@Stayinghopeful Hey old friend! Yes! Life is about as normal as it's gonna get. I go out now and continue living like I was before T. I avoid concerts still but have been to weddings and just fine with the DJ. I hope you're doing well!
Hello! I am doing well. My T has been a lot more stable after about 2 years and less intrusive. I'm able to function a lot more normally and my hyperacusis is almost non-existent. How are you?
Hello and how are you? I've been doing a lot better. I went from catastrophic T with Hyperacusis to almost no hyperacusis and mild to moderate T. I have taken medications since with no set backs. As far as vaccines I have stayed away from them and don't plan on getting any.
Hello everyone 👋 I'm back with an update. My T is still there and spikes have become less and less. I am living life more normally despite this noise..it's still annoying most days but I'm pushing through. Reactivity is wayyyyy down but still there....nothing like it was though. Hyperacusis is...
@RunningMan I want to do more research but what they specialize in could (possibly) be a benefit with the recent finding of this malformation I was apparently born with. This malformation can also cause Tinnitus but ultimately it was probably that medication. They're hard to find though. I bet U...
@Zigs I received my advice and therapy plan from the University of Michigan and had a hyperacusis test. Took around 9 months to get back to almost normal. Some noises can cause spikes but no longer painful. I don't live wearing earplugs anymore.
@Zigs I remember the alarms in hospitals killed me but I still exposed myself. You have to expose yourself to these noises a little more each day. Even if you start off at night on YouTube videos. You have to teach your brain that sounds aren't painful. Do it safely, listen to your body, don't...
@Zigs The noises that really bother you for example dishes clanking together or fans, listen to that 5 mins everyday without protection. Take earplugs breaks throughout the day. Listen to your toddler in small amounts and use ginger/turmeric tea for pain and inflammation management.
@RunningMan Thank you! I bought those earplane ear plugs which helped with the pressure changes and nasal spray, ginger tablets and sucked on mints. I'm sure that helped a bit.
@RunningMan Like my mom always said "we can't live in fear" I'm going to take every precaution that I can. I have 5 hours on this flight and hope for the best. I've talked to lots of T suffers including my brother and all was fine. Hopefully we hear an update on that shore device.
@RunningMan Thank you my dear friend. We leave in 4 days and while I'm super nervous to go with just my daughter now and the airplane... I'm going to put on my brave face and do it. Wish me luck! I will report back. How have you been?
@ellees I had ear fullness, pain and loudness. I make ginger/tumeric tea to make that go away. I had symptoms of TTTS for awhile but that went away. Try making that tea . It sounds like inflammation. Are you new to T?
@RunningMan I'm sorry to hear there's no improvement. I seem to be dealing with a spike again. I can feel inflammation. Yes, vacation is coming up in 2-3 weeks. I'm very nervous to travel as the only adult and with this condition. I really hope I won't have any spikes during this. Hopefully...
@BB23 I barely took any of the medicine. I'd split the lowest dose in half and no it had zero effect on my eyes. I still have perfect hearing even with extended testing.
It will hurt at times but as long as the sound is safe keep pushing through the discomfort. I no longer have pain or discomfort from hyperacusis. It took a few months for it to settle. You just have to retrain your brain that noise isn't harmful. Listen to sounds on low with YouTube videos 5...
I work a ton so I get it. It helps to stay busy. I went through the University of Michigan for hyperacusis therapy. I had both pain and loudness hyperacusis. I slowly started to introduce sounds that bothered me. Like dishes clanking together. I'd put the dishes away and listen to the noise...
Hello @SharonBell My T has been better since the onset of last March. I still have my bad days that seem unbearable from time to time though. I started off as catastrophic with hyperacusis but now bounce between mild and moderate and my spikes are severe.
@MindOverMatter You put a triangle cone in your ear and their specialized machine sends out certain sound waves. The cone detects how your little tensor tympani muscle responds to it. It sends the information back to the machine to see if working correctly.
@Ngo13 That's how I ended up with T to begin with! They said my heart acting up was anxiety related and the med they gave me, gave me T. My guess is that it's inflammation because something is going on right now and I have a spike that's been going on for awhile now and I feel inflammation in my...
@Ngo13 I was tested for TTTS at U of M and my test came back clean. It comes and goes and they said it was anxiety related. Not everything is anxiety related!
Hey, life is going okay. I recently joined a gym and am doing bootcamp to get fit and toned. I'm just working on myself and my health while picking up hours at work. I'm figuring this new life out and think I'll be just fine. Thank you for checking in. How have you been? Any summer plans?
@RunningMan That's so awesome! Don't you wish days like that could last forever? That's what I always say when it's super low..... Like I wish this was as bad as it got.