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  • Users: Nes
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  1. Nes

    I also think I'm starting to develop an outer ear infection because of the constant protection...

    I also think I'm starting to develop an outer ear infection because of the constant protection. Good thing I'm already under antibiotics but it's stressing me out
  2. Nes

    Penicilins do not affect my tinnitus at all but ppi like pentoprazol do. Good to know !

    Penicilins do not affect my tinnitus at all but ppi like pentoprazol do. Good to know !
  3. Nes

    Hopefully last night in the hospital. I can't wait to go back home and sleep in my bed with my cat

    Hopefully last night in the hospital. I can't wait to go back home and sleep in my bed with my cat
  4. Nes

    @tobyharrixon fortunately I can. I wore them for almost 48 hours straight though so my ears are...

    @tobyharrixon fortunately I can. I wore them for almost 48 hours straight though so my ears are getting sore... But today was a quiet day, I did fine with just ear defenders
  5. Nes

    @kingsfan @Watasha thanks for the reinsurance ! I'm on my 6th iv bag so far and 0 change :)

    @kingsfan @Watasha thanks for the reinsurance ! I'm on my 6th iv bag so far and 0 change :)
  6. Nes

    Everything was going OK at the hospital until I was put in a room with someone hooked to various...

    Everything was going OK at the hospital until I was put in a room with someone hooked to various extremely loud beeping machines. I got blasted with high pitched pure tones and my tinnitus is not liking that
  7. Nes

    Currently hospitalised because I have air around my heart. They have to put me on penicilin and...

    Currently hospitalised because I have air around my heart. They have to put me on penicilin and I'm SCARED. No choice if I don't want to die though
  8. Nes

    Cyclical Low-Frequency Tinnitus + Hyperacusis After Viral Infections — Anyone Else?

    I don’t know if it’s exactly the same, but I also experience a cyclic low tone in my right ear only. I would describe it as sounding like Morse code, but more similar to pipe noises. For me, it often turns into a constant hum by the end of the day or at night. It usually takes a few weeks or...
  9. Nes

    New University of Michigan Tinnitus Discovery — Signal Timing

    So, if I understand correctly, they have not yet obtained FDA clearance, but they have begun the process to apply for it?
  10. Nes

    False alarm, it's gone after a good night of sleep!

    False alarm, it's gone after a good night of sleep!
  11. Nes

    Has Anybody Recovered from a Tinnitus Spike Caused by Pure Tone Exposure?

    I still use TikTok. Tinnitus is not going to take away another thing I enjoy. However, I only use it without sound unless I am certain the video does not contain any strange or potentially triggering sounds. I am not too concerned about videos where people are just talking, or content from...
  12. Nes

    Tinnitus Reactivity Triggered by Specific Beep Sounds and Sirens — Advice on Exposure vs. Protection?

    I’m aware that any kind of healing will probably take years, but I’m confused about what the safest route is in the meantime. The problem is that this reactivity is only getting worse, and it started fairly recently. It began in my left ear three months ago after I listened to a “soothing music”...
  13. Nes

    I accidentally listened to the coil whine on my monitor while looking for the source of some...

    I accidentally listened to the coil whine on my monitor while looking for the source of some noise I was hearing and now I have this awful new tinnitus sound. It's been 24h. Scared I gave myself a new permanent sound...
  14. Nes

    Has Anybody Recovered from a Tinnitus Spike Caused by Pure Tone Exposure?

    It happened to me. I was searching for a friend’s username on TikTok, and the first result was one of those pure frequency tracks that are supposed to “heal your soul and chakra” or something like that. This caused a new sound in the ear that was exposed, which lasted for three days. It...
  15. Nes

    Tinnitus Reactivity Triggered by Specific Beep Sounds and Sirens — Advice on Exposure vs. Protection?

    Hello everyone, As some of you might have read, I’m doing much better lately. My tinnitus is more stable, my spikes are shorter, and my hyperacusis is improving. However, there is one very specific sound that makes my tinnitus go haywire, and I can’t avoid it. The sound is just a beep, but not...
  16. Nes

    Six Years Later: My Journey Through Tinnitus and Hyperacusis Recovery

    I’m following the same path. I’m 15 months in, and my hyperacusis has started to improve as well. Just last month, even my cat’s purring felt too loud, but now I can listen to outside noises like cars without feeling the need to use protection. My tinnitus has also become much more stable...
  17. Nes

    A Year Later, I Don't Know What My Tinnitus Baseline Is

    Hello, Yes, I have! I already know that my posture is directly responsible for my transient tinnitus episodes, so I’ve been working extensively on it. I bought a desk chair with upper back support and armrests, and I actively try not to slouch. I also noticed that all pillows hurt my neck...
  18. Nes

    @DimLeb I spoke too soon, as yesterday I tried to sound enrich with waves sounds on my phone and...

