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@3mmalee, I take Baclofen. It’s hard to tell if it helps with my MEM or not since it comes and goes but it does help with my muscle spasms outside...
@3mmalee, I take Tegretol and muscle relaxers but they were prescribed before my recent flare of MEM. I also take marijuana pills and that helps...
@3mmalee, I take muscle relaxers for my spasms in my outer ear, it seems to work. Maybe you can find a doctor that can prescribe you some or even...
Does anyone here take anticonvulsants for MEM? Back when I was first dx'd with MEM, I was told I can take anticonvulsants. At that time I...
@sdotosull, I did in the past. I went to a doctor in Philadelphia but since mine is caused by MS I don’t think surgery would help me. How about...
Hello @3mmalee, like you, I suffer from different spasms in my ears. It started in one ear and moved to the other. I also suffer from eye twitches...
Hey everyone. I haven’t been here in years but like you, I suffer from MEM. It started back in 2015 and it was so bad I was suicidal at one point....
Hello everyone. I figured I'd stop by and give an update. My MEM got much better for a period of about two years (I still got the daily thumps...
@Mojo were you able to find a doctor to inject you with botox?
@japongus my ENT diagnosed me with myoclonus you need to find a neuro-otologist they are more familiar with this condition. I found a doctor who...
I think we just saw a perfect example of why he wants to leave this negativity behind him. I wish you well and hopefully you wont have to come...
@Amy Cutler loke you i also have thyroid issues (graves disease) and my goiter is exactly like yours bigger on the right side. My right ear is...
@japongus what are your symptoms? I have myoclonus however it was diagnosed based on symptoms because the doctor cant see the muscles unless they...
@Beste according to ENT i dont have hearing loss my test results were perfect. My T started on left ear then moved to both ears same sound abd...
Maybe you can get maskers with cricket sounds. My t can sometimes go away w certain noises the tv makes its weird.
@Nowhearthis i will def ask her all the questions and explore my options but its always good to hear from someone whos had the surgery done after...
@Nowhearthis did they have to cut your eardrum or did they go in thru the nose? I dont know which option is less risky.
@AnxiousJon so did you figure out if it was the veli palitini? I wish there was an easy way to find out which muscle is the culplrit. What does...
@untamed wolf if its one thing ive learned the hard way is that ENTs are clueless when it comes to tinnitus they will say anything to get u out of...
ENT is wrong tmj can cause tinnitus.
@Telis yours sounds more like tts which usually happene when you have H and its different to MEM.
@PaulBe are you saying you would pick TRT over surgery? Im not sure TRT would help for me its impossible to ignore a feeling and extreme pain in...
@AnxiousJon ive never heard of a third muscle in the middle ear whats the name of it? What do your spasms sound like?
@Michael J. do you still come to this site? There are a few people here who had the surgery not sure if they are in the UK tho but wouldn't hurt...
@Nowhearthis did you have tinnitus prior to the surgery? Are you in the USA? I found a doctor in Philadelphia who specializes in this type of...
@Mike L it would have to be a very quiet island!
@glynis im not really afraid of the surgery I'm scared that it won't bring me much needed relief. Glad your son is doing okay.
@Nowhearthis mine came back full force espisodes lasting 12 hours or more making my ear and face super tight painful and sending my facial muscles...
Have you found relief for this horrible condition? Mine has been going on for almost 2 years. It got better for a few weeks and now it's back full...
@Nowhearthis if the muscles were cut how come you still feel movement? My biggest fear is to have the surgery n the spasms not going away. Did...
@Nowhearthis did the surgery stop the mem? I've had mem for close to 2 years now and it has gotten worse I don't know how much more of this I can...
@uae96 glad you had fun!!! Don't let tinnitus control you! Pictures look great thanks for sharing :)
@geg1992 I think you're always worrying too much, I understand tinnitus can be very stressful but if the diarrhea medication didn't cause you a...
@PoodleChick sorry to hear you're having a hard time with your ears. Like you I also have thumping in my ears especially after yawning or a...
Wow that's a long time I'm hoping mine goes away soon :(.
Unfortunately I think about it daily hard to ignore when you can feel it.
@truesilence sorry that you're having such a rough time but if you hear a clicking sound it's most likely stapedial myoclonus. You can goggle it...
@Pat Seguin http://lmgtfy.com/?q=bppv
@Erin0830 thanks for the kind words I really hope it goes away for all of us!!
@Erin0830 the first day it lasted 15 mins the next day about 10 hours it used to happen once a week then twice a week and now I get it daily :(.
@Erin0830 that is my biggest fear too!!! But mine is way worse because it can go for 15 mins (which is rare) to 12 hours or even days!! I hate...
@Erin0830 how long does your twitching usually last?
@Erin0830 I tried both forms of magnesium but experienced a little bit of relief with the oxide, the bottle said it was for muscle and nerve...
@ridgew mine doesn't really feel like a vibration more like a "hiccup" inside my ear, very annoying and sometimes painful.
@ridgew how long have you had myoclonus? Is yours 24/7?
@Pat Seguin have you considered it being bppv?
@Erin0830 you aren't bothering me at all! I know how lonely it can be when I first joined here I felt like I was the only one with this problem....
@Erin0830 if you go to an ENT he should know what middle ear myoclonus is. I took magnesium oxide for a couple of months and saw a little...
@Erin0830 in my case is not TTS. I have middle ear myoclonus. The condition is very rare so don't expect much from doctors :(. The magnesium...
@Erin0830 I've researched the surgery option and is not an option for me at the moment. The chances of it working are 50/50 and I know people who...
@Erin0830 the doctor didn't mention ETD. Mine started out of nowhere too at first it felt like a moth was stuck in my ear and then it developed...
@Erin0830 mine sounds very similar to yours it happens when I yawn, burp, and stretching but it can also come by itself and it can last for a few...
@Erin0830 sorry to hear about your ear twitching, mine has been going in for almost 9 months. Unfortunately I still have it :( but it has gotten...
@mrdude1234 yes I have metal fillings since I was little but no root canals.
@mrdude1234 I've had cat scans, X-rays and blood work done all came back normal.
@mrdude1234 almost a year.
@mrdude1234 nope not anywhere close yet but I do have muscle spasms all over my body so maybe it's more complex.
I'm not a person who sweats a lot either but I love showering it's so relaxing!!!! I guess that means I have no natural oils in my body.
Mine too lol I had to turn an extra bedroom into a walk in closet :D
Any kind of shopping is awesome!!! Just beware it can be quite addicting, especially online shopping :)
