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  • Users: Nes
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  1. Nes

    A Year Later, I Don't Know What My Tinnitus Baseline Is

    Oh, that’s good to know! What are your triggers, and what are you doing to avoid them? In my case, I’m currently wondering if I might have chronic sinusitis. I have a lot of breathing issues, and my TMJ specialist told me he could tell from my posture that I mouth breathe. I also suspect I...
  2. Nes

    Right Ear Spontaneously Became Numb & Tinnitus Got SUPER Loud!

    I get similar sensations all the time when I am lying in bed. Usually, I can feel my tinnitus cutting in and out before it happens, so I have a chance to get up. But if I do not, I get the piercing tinnitus, which can last from 10 seconds to a few days. The longest it lasted for me was two days...
  3. Nes

    Electrical Stimulation of the Cochlea for Treatment of Chronic Disabling Tinnitus

    You also have to be proficient in Dutch. I would have participated otherwise 😢
  4. Nes

    @Scruffiey thank you very much for the advice. Today I spent most of my day without my ear...

    @Scruffiey thank you very much for the advice. Today I spent most of my day without my ear muffs. The cotton lets just enough sound so I can habituate to everyday noises without too much stress and pain
  5. Nes

    Recommendations for Small Speakers with Built-In Balance Adjustment for Zoom Meetings?

    If you find something, could you let us know what you buy? I’m interested too!
  6. Nes

    @henkess it's gone now, but it took almost a week to go away. Usually, it lasts four days max.

    @henkess it's gone now, but it took almost a week to go away. Usually, it lasts four days max.
  7. Nes

    We also had mold issues in our bedrooms, and the two times it happened, my tinnitus lessened a...

    We also had mold issues in our bedrooms, and the two times it happened, my tinnitus lessened a lot after clearing the mold.
  8. Nes

    Since last November, I've been having more and longer periods where my T is predominantly a...

    Since last November, I've been having more and longer periods where my T is predominantly a hiss. Although it's also reactive, the intensity of neck and jaw pain I have is directly related to the loudness and nature of my T.
  9. Nes

    A Year Later, I Don't Know What My Tinnitus Baseline Is

    Update: I think I have a slight idea of what my baseline is, but the issue is that I cannot figure out how to stay at baseline. As I have mentioned, my tinnitus is extremely reactive and somatosensory. The problem is that I am a very tense person. Even the slightest stress causes all my...
  10. Nes

    A car alarm also went off during my sleep, and my tinnitus has mimicked that for a few days now.

    A car alarm also went off during my sleep, and my tinnitus has mimicked that for a few days now.
  11. Nes

    I cannot WAIT to move out. Got woken up by someone vacuuming for the second time in the week...

    I cannot WAIT to move out. Got woken up by someone vacuuming for the second time in the week. When it's not vacuums, it's alarms. I rarely have a full night of sleep; it's insane.
  12. Nes

    @Scruffiey IT IS! Why did I never think of that!

    @Scruffiey IT IS! Why did I never think of that!
  13. Nes

    @Scruffiey probably just stress as I do not have (visible) hearing loss! I always thought my tmj...

    @Scruffiey probably just stress as I do not have (visible) hearing loss! I always thought my tmj damaged my nerve, but the tightening hypothesis makes much more sense
  14. Nes

    I get a tingling sensation from my cheekbone to above my lips when i'm exposed to too much...

    I get a tingling sensation from my cheekbone to above my lips when i'm exposed to too much sound. It's not painful but it's annoying. I used to get that when i was very stressed or when my tmj is very bad. Does anyone else have that?
  15. Nes

    Well, i don't think i'll be able to get out of my protections in my house. Constant vacuum and...

    Well, i don't think i'll be able to get out of my protections in my house. Constant vacuum and power tool noises today. Yesterday got blasted with a high pitch pure tone coming out of nowhere. Looking to move out
  16. Nes

    Trying to stop wearing earmuffs in my home. The psychological aspect is hard to overcome ! On a...

    Trying to stop wearing earmuffs in my home. The psychological aspect is hard to overcome ! On a good note, my reactive tinnitus is a bit less reactive.
  17. Nes

    Game Over? Worsening Reactive Tinnitus and Pain Hyperacusis with Severe Headaches

    Have you been able to completely stop using protection at home? I am dealing with the exact same issue. My tinnitus has also improved a lot thanks to protection, but I would like to be free from it in my own house.
  18. Nes

    Sleep Architecture Disrupted in Tinnitus Sufferers

    Does tinnitus itself affect REM sleep, or is it tinnitus-related anxiety that prevents a good night’s sleep? To add my two cents, ever since developing tinnitus, I’ve started waking up multiple times per night. I used to be a heavy sleeper despite having anxiety before acquiring tinnitus. Even...
  19. Nes

    A Year Later, I Don't Know What My Tinnitus Baseline Is

    I relate to this a lot. I go through cycles lasting anywhere from two weeks to a month and a half. Last November, I had just a hiss for a full month—I felt like my struggle was over. Then one day, it started ramping up again. Over the past few days, it has doubled in intensity, and I have no...
  20. Nes

    A Year Later, I Don't Know What My Tinnitus Baseline Is

    Hello everyone, It’s been one year since my tinnitus began, and unfortunately, I haven’t habituated yet because it changes every two months. I don’t react strongly to it anymore (except when I get brand-new sounds), but I can’t ignore it. It started as a very high-pitched ringing in February...
  21. Nes

    Low Frequency Tinnitus

    I also have lower-frequency tinnitus. In fact, all my tinnitus sounds are below 2000 Hz. In my case, the sound is localized to one ear only. In my right ear, I have a 500–600 Hz pipe-like sound, which I believe is due to TMJ. In my left ear, I sometimes get a hum when I overprotect.
  22. Nes

    Tinnitus Worse After Invisalign Treatment: What's Your Invisalign Experience?

