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I really don't know. I've been told that my theory is not likely. I was having some serious sneezing fits for months. I'd have loud, forceful sneezes about 30 times before even arriving at work, and then about another 30 by noon. Loud and putting lots of pressure in my ears. One morning, I...

welcome, @Elad!

I'm much like Teri. My balance issues are mild, can still go about my daily life, symptoms are H, T, fluctuating hearing loss, and then balance and fullness (in that order).

thank you! yours too!

My new avatar - my cutie pie! I'm doing okay. Got my cast off yesterday. Still non-weight bearing, but at least I can wash my foot!!

Broke my foot. This trip is just awesome!

well, guess who fell down last night, totally spraining her ankle?! I iced it all night, but woke because my bed got soaked. been up since about 3am. This trip is fan-diddly-tastic! lol

I'm managing. at times I feel like 'wth!!' and other times I feel just fine.

@Mad maggot, I'm not offended. :) I'm at a conference in Vegas. Thought I was going to pass out in line at hotel registration. Ugh... I'm doing better today though.

I don't think it was due to an ear infection. I was having hearing problems and got checked for an infection or perforated eardrum. I had neither. I question your claim that it's a minority of people that don't carry the heroes virus. I believe it is pretty split down the middle. 50/50. So...

Geez. I understand you carry herpes for life!! But you DONT carry it for life if you've never had it!! What about those people who have Menieres and you are saying it's not Menieres but it's a herpes virus??

Well mine didn't. Just used the term Menieres. But I do hear that the often use interchangably.

Yup. They do!

I don't see how that questions the existence of Menieres.

exactly. If a doc is LOOKING in your ear and says there's no fluid, he's talking about a different issue, totally unrelated to Meniere's. We don't have ear infections, fluid blockage, or anything else that can be seen on an otoscope.

Nucleo, what of the ones who have NEVER had any herpes outbreak? There appears to be no more herpes sufferers in the Meniere's community than in general population. So, all of those non-Herpes folks -- what about them? Teri, there's a difference between having fluid in the ears that is...

and someone carries this virus for 20 years? I don't buy it. I think in some cases, perhaps. I've seen (in a FB support group) that polled the folks and it was about the same percentage of people who have ever had a herpes outbreak AND has Meniere's is about the same percentage in the general...

I had an ENT tell me I only had tinnitus. Doesn't make it true. Then I went to a highly specialized hospital in Boston (Mass Eye and Ear Infirmary). I trust what they say more than the ENT I saw. At MEEi, I saw a neurotologist and an otological. I also saw a neurologist at Newton-Wellesley. The...

Menieres is dx'ed through symptoms when other dx are ruled out. That doesn't mean it isn't a real dx. Ménière's can only be confirmed upon autopsy. Yes, some get mis-dx'ed.

No. I went to a Sox game without ear plugs. Did fine until the woman next to my so. Was talking VERY loud and high pitched. Left with a headache. I could be wrong about the cause though.

I didn't welcome you when I first saw your post, @Dutchman. My apologies. I'm having a go lately. I'm on day 4 of feeling like dog poo. Just a low-level crappy feeling (relatively speaking). Enough to zap my energy, have problems concentrating, very irritable. I feel like I've gone on a...

If they had said "too bad, we ain't changing it!" I would have given my notice. and I LOVE my job. but they are sympathetic to my situation. and "normal hearing" people were complaining.

I never thought that dB level would bother me, but it did. It was really stressing me a lot. I'm also not used to that kind of stress. Trouble having a conversation, someone in my office and I couldn't wait for her to STOP TALKING (and I've NEVER had that feeling before with her in my...

ugh... I have asked my boss if they could turn down the sound system in our offices. Starting Friday, they turned them up and it's making me sick. The sound system is a masking sound for privacy in the offices. You aren't supposed to really notice them, but I'm not the only one complaining...

we have the feature available on my TV, but too many errors and out of sync.

