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  1. Cheza

    Retigabine (Trobalt, Potiga) — General Discussion

    Yay American healthcare! *sarcasm* Might as well take a flight to Spain and buy several months worth. It would save some $$$, plus you get to visit a beautiful country.
  2. Cheza

    Retigabine (Trobalt, Potiga) — General Discussion

    I get the same thing, that the T will lower as I get closer to sleep, especially if I'm envisioning some type of interesting scene in my mind, and particularly if I'm imagining participation in the scene. If I so much as give a fleeting thought to the T, though, it comes back as strong as it...
  3. Cheza

    Retigabine (Trobalt, Potiga) — General Discussion

    Christian, please try everything you can before taking such a drastic step. Try every drug for epilepsy, try every drug for attention deficit disorder, try every drug for narcolepsy, try every drug for Alzheimer's. Maybe start with the drug(s) for Alzheimer's first. Excerpt: Experimental...
  4. Cheza

    Retigabine (Trobalt, Potiga) — General Discussion

    Statistically speaking, there aren't that many med mal lawsuits in the U.S., and the greatest number of them are in OB/GYN, followed by general surgeons. When it comes to prescribing drugs off-label, generally speaking it's rare for patients to sue their physician; instead, they sue the drug...
  5. Cheza

    Retigabine (Trobalt, Potiga) — General Discussion

    Good luck, Geo, keeping my fingers crossed for you, hoping you get some relief and peace.
  6. Cheza

    Retigabine (Trobalt, Potiga) — General Discussion

    Your questions are answered in various places on this retigabine thread. Please read the pinned retigabine threads on the Treatment forum. They're the first two listed. The second pinned subject is User Experiences. It will take you a long time to read through the regitgabine thread and the...
  7. Cheza

    Retigabine (Trobalt, Potiga) — General Discussion

    That's really good news. I think it goes to show that retigabine is like rolling the dice. We don't know if we're going to win or lose when taking this drug. Could you share with us what medical examination or tests you had before beginning retigabine, and what medical tests you have had...
  8. Cheza

    Retigabine (Trobalt, Potiga) — General Discussion

    Yeah, like a 3 cent blister pack, if indeed it is only 3 cents once it makes its way through the supply chain, plus the package insert, salespeople, marketing if any, recouping cost of research, attorneys for patent protection, in-house counsel for liability, et cetera, et cetera, ad nauseam...
  9. Cheza

    Retigabine (Trobalt, Potiga) — General Discussion

    Packaging, overhead/accounting, demand and supply, formularies. Makes me wonder, though, what the actual cost to manufacture retigabine is, and just how much markup Big Pharma is sticking to people who have the misfortune to need this drug.
  10. Cheza

    Retigabine (Trobalt, Potiga) — General Discussion

    Believe it. We get the least benefit for the most cost. It's all about money here: Big Ag, Big Oil, Big Pharma I would add another one: Big Insurance "The United States ranks dead last in the quality of its health-care system when compared with 10 other western, industrialized nations, the...
  11. Cheza

    Retigabine (Trobalt, Potiga) — General Discussion

    You have shown unbelievable courage, Christian. I understand the desperation behind your decision, but still I wish you could find a reason to keep going until a cure or relief is found. Tinnitus is like a beast within our own bodies, waging war against us. In that sense, we are prisoners...
  12. Cheza

    Retigabine (Trobalt, Potiga) — General Discussion

    @dan tried it and the drug caused him to have severe heart issues. He had to discontinue the drug, which is a real shame because his T is catastrophic level :(
  13. Cheza

    Retigabine (Trobalt, Potiga) — General Discussion

    I know you understand. I remember reading your initial posts. You worried a lot of the members of this forum, but they were giving you good feedback and support. I'm truly glad you found relief. :)
  14. Cheza

    Retigabine (Trobalt, Potiga) — General Discussion

    @Danny Boy ... Right, I'm familiar with the discussions on TT regarding Picamilon as it relates to potentially helping to treat tinnitus. To my disappointment, I don't think anyone on this forum was recommending it. The Examiner article points to the combo of GABA with nitric oxide. I did a...
  15. Cheza

    Retigabine (Trobalt, Potiga) — General Discussion

    My comments were in reference to helping people sleep. I'm guessing you didn't read the reviews. Most of those people who are better able to sleep because of GABA supplements don't even know what the BBB is, but it's working for them. One of the foremost respected sites for supplement...
  16. Cheza

    Retigabine (Trobalt, Potiga) — General Discussion

    @Danny Boy I had a lot of problems sleeping for the first 8 months. One particularly bad night, I remembered that the GABA I had in my cabinet was highly rated by a lot of Amazon reviewers as being very helpful for insomnia. I had been taking it during the day and didn't notice improvement...
  17. Cheza

    Retigabine (Trobalt, Potiga) — General Discussion

    @Danny Boy is it physically addictive or psychologically addictive? What would you do to overcome your insomnia if you didn't have access to Trobalt?