    @DimLeb I spoke too soon, as yesterday I tried to sound enrich with waves sounds on my phone and it caused me a spike and a bit of pain. I protected for the rest of the night and sleep reset the spike. But so far, sounds not coming from a digital source have been very effective for me!
  19. Nes

    My radiator was super loud, which caused an accidental sound enrichement in my room for 2 days...

    My radiator was super loud, which caused an accidental sound enrichement in my room for 2 days. My hyperacusis today is almost gone and my T doesn't react. I've decided to do sound enrichment by opening the windows
  20. Nes

    A Year Later, I Don't Know What My Tinnitus Baseline Is

    May Update: This month I’m doing better. Tinnitus still has its ups and downs, but I have hope, as I’m experiencing more and more periods where it doesn’t bother me as much. As a result, I’ve been sleeping very well, which significantly reduces my tinnitus. Sleeping well also greatly decreases...
  21. Nes

    Assessment of Treatment Efficacy in Patients with Chronic Tinnitus: An Ambispective Cohort Study

    I managed to obtain the PDF. The pharmacological treatment includes Amitriptyline, Clonazepam, and Ginkgo Biloba. I only skimmed through the text, but the aim and conclusion of the article are to demonstrate that pharmacological treatments alone are less effective than a combination of...
  22. Nes

    Assessment of Treatment Efficacy in Patients with Chronic Tinnitus: An Ambispective Cohort Study

    I am asking my partner, who has institutional credentials, if he can access it. If not, you might have some luck by emailing the author directly.
  23. Nes

    Struggling with Tinnitus Spikes from Digital Audio: Any Speaker Recommendations?

    Hello everyone, I’ve had tinnitus for a year now, and although I am coping much better—and sleeping much better too—I am still struggling with certain noises. My tinnitus is not constant. By that, I mean it can shift quickly from a hiss to a ringing sound. One of the things that triggers these...
  24. Nes

    Currently trying to not care about my tinnitus and hyperacusis and it's actually working...

    Currently trying to not care about my tinnitus and hyperacusis and it's actually working. Tinnitus is less reactive and when it is, it doesn't last long (except for the 2 days of ambulance siren phantom noise I got lol)
  25. Nes

    A Year Later, I Don't Know What My Tinnitus Baseline Is

    Oh, that’s good to know! What are your triggers, and what are you doing to avoid them? In my case, I’m currently wondering if I might have chronic sinusitis. I have a lot of breathing issues, and my TMJ specialist told me he could tell from my posture that I mouth breathe. I also suspect I...
  26. Nes

    Right Ear Spontaneously Became Numb & Tinnitus Got SUPER Loud!

    I get similar sensations all the time when I am lying in bed. Usually, I can feel my tinnitus cutting in and out before it happens, so I have a chance to get up. But if I do not, I get the piercing tinnitus, which can last from 10 seconds to a few days. The longest it lasted for me was two days...
  27. Nes

    Electrical Stimulation of the Cochlea for Treatment of Chronic Disabling Tinnitus

    You also have to be proficient in Dutch. I would have participated otherwise 😢
  28. Nes

    @Scruffiey thank you very much for the advice. Today I spent most of my day without my ear...

    @Scruffiey thank you very much for the advice. Today I spent most of my day without my ear muffs. The cotton lets just enough sound so I can habituate to everyday noises without too much stress and pain
  29. Nes

    Recommendations for Small Speakers with Built-In Balance Adjustment for Zoom Meetings?

    If you find something, could you let us know what you buy? I’m interested too!
  30. Nes

    @henkess it's gone now, but it took almost a week to go away. Usually, it lasts four days max.

    @henkess it's gone now, but it took almost a week to go away. Usually, it lasts four days max.
  31. Nes

    We also had mold issues in our bedrooms, and the two times it happened, my tinnitus lessened a...