No I can't really hear it. I tried the closed caption but it wasn't in sync with the video. And there were a ton of mistakes in the words. I can make out some words but miss a lot. My hearing in the left is normal (but with some T) and the right is garbled and bothersome.

my H has been heightened lately. I had a headache for 2 days, and figured the H would let up after the headache left. Not yet. I'm watching the TV with the volume at 3 and my right ear sounds like a wind tunnel. I hope this isn't my new norm.

the anti-viral she took was oral... but that's about all I know. I'll see if I can find some answers.

she didn't say.

I'm flying to FL again. My mom's heart surgery (an ablation). Last flights to & from we sat in the front. That's because I had Aaron with me (he has disabilities, so they like to put him up front on Spirit Air. ) I'll be flying alone and only open seats are in the back. Feltotion sickness the...

^ and then it's not Meniere's, but a temporary side effect of allergies. ;)

So says one person on the Internet. People are mis-diagnosed all the time. My son went to a world-renowned ophthalmologist who told me he had LCA (Lebers congenital amaurosis). I asked at every visit "you sure it's not ROP?? (Retinopathy of prematurity)". Nope. LCA. Then when he was 5 1/2 yo...

Thank you!

You too!! I'm down in Florida with my mom, sister, two nieces, and brother in law! Brought one of my sons with me too. <3 Oh, and today's my birthday!

I think I will just have to expect motion sickness. Not too bad, luckily. Other than that, doing okay. Glad to hear you're hanging in there too!

I'm flying on Thursday - wish me luck!!

tastes like soap? are you washing it with soap? lol can you try letting it sit in mouth wash for a little bit? at least it will have a familiar minty taste, better than soap!

good luck with that. I suspect I know why my hydrops started, but there's no proof that the incident caused it and it wasn't some other incident. What does it matter?? It happened. No test is out there that says the incident is or isn't the culprit or whether it was a separate incident. No...

I've had an MRI and they are reviewed by radiologists in the US (not that way in your country?) My neurotologist also reviewed my MRIs, as well as CT scans.

* hydrops only confirmed on autopsy. * still no known reason for hydrops. therefore, "idiopathic" is the appropriate medical term.

"Idiopathic" Ménière's is not an urban myth. It just means cause is unknown. And since we don't know the cause, hard to say "unknown" is a myth. But as far as your animal theory-- I'm not an outdoorsy person and haven't been on a farm or to a petting zoo. And I hadn't even felt lousy. My H...

maybe how your ear parts are made up from the beginning? propensity for the problems? I think if you are born with particular parts that are weaker (and it runs in the family), and then you have some kind of insult to the ear parts, then that's where it comes from. that's scientific-speak. lol

I don't know who you are asking, but my answers: I don't know. and no.

if it's not the cause, why is it progressive? I have not had any bacterial infections in my Meniere's ear. At least not in the last decade or two.

Well technically there is no such thing as "sodium free", as its in many produce. Watch ALL packaged foods. Drop that bag of chips )potato crisps!) and make air-popped popcorn and add the salt yourself, sparingly. MUCH less sodium and still get that salt fix.

I think that the onset is different with everyone too. I have very mild symptoms and progression seems to be very slow with me. Doc said she believes it's early stages. So, didn't come on suddenly with me, except the hyperacusis (which is now controlled, quite well in fact). so far, just...

I got the flu shot - zero problems with my Meniere's. and, for the first time, my arm wasn't aching at all either! nothing! :)

I don't get the V either. Early stages of Ménière's perhaps? From what I have heard people have it in varying degrees and everyone is different. For some, vestibular problems manifests as "balance issues", others with full blown V.

hello, ffJimmy. That's a whole lotta chuck of change you dropped for your "cure". I was also recently dx'ed after lots of testing, and I am in a very quiet period right now. Just because you are 80% better, does not mean you are cured of Meniere's. This disease goes through cycles - waxing...

for me it was hyperacusis, then balance problems (no V), then hearing loss & distorted hearing (not such which of the two came first).

Looks like a page from Bill Belichik's playbook! (American football coach)

I'm a good doobie... try my