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Hi @Sonia554, I was not doing too badly over the past few days until today, when my tinnitus went back up to insane levels of loudness and the burning scalp sensation returned. I think it happened because yesterday I exposed myself to too much noise, thinking I could handle it if I just did not...

Sorry to hear that it happened after you took a shower. For me, being exposed to too much general noise for hours at a time is a real problem, and it gives me spikes that can last for days.

This makes sense to me. I have fibromyalgia, which means I experience phantom pain sensations in various nerves that come and go completely outside of my control. I have had sciatica, plantar fasciitis, pudendal neuralgia, trigeminal neuralgia, and migraines. These nerve pains are excruciating...

I’m also 5.5 months in. Mine is multi-tonal and reactive. I surround myself with nature sounds at a low level so it doesn’t aggravate the tinnitus. I don’t know how much hormones are playing a part in yours. My tinnitus disappeared completely one night, and it turned out my HRT patch had fallen...

How are you now, @vilebubbles?

Thanks for taking the time to reply, this is all really helpful. Yes, I do keep thinking the tinnitus will get louder with more noise exposure. I’ll go slow and easy with the exposure and try to look at it over months rather than days. I’ll work on not getting too frustrated or angry at myself...

Just wondering how best to treat hyperacusis. I’ve had it quite severely for about five months now, along with bad reactive tinnitus. The tinnitus is very loud and I’m struggling to sleep. I’m scared to take medications in case they make things worse. I’ve had all the tests from ENT and...

I’m too scared to take anything in case it causes a flare-up. I do use a nasal spray, though, which is one of the few things that doesn’t set off my tinnitus.

This is where I’m at now, five months in. It’s hard to find any real silence because of how loud the tinnitus is, and because I react to the wind and rain noise, which are constant here in Scotland. On top of that, there are so many planes overhead and birds calling, and I react to all of it...

So, do you think Effexor was the reason it improved? I am scared to try any medication, since they can all make it worse.

Thank you for sharing those stories. They have been a huge help and are keeping me away from a dark place. I have hyperacusis and reactive tinnitus, which have been getting worse since they first appeared on April 20. It is helpful to know that others have been in a state as desperate as I am...

Hi delta784, just wondering how youre doing now. Im looking for some hope to get me through these bad times. My tinnitus is so extreme i just want to jump.off something high and die too. I know this would hurt my boyfriend and mum incredibly but i dont know what else to do. It is relentless...

Sorry to hear you’re struggling too. I’ve never tried Mirtazapine. I took 2 mg of Melatonin two nights ago and managed to get at least 4 hours of sleep. But last night, without it, I was back to only 2 hours again.

I hear you. I'm sorry to hear you took an overdose. I get how you feel. My reactive tinnitus is triggered by traffic noise, wind, bird calls, and aeroplanes flying overhead, and you're right, there's no escape or peace from it. I also experience a burning sensation on my scalp, and I struggle...

How are you doing now, @lostb1t? Mine has suddenly gotten much, much worse. It’s deafening now. I can’t sleep because of it, and I can’t function at all. I have a burning pain all over my scalp, and any stimulation, like watching a TV show or doing computer work, brings on a severe headache...

I’m also housebound now. I can’t believe how loud the world is. Even the wind and rain feel overwhelming. There are loads of airplanes flying over our house. I never noticed them before, but now they all sound incredibly loud, just like the birds. And now I’m hardly getting any sleep. I’m...

I feel that way, too. I know my depression is coming from the lack of sleep. I’ve gone over 48 hours without any rest. I’ve been prescribed Zopiclone, which does work, but only if I use it very occasionally. I’m thinking about starting Low Dose Naltrexone (LDN), but I’m really scared it will...

Hi Marx, just wondering how you are now. Did you take ldn and how did you get on. I have it in the fridge but I'm scared to take it. My tinnitus is very bad and I'm hardly sleeping at all

I was on Venlafaxine years ago, and it didn’t give me tinnitus. Withdrawing from it, however, was a terrible experience, but it still didn’t cause tinnitus. I stopped taking it because it wasn’t helping. Years later, after a pharmacogenetic test, I found out that I couldn’t metabolize it and...

I’m exactly the same: reactive tinnitus and hyperacusis. Mine started on April 20th. I just woke up one day with screaming tinnitus. I’m trying to manage by habituating and spending lots of time outside in nature, which seems to help, as long as it’s not too windy. Wind can make things worse...

I totally get what you’re going through. I’m in the same place right now. My brain won’t relax enough to let me sleep, so I’m getting by on about one hour a night. I have hyperacusis and reactive tinnitus. I just woke up on April 20th with screaming tinnitus in my left ear, which then spread...

Has anyone in this chat continued using LDN and experienced good results with it? I started at 0.5, and I am currently in a bad spike that has lasted for several hours. I am unsure whether to continue or not.