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  1. Ed209

    My Dearest Tinnitus Sufferers — I'm Torn Apart — I Want to End This Waking Nightmare

    I would love it to work for both hearing loss and tinnitus, why wouldn’t I? Some of the stuff I’m reading on here lately, though, is way out there to the point that we are leaving reality.
  2. Ed209

    My Dearest Tinnitus Sufferers — I'm Torn Apart — I Want to End This Waking Nightmare

    John, you cannot prove it’s efficacy for tinnitus with just 16 people. How many of the test subjects even have tinnitus? And where is this reported? Have Frequency said they will review the effect it has on tinnitus in this phase? They are primarily testing the safety. Whatever data they...
  3. Ed209

    My Dearest Tinnitus Sufferers — I'm Torn Apart — I Want to End This Waking Nightmare

    John, they won’t know what effect FX-322 will have on tinnitus in December. Remember we are a Tinnitus and hyperacusis forum. You are making huge leaps that the hearing loss they can recover, if they can, will convert into reducing tinnitus in the brain (after the maladaptive plasticity has...
  4. Ed209

    My Dearest Tinnitus Sufferers — I'm Torn Apart — I Want to End This Waking Nightmare

    ‘Frequency Therapeutics patent they have stated that their methods are going to also treat Meniere's disease and dizziness and vertigo. I have no clue how but it's in the patent and you can't just patent anything without some kind of evidence.’ ‘It is the ONLY thing in the universe right now...
  5. Ed209

    My Dearest Tinnitus Sufferers — I'm Torn Apart — I Want to End This Waking Nightmare

    You are being very black and white. You can’t say it’s the only one when there are other companies out there trying to restore lost hearing. You are spreading misinformation and artificially raising people’s expectations before we even know anything about its effect on tinnitus. It’s cool to be...
  6. Ed209

    My Dearest Tinnitus Sufferers — I'm Torn Apart — I Want to End This Waking Nightmare

    What about: Sensorion REGAIN Consortium Novartis Decibel Therapeutics Otomagnetics There are many more as well. These are all companies looking to restore hearing loss. We still don’t know what the outcome will be regarding tinnitus, and all I’m saying is it would be wise to wait and...
  7. Ed209

    My Dearest Tinnitus Sufferers — I'm Torn Apart — I Want to End This Waking Nightmare

    There is zero chance it is 6 months away. The safety data will be analysed at some point between, I’d guess, Jan-Mar, and then they will start phase II to further test its efficacy and prove the concept. I highly doubt they will mention tinnitus in their update. It just seems far too early to...
  8. Ed209

    My Dearest Tinnitus Sufferers — I'm Torn Apart — I Want to End This Waking Nightmare

    Bam, sorry dude, but I couldn’t quite make out what all those words were that started with f. You put a load of asterisks in there by mistake.
  9. Ed209

    My Dearest Tinnitus Sufferers — I'm Torn Apart — I Want to End This Waking Nightmare

    @Allan1967, listen to @billie48 because he has been through the worst kind of trauma any human can suffer, and if he can come through that, plus tinnitus, I’d listen to the man. His story will bring you to tears. He was also the very first person to speak to me when I was panicking, so I feel...
  10. Ed209

    My Dearest Tinnitus Sufferers — I'm Torn Apart — I Want to End This Waking Nightmare

    Allan, the early days of tinnitus getting louder are by far the hardest to deal with, and at the same time, there’s still every chance it’s temporary and may go back to baseline. Like you, I’ve had tinnitus for a long time. I was about 18/19 when I got it permanently, but in 2015 I went to lots...