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Simply email them or phone them and ask about the dates- For further information, please contact the REGAIN study team: Telephone: 0203 108...

Someone would need to get on the trial. My hearing loss is mild, so I don't think they'd accept me and I don't need hearing aids. Someone else on...

Welcome to the REGAIN Patient Information page! This section is designed for patients who are interested in participating in the REGAIN trial. A...

Not in the UK. Can't believe they are allowed to advertise something which is at most a placebo effect.

They possibly have left over stock. But, only 1,500 people were taking it because of the risks involved. So that's why I'm guessing left over stock.

It is such a terrible condition and trust me, I've had it seriously bad and had the same dark thoughts as you...But I took trobalt and it worked...

I retracted that, as it was temporary. It lowered it however. I still have tinnitus, just not 10/10 with hyperacusis. But as I will say, I got...

I swear I'd be remembered for trobalt forever lol

This isn't a trial for tinnitus though?

I've tried both and it's not like trobalt. Won't give you visual snow though.

Indeed I do. Sodium Valproate can be useful as it increase GABA in the brain, it also works on the KV2.7 potassium channels and some people have...

That's just to increase GABA in the brain to help with the withdrawal, but lyrica has it own withdrawal symptoms.

My Doctor told me to wait 3 months to get a referral to an ENT and all they did was give me an hearing test. Wish I got treatment like steroids or...

That's odd because lyrica increased my tinnitus. Well, just watch out wouldn't want you having worse tinnitus. It's great though you're have good...

It's the timing of the neurons we need to fix, which is quite difficult at the moment as we have no available potassium channel activator...

Interesting as I have a post already on this matter....

Not from what I remember and I was on the highest dose, however lyrica increased my tinnitus

Gabapentin will help penetrate GABA medication. In my opinion, you have to look at the withdrawal symptoms which include tinnitus.

I feel really sorry, I take it they did an carotid IMT test too? Yeah, you'd be stuck on blood pressure med from what I'm reading.

Oh, sorry never read that part. She should go to hospital asap.

Of course more people are getting tinnitus, but there's no awareness of it really. Like on headphones, just says loud volumes may cause hearing...

I wouldn't have an MRI unless you have a tumor, as it can cause hearing loss, which in turn can worsen tinnitus. I have first hand experience in...

I wouldn't fall for snake oil. No herbal treatment has helped with my tinnitus and I've taken a lot of supplements in my lifetime. I wish it could...

First of all, thank you for your service. Right, I see people doing mindfulness as a method of treating of habituation to tinnitus and gaining...

Cheers Steve for doing all this legwork for us, truly a legend. Admire all the work you do for us <3

Really? Because most GPs in Bath have no clue how to deal or are not educated in tinnitus, maybe she should get them all together and do a lecture.

If the Prime Minister or Boris Johnson had tinnitus, heck even Jeremy Corbyn you can bet your ass they'd be a substantial funding towards a cure.....

The only thing that truly lowered my tinnitus was trobalt, but it's dangerous and can cause Visual snow. Drug trials take longer than 3 years,...

Trust me, they say that a cure will be out every 5 years, doesn't happen sadly. It's to instill hope, to those people who have it severe. So they...

She's such a lovely person and am glad she's a manager now and I'm sure she'll do a fantastic job Best wishes Danny Boy

Yes, I understand that... However, I would be willing to do the trial, but honestly, it'll be beneficial if they knew the medication has potential...

Interesting, so there's no exclusion criteria if you have tinnitus?

Hm...We'll see the results of the trial and who knows it could work. We won't actually know until some actual clinical results come out. Best to...

Unfortunately, most multi-vitamins aren't absorbed by the body as they aren't that bioavailable. They typically aren't absorbed by the body and...

What gabapentin? It's quite easy to get, just show them the study on its effects on tinnitus. Also, if you have GAD they'd definitely give it to...

Ah, are you referring to this study? https://www.ncbi.nlm.nih.gov/pubmed/28393057 "Iran J Otorhinolaryngol. 2017 Mar;29(91):95-100. Short-Term...

For trobalt. There isn't really a substitute at the moment, but there are other medications which are targeting the potassium channels,...

Trobalt doesn't exist anymore. Can't believe you've forgotten about it, it was the talk of the town for so long on here.

Lyrica actually made my tinnitus worse, even whilst I was taking trobalt. However, as soon as I changed over to gabapentin+trobalt I had a massive...

Thanks @glynis. May 2018 bring you joy and prosperity.

Happy belated New Year everyone! Hope 2018 is fabulous ^^.

Trobalt definitely worked, but had an higher affinity towards GABA vs the Potassium channels. Plus the side-effects were extreme! I'd warn anyone...

That's from their website. "ION CHANNEL BIOLOGY Pursuing Novel Drug Treatments Ion channels, proteins that regulate the excitability of cells,...

Yes, trobalt correct.

Hm, so maybe a combination of KV3.1 and 3.2 could be the answer. Also, I still believe the medication has the potential to treat tinnitus, even...

I have no clue, as I couldn't find any information which channels they are going to use. But their original video mentions KV7.2 and 3. Website...

A hearing test from an ENT won't do much, as there can be hidden hearing loss. Tinnitus has been proven to be hyperactive neurons, from mice...

I was up to 4,000 a day. Side-effects- sleepiness and weakness.

Although the mechanism of action of valproate is not fully understood, traditionally, its anticonvulsant effect has been attributed to the...

I only take it in emergencies.

Progress Report Progress Report Date: Feb 11, 2017 Current Retigabine Dosage: 0-400 Current Side Effects: Visual snow, floaters Current...

I would take trobalt at your own risk, say a last line drug. It caused me to get Visual snow. I thought they were floaters, but sadly they...

Feverfew is fantastic for migraines and been scientifically proven to help. Great stuff.

For anyone interested in how saffron works, well here it is- "Safranal also attenuated the acute experimental absence seizures which was...