    Hello, Have you noticed any pressure in your jaw when you wear or remove your Invisalign? Do you find yourself clenching more while wearing it? I’m not a doctor, but tinnitus can sometimes be caused or worsened by jaw-related issues. I’m in a similar situation—though I have a retainer instead...
  23. Nes

    Tinnitus Surges to Extreme Levels Briefly Before Returning to Normal

    As others have mentioned, it is most likely fleeting tinnitus. I’ve experienced quite a lot of those episodes over the past few months as well. It could also be related to your stress levels since tension in the neck can cause it.
  24. Nes

    Tooth Extraction Followed by Bad, Uncharacteristic Tinnitus Over a Week Later

    Hello! I developed one tinnitus sound after a dentist appointment. I already had TMJ, which started after my wisdom tooth removal. During a night guard fitting, I had to keep my mouth open for too long, and this caused a very low-pitched hum on one side. Sometimes the hum lessens to the point...
  25. Nes

    Xenon Pharmaceuticals' XEN1101 — Kv7 Potassium Channel Modulator

    The exact same thing happened to me. One of my sounds appeared after I kept my mouth open for too long at the dentist. It lessened over time, but whenever I wear my night guard, it becomes extremely loud again. I also suffer from TMJ, and my tinnitus is noise-induced.
  26. Nes

    Xenon Pharmaceuticals' XEN1101 — Kv7 Potassium Channel Modulator

    Damage might be a bit of a stretch here. As I was taught, brain damage refers to the destruction of brain cells. Unless tinnitus was caused by such damage, I do not think most people with tinnitus have brain damage. Brain damage is also considered to be quite permanent. If tinnitus were truly...
  27. Nes

    Terrifying Fleeting Deafness for Hours: Is It Sudden Sensorineural Hearing Loss?

    Sending lots of hope your way—that must have been terrifying. Did you end up taking the Prednisone? Even for the sinus infection, isn’t it strange that you weren’t prescribed Prednisone?
  28. Nes

    Terrifying Fleeting Deafness for Hours: Is It Sudden Sensorineural Hearing Loss?

    I experienced this last month. The deafness was very brief, but the ringing lasted for several hours. It took an entire month to settle down a bit, but it is still not close to baseline. As a result, the ringing returned in my good ear. I also experienced a lot of fleeting tinnitus episodes...
  29. Nes

    @Alberte also worth noting that I was prescribed clonazepam for my sleep issues and restless...

    @Alberte also worth noting that I was prescribed clonazepam for my sleep issues and restless legs syndrome/muscle spasms. For those issues, the clonazepam is working perfectly fine
  30. Nes

    Hello! So far I took only two 0.25mg pills. It does help me sleep. It prevents me waking up from...

    Hello! So far I took only two 0.25mg pills. It does help me sleep. It prevents me waking up from the tinnitus. I still wake up but I don't notice the tinnitus so I fall back asleep. The first time I got a very quiet day, but since i also got my period on the same day, I'm not sure which caused...
  31. Nes

    Favourite Video Games?

    Stardew Valley, Terraria, Slay the Spire, Mario Kart, Factorio. I've been playing a lot of Red Dead Redemption 2 lately, and it's an excellent game. And let's not forget my absolute favorite, Cuphead. I love that game so much I became a speed runner of it!
  32. Nes

    I'd like to apologise to the moderators who have to correct all my broken english posts. Sorry...

    I'd like to apologise to the moderators who have to correct all my broken english posts. Sorry :sorry:
  33. Nes

    SBUTT (Fleeting Tinnitus) Triggered by Neck / Jaw Position

    Hello everyone, Lately, I’ve noticed that certain positions seem to trigger my SBUTT episodes. For those who might not know, SBUTT stands for Sudden Brief Unilateral Tapering Tinnitus. It’s that sensation of sudden deafness accompanied by a very loud ring, which fades away within seconds or...
  34. Nes

    Do You Have a Problem with Misophonia, and If So, Which Sounds?

    At one point in my life, my misophonia was so intense that I would automatically yell “shut up” at babies. It was embarrassing, especially in public. I wish it were only crying and screaming that bothered me, but I can’t stand their laughter, talking, or cooing either. 😩
  35. Nes

    @adpolandam no. White/fan/Ac noises give me tingling nerve pain in my face though

    @adpolandam no. White/fan/Ac noises give me tingling nerve pain in my face though
  36. Nes

    I finally got clonazepam prescribed instead of clorazepate! I really hope it will help spikes

    I finally got clonazepam prescribed instead of clorazepate! I really hope it will help spikes
  37. Nes

    @Lurius another solution I've stumbled upon and which is my end goal is to use thunderbolt with...

