’s frustrating to get our hopes up. If I were them, I would have a note on the expanded access page saying which drugs are or are not...
I’ve already tried requesting compassionate use for noxacusis pain. I agree there is no way they will offer it for tinnitus when they’re not...
@toumeimori hope it keeps helping!
Where/what did they botox?
My original first T took like 3 years to fade to nothing but it happened!
It brought it back unfortunately. And it's juvenile rheumatoid arthritis (enthesitis type).
I had Hep B vax before med school and it brought my autoimmune disease out of remission. I think my autoimmune disease may be at least somewhat...
Rubbing alcohol is pretty damaging to tissue. I’ve heard other people use garlic oil but I don’t have personal experience. I’ve used tea tree oil...
Ugh I'm sorry that's so frustrating :( if it comes back maybe try protecting your ears a bit more with plugs and see if that helps
sorry i jumped right to hyperacusis. probably least likely. I would have your doc check what your ears look like first.
Can you get out of the lease and move somewhere else with your partner? You could cite your noxacusis as a disability that requires a quiet...
:( Does the pain seem to be triggered by sound? Do you have any hyperacusis (things sound abnormally loud)?
Hi! I ended up getting the AirPods Max and they have been great for the few times I drive and for being outside when planes fly overhead. I have...
Sorry :( the buzzing is horrible. Hope it calms down quickly
Naproxen was the cause of my pain hyperacusis and also made my T go insane. I took it for 5 days. T has much improved although pain H has not. It...
There’s no good objective tests for tinnitus or hyperacusis yet. And clinical trials are insanely expensive. If they see good anecdotal evidence...
i forgot to add that my weighted blanket has been amazing for me! only problem now is that it's hard to sleep without it
Valerian is thought to act as a natural benzo so i think that's partly why it helped me to sleep and not use any Ativan! But also should add that...
I wouldn't be super concerned about the valium. just work on slowly weaning off of it. if you've been on it for awhile definitely don't want to...
Doctors don't know a lot of things. I got half a slide on tinnitus and not a thing about drug effects on hearing. I used a small amount of ativan...
Hi @Sammy0225 glad you're seeing improvements in H! if you don't mind my asking, what was your H like at its worst? Did you ever have pain?...
i take inositol, valerian root, and liquid ionic magnesium (tastes like crap, so i mix it with juice)
Sorry to hear about your migraines :( they can be terrible! n=1 but I tried Emgality back when I only had mild tinnitus and I noticed no...
Hi @gameover, I hope you're managing okay right now. You will have some funny stories to tell like from this encounter with the paranormal guy....
Hi @FestivalT, sorry you've joined the tinnitus club. To give you a little hope, the first time I got tinnitus, it faded to nothing over the span...
I've gotten these episodes for several years, though they became more frequent after my most recent ear disaster caused by a few days of Naproxen....
for awhile i was getting this seemingly in association with exercise but now i haven't had it for a couple weeks or so
So sorry you’re going through this. Have you informed your doctor about what’s happening and are you still taking the meds? Your doctor should...
@SamRosemary Congrats on almost reaching the finish line!!
Hope that a lot of your credits can transfer! One of my best friends recently finished an accelerated BSN and they accepted a lot of her undergrad...
@Ryan Scott thank you! I hope you can go back to your studies this year. If you end up working with patients, T makes you have more empathy for a...
If you can find a 1.5T canon pianissimo zen machine they are supposed to be one of the quietest without having to be open. Unfortunately open is...
but you should totally do CRNA! i did surgery at the VA and the CRNA's loved it. It's a great gig. A GI doc i worked with said they have a better...
@Ryan Scott so I'm technically almost finished with my third year but two months ago took naproxen for 5 days and got really bad loudness H and...
but don't be afraid to take time off if needed. I was lucky I was on summer break when I first got T
i got T at the end of my sophomore year (show that caused it was literally right after finals) and went back in the fall. T worsened beginning of...
Yeah, this is always terrible for me with Prednisone. And I get insomnia like nobody's business.
You think decades? They already use adenovirus-based gene therapy (what they described in the article) for cancer.
Just wanted to pop in and encourage you to hang in there. You're in the very early stages and what you're feeling is normal. Just know that time...
Wow, I feel like this is a really big deal and this guy seems pretty brilliant and determined. Great find.
I always imagine what it would be like if the same amount of money that was thrown at covid vaccines was thrown at T/H/hearing loss
I had an appointment to see Dr. Timothy Hain next week (he's a neuro-otologist that's been talked about on TT before) but they canceled my...
I agree. I wish CBT would work but I just don't understand how it could fix our current condition. I could see mayyyybe down the line after a lot...
I'm glad your girlfriend has been understanding. And yeah that's correct. I don't think I could handle living at the apartment in the city long...
Hi @Mike42. It sounds like you have multiple variables going on. I believe a narrowed sigmoid sinus can contribute to pulsatile tinnitus but I...
That's strange that your psych won't prescribe Flexeril. Maybe they have a personal policy against prescribing meds they deem "out of his realm."...
ALA is used very successfully for things like diabetic neuropathy. My mom uses it for neuropathy in her feet from a spine surgery that probably...
@yeezysqueezy Also feeling like I have to rot inside forever too. Has your girlfriend been pretty understanding? My boyfriend is doing his best...
@TheFriendlyGhost bummed to hear of no improvements in nox but glad you're doing okay mentally. I feel like it's pretty much the same for me. I...
Also my original T I thought was non-somatic but I could get rid of it by putting my head upside down. Idk if what constitutes "somatic" has been...
