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  1. TheFriendlyGhost

    Severe Noxacusis (Pain Hyperacusis) — Feels Like My Life Is Over

    Hi, Thanks for checking in. So sorry to hear you also suffer from TTTS and hyperacusis. 157 dB sounds incredibly loud. Unfortunately, my condition has not improved. I live quietly and wear earmuffs most of my waking hours. but I also don't live alone, so it's not possible to avoid all noise. I...
  2. TheFriendlyGhost

    Severe Noxacusis (Pain Hyperacusis) — Feels Like My Life Is Over

    So glad to hear about your great improvement with this condition. Sounds almost too good to be true. Thanks for sharing your success!
  3. TheFriendlyGhost

    Severe Noxacusis (Pain Hyperacusis) — Feels Like My Life Is Over

    Glad to hear that CBT is helping you. That gives me some hope. Could you please elaborate on how you think CBT has helped you? Less anxiety? Easier to handle the pain? Or has the pain even gotten better as a result of CBT? I'm curious.
  4. TheFriendlyGhost

    Severe Noxacusis (Pain Hyperacusis) — Feels Like My Life Is Over

    I appreciate your reply. Congratulations on finding a way to live with this horrible condition. The thing is, in the beginning with this condition, I had this approach. I told myself that noise is not harmful and what you can read on the internet about hyperacusis is that you should expose...
  5. TheFriendlyGhost

    Severe Noxacusis (Pain Hyperacusis) — Feels Like My Life Is Over

    Yes. I have delayed pain. I agree with everything you said. I think it's impossible for a normal person to imagine what it's like to live with this condition. It really is hell on earth. I haven't ruled out that sound therapy can help, but when you even feel pain in silence, I doubt it helps...
  6. TheFriendlyGhost

    Severe Noxacusis (Pain Hyperacusis) — Feels Like My Life Is Over

    How many of you with moderate/severe noxacusis have TTTS? I have noticed that when my TTTS is worse, I experience more of one type of pain (I have 3-4 different types of pain). The pain could simply be because I was exposed to too loud noise (in the sense that TTTS has nothing to do with the...
  7. TheFriendlyGhost

    Severe Noxacusis (Pain Hyperacusis) — Feels Like My Life Is Over

    I am glad to hear that your condition has improved. That gives me some hope. I will take your advice and listen to my body.
  8. TheFriendlyGhost

    Severe Noxacusis (Pain Hyperacusis) — Feels Like My Life Is Over

    Could not say it better myself. We know far too little about this condition.
  9. TheFriendlyGhost

    Severe Noxacusis (Pain Hyperacusis) — Feels Like My Life Is Over

    I am glad to hear that your condition has improved. Well, I don't know about your situation but I'm sure that my pain is caused by noise because I can feel the stabbing pain in my ear as I hear noise, and then there's a delayed burning pain. I've had severe noxacusis since January. I tried to...
  10. TheFriendlyGhost

    Severe Noxacusis (Pain Hyperacusis) — Feels Like My Life Is Over

    Update after my ENT visit: It went as expected. This is what the ENT told me: My hearing test showed no hearing loss. There is no drug that can help with my pain. Everyday sounds are no more harmful to me than a normal person. Using hearing protection will only make my condition worse. I will...
  11. TheFriendlyGhost

    Severe Noxacusis (Pain Hyperacusis) — Feels Like My Life Is Over

    Hi @Brian Newman, I asked if it is possible to skip the hearing test, but according to the ENTs, it is necessary for me to perform a hearing test. How much do you think a hearing test could hurt me in this situation?
  12. TheFriendlyGhost

    Severe Noxacusis (Pain Hyperacusis) — Feels Like My Life Is Over

    Thanks for your reply. Feels good to know I'm not alone with this condition. I really hope for an improvement over time. I would be happy if I can just leave the house with earplugs without pain and to be able to talk without pain. When I have my earmuffs on, I slide on the floor rather than...
  13. TheFriendlyGhost

    Severe Noxacusis (Pain Hyperacusis) — Feels Like My Life Is Over

    @Brian Newman, thanks for your reply. I'm sorry to hear about your situation. I agree with you, this is one of the worst conditions you could ever get. I've been thinking about trying to avoid the hearing test, but can a visit to the ENT really be that dangerous? I have lived in the hope that...
  14. TheFriendlyGhost

    Severe Noxacusis (Pain Hyperacusis) — Feels Like My Life Is Over

    Hi, I recently developed severe noxacusis. Looking for support and advice. Here is my story: For about 10 years, I have had problems with crackling in my ears when I swallow or yawn. Every time I swallow or yawn, my ears crackle. In November 2018, I woke up one day with tinnitus after...