    @Lurius another solution I've stumbled upon and which is my end goal is to use thunderbolt with a kvm extender and optical display port cables to use directly the pc from another room. More expensive and requires cables to run across all appartement, but better quality
  38. Nes

    @Lurius I will probably make a post with the specifics (comments are way too short) , but I use...

    @Lurius I will probably make a post with the specifics (comments are way too short) , but I use sunshine and moonlight to stream my pc to my deck, which is connected to a monitor. It works surprisingly well with 0 latency
  39. Nes

    My noiseless pc setup using a steam deck is up and ready ! This console has been the best thing...

    My noiseless pc setup using a steam deck is up and ready ! This console has been the best thing i bought in 2024
  40. Nes

    Clonazepam (Klonopin, Rivotril)

    You can’t get Clonazepam in France anymore. It’s now prescribed exclusively for epilepsy, and only neurologists are authorized to prescribe it to patients.
  41. Nes

    Huuuge mold issue in my room. It explains why my nose felt stuffed. Might have something to do...

    Huuuge mold issue in my room. It explains why my nose felt stuffed. Might have something to do with the slightly increased tinnitus of those past 2 days. At least I hope.
  42. Nes

    Do You Have a Problem with Misophonia, and If So, Which Sounds?

    I’m unearthing this topic because I was discussing misophonia with a friend yesterday. I’ve had misophonia for a long time, even before developing tinnitus. Certain sounds trigger an intense, irrational anger in me, so strong that it brings up intrusive thoughts of very violent scenes. I also...
  43. Nes

    Regular Tinnitus Appears Worse After an Episode of Fleeting Tinnitus

    I’m using a low-profile foam pillow. My physical therapist told me that your neck should be aligned with your spine when you sleep.
  44. Nes

    Regular Tinnitus Appears Worse After an Episode of Fleeting Tinnitus

    Hello, Yes, things have calmed down a bit. The fleeting tinnitus episode lasted for about 1–2 hours, and it took me a month to have a few good days again. However, I’m still not back to where I was before it happened. I’m confident that this episode was caused by muscle issues and worsened by...
  45. Nes

    Regular Tinnitus Appears Worse After an Episode of Fleeting Tinnitus

    I’ve seen a few posts from people who also had very long-lasting, fleeting tinnitus, so I guess it’s not entirely impossible for it to eventually disappear. As for me, I already use hearing protection when I’m on my computer, as I have reactive tinnitus that responds to fan and HDD noises. I...
  46. Nes

    Regular Tinnitus Appears Worse After an Episode of Fleeting Tinnitus

    I’ve been experiencing increased tinnitus for the past three weeks, which started after a one-hour episode of what I believe was fleeting tinnitus. I’m not entirely sure if I can call it fleeting tinnitus, but it felt exactly like that; a sudden, loud, high-pitched sound that takes over the ear...
  47. Nes

    Ironic : my Brain filters out the sound enrichment I use at night because it's too busy focusing...

    Ironic : my Brain filters out the sound enrichment I use at night because it's too busy focusing on tinnitus. Took me 20min to realize it was still running
  48. Nes

    My ears popped the other day and the tinnitus disappeared for 1s?! Reactivity and sensitivity...

    My ears popped the other day and the tinnitus disappeared for 1s?! Reactivity and sensitivity have been way down since. WTH happened????
  49. Nes

    Oh irony, I say it gets better just for it to get worse the next day. It just got higher pitched...

    Oh irony, I say it gets better just for it to get worse the next day. It just got higher pitched for no reason
  50. Nes

    Almost 6 months in. I'm getting more and more good days and I'm learning things about my T...

    Almost 6 months in. I'm getting more and more good days and I'm learning things about my T. Prolonged low noise spike me badly...
  51. Nes

    It kind of did, then I got 2 more spikes during that time. My march spike was due to stress...

    It kind of did, then I got 2 more spikes during that time. My march spike was due to stress definitely, it took 2 weeks to get down. Then I got another one due to a vacuum which did get down a bit but introduced a new sound which lasts even today. I got one last spike from a bus ride at the...
  52. Nes

    Tinnitus Triggered by Sleeping on One Side — Isolating Myself with Earplugs Makes It Bearable

    I've had tinnitus for two months now. I still don't know what really caused it, between noise and this persistent viral infection/sinusitis/rhinitis I've been having. During those two months, my tinnitus has been very variable. It almost disappeared, came back as a new sound after a super...
  53. Nes

    Tinnitus Triggered by Sleeping on One Side — Isolating Myself with Earplugs Makes It Bearable

    Hello everyone! I developed tinnitus one month ago. I'm not sure if it was noise induced or due to fluid in the ears. Two different GPs saw fluids in my ears, but, I saw an ENT two days ago and they said I had nothing. The ENT believes my tinnitus was noise induced and sent me on my way without...