    We also had mold issues in our bedrooms, and the two times it happened, my tinnitus lessened a lot after clearing the mold.
  32. Nes

    Since last November, I've been having more and longer periods where my T is predominantly a...

    Since last November, I've been having more and longer periods where my T is predominantly a hiss. Although it's also reactive, the intensity of neck and jaw pain I have is directly related to the loudness and nature of my T.
  33. Nes

    A Year Later, I Don't Know What My Tinnitus Baseline Is

    Update: I think I have a slight idea of what my baseline is, but the issue is that I cannot figure out how to stay at baseline. As I have mentioned, my tinnitus is extremely reactive and somatosensory. The problem is that I am a very tense person. Even the slightest stress causes all my...
  34. Nes

    A car alarm also went off during my sleep, and my tinnitus has mimicked that for a few days now.

    A car alarm also went off during my sleep, and my tinnitus has mimicked that for a few days now.
  35. Nes

    I cannot WAIT to move out. Got woken up by someone vacuuming for the second time in the week...

    I cannot WAIT to move out. Got woken up by someone vacuuming for the second time in the week. When it's not vacuums, it's alarms. I rarely have a full night of sleep; it's insane.
  36. Nes

    @Scruffiey IT IS! Why did I never think of that!

    @Scruffiey IT IS! Why did I never think of that!
  37. Nes

    @Scruffiey probably just stress as I do not have (visible) hearing loss! I always thought my tmj...

    @Scruffiey probably just stress as I do not have (visible) hearing loss! I always thought my tmj damaged my nerve, but the tightening hypothesis makes much more sense
  38. Nes

    I get a tingling sensation from my cheekbone to above my lips when i'm exposed to too much...

    I get a tingling sensation from my cheekbone to above my lips when i'm exposed to too much sound. It's not painful but it's annoying. I used to get that when i was very stressed or when my tmj is very bad. Does anyone else have that?
  39. Nes

    Well, i don't think i'll be able to get out of my protections in my house. Constant vacuum and...

    Well, i don't think i'll be able to get out of my protections in my house. Constant vacuum and power tool noises today. Yesterday got blasted with a high pitch pure tone coming out of nowhere. Looking to move out
  40. Nes

    Trying to stop wearing earmuffs in my home. The psychological aspect is hard to overcome ! On a...

    Trying to stop wearing earmuffs in my home. The psychological aspect is hard to overcome ! On a good note, my reactive tinnitus is a bit less reactive.
  41. Nes

    Game Over? Worsening Reactive Tinnitus and Pain Hyperacusis with Severe Headaches

    Have you been able to completely stop using protection at home? I am dealing with the exact same issue. My tinnitus has also improved a lot thanks to protection, but I would like to be free from it in my own house.
  42. Nes

    Sleep Architecture Disrupted in Tinnitus Sufferers

    Does tinnitus itself affect REM sleep, or is it tinnitus-related anxiety that prevents a good night’s sleep? To add my two cents, ever since developing tinnitus, I’ve started waking up multiple times per night. I used to be a heavy sleeper despite having anxiety before acquiring tinnitus. Even...
  43. Nes

    A Year Later, I Don't Know What My Tinnitus Baseline Is

    I relate to this a lot. I go through cycles lasting anywhere from two weeks to a month and a half. Last November, I had just a hiss for a full month—I felt like my struggle was over. Then one day, it started ramping up again. Over the past few days, it has doubled in intensity, and I have no...
  44. Nes

    A Year Later, I Don't Know What My Tinnitus Baseline Is

    Hello everyone, It’s been one year since my tinnitus began, and unfortunately, I haven’t habituated yet because it changes every two months. I don’t react strongly to it anymore (except when I get brand-new sounds), but I can’t ignore it. It started as a very high-pitched ringing in February...
  45. Nes

    Low Frequency Tinnitus

    I also have lower-frequency tinnitus. In fact, all my tinnitus sounds are below 2000 Hz. In my case, the sound is localized to one ear only. In my right ear, I have a 500–600 Hz pipe-like sound, which I believe is due to TMJ. In my left ear, I sometimes get a hum when I overprotect.
  46. Nes

    Tinnitus Worse After Invisalign Treatment: What's Your Invisalign Experience?

    Hello, Have you noticed any pressure in your jaw when you wear or remove your Invisalign? Do you find yourself clenching more while wearing it? I’m not a doctor, but tinnitus can sometimes be caused or worsened by jaw-related issues. I’m in a similar situation—though I have a retainer instead...
  47. Nes

    Tinnitus Surges to Extreme Levels Briefly Before Returning to Normal

    As others have mentioned, it is most likely fleeting tinnitus. I’ve experienced quite a lot of those episodes over the past few months as well. It could also be related to your stress levels since tension in the neck can cause it.
  48. Nes

    Tooth Extraction Followed by Bad, Uncharacteristic Tinnitus Over a Week Later

    Hello! I developed one tinnitus sound after a dentist appointment. I already had TMJ, which started after my wisdom tooth removal. During a night guard fitting, I had to keep my mouth open for too long, and this caused a very low-pitched hum on one side. Sometimes the hum lessens to the point...
  49. Nes

    Xenon Pharmaceuticals' XEN1101 — Kv7 Potassium Channel Modulator

    The exact same thing happened to me. One of my sounds appeared after I kept my mouth open for too long at the dentist. It lessened over time, but whenever I wear my night guard, it becomes extremely loud again. I also suffer from TMJ, and my tinnitus is noise-induced.
  50. Nes

    Xenon Pharmaceuticals' XEN1101 — Kv7 Potassium Channel Modulator

    Damage might be a bit of a stretch here. As I was taught, brain damage refers to the destruction of brain cells. Unless tinnitus was caused by such damage, I do not think most people with tinnitus have brain damage. Brain damage is also considered to be quite permanent. If tinnitus were truly...
  51. Nes

    Terrifying Fleeting Deafness for Hours: Is It Sudden Sensorineural Hearing Loss?

    Sending lots of hope your way—that must have been terrifying. Did you end up taking the Prednisone? Even for the sinus infection, isn’t it strange that you weren’t prescribed Prednisone?
  52. Nes

    Terrifying Fleeting Deafness for Hours: Is It Sudden Sensorineural Hearing Loss?

    I experienced this last month. The deafness was very brief, but the ringing lasted for several hours. It took an entire month to settle down a bit, but it is still not close to baseline. As a result, the ringing returned in my good ear. I also experienced a lot of fleeting tinnitus episodes...
  53. Nes

    @Alberte also worth noting that I was prescribed clonazepam for my sleep issues and restless...

    @Alberte also worth noting that I was prescribed clonazepam for my sleep issues and restless legs syndrome/muscle spasms. For those issues, the clonazepam is working perfectly fine
  54. Nes

    Hello! So far I took only two 0.25mg pills. It does help me sleep. It prevents me waking up from...

    Hello! So far I took only two 0.25mg pills. It does help me sleep. It prevents me waking up from the tinnitus. I still wake up but I don't notice the tinnitus so I fall back asleep. The first time I got a very quiet day, but since i also got my period on the same day, I'm not sure which caused...
  55. Nes

    Favourite Video Games?

    Stardew Valley, Terraria, Slay the Spire, Mario Kart, Factorio. I've been playing a lot of Red Dead Redemption 2 lately, and it's an excellent game. And let's not forget my absolute favorite, Cuphead. I love that game so much I became a speed runner of it!
  56. Nes

    I'd like to apologise to the moderators who have to correct all my broken english posts. Sorry...

    I'd like to apologise to the moderators who have to correct all my broken english posts. Sorry :sorry:
  57. Nes

    SBUTT (Fleeting Tinnitus) Triggered by Neck / Jaw Position

    Hello everyone, Lately, I’ve noticed that certain positions seem to trigger my SBUTT episodes. For those who might not know, SBUTT stands for Sudden Brief Unilateral Tapering Tinnitus. It’s that sensation of sudden deafness accompanied by a very loud ring, which fades away within seconds or...
  58. Nes

    Do You Have a Problem with Misophonia, and If So, Which Sounds?

    At one point in my life, my misophonia was so intense that I would automatically yell “shut up” at babies. It was embarrassing, especially in public. I wish it were only crying and screaming that bothered me, but I can’t stand their laughter, talking, or cooing either. 😩
  59. Nes

    @adpolandam no. White/fan/Ac noises give me tingling nerve pain in my face though

    @adpolandam no. White/fan/Ac noises give me tingling nerve pain in my face though
  60. Nes

    I finally got clonazepam prescribed instead of clorazepate! I really hope it will help spikes

    I finally got clonazepam prescribed instead of clorazepate! I really hope it will help spikes