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I don't want to hijack the original post. I'll just say that I've tested positive for SSB four out of four times over the course of 5 years. Anyways, it's not clear which disease I have; like I said, Sjogren's is the best guess, but it's not guaranteed.

Sjogren's syndrome is not the same as Sjogren-Larsson syndrome. As far as Sjogren's syndrome, the time to diagnosis from onset of symptoms averages over 4 years. Autoimmune diseases are often not the kind of thing you walk in and get a diagnosis.

This is a bit complicated and technically speaking, I don't have a diagnosis. But I've had classical autoimmune symptoms for 5 years now (long before I developed inner ear issues): bodily pain, neuropathy in my arms, legs, and back, GI problems, energy problems, and many more symptoms...

Whatever your opinion is on over/under protection, all that I ask is that you don't ignore data points that don't fit your narrative. The idea that the problem can't physically improve is ridiculous. My (severe) hyperacusis is caused by an autoimmune disease. For months, I tried sound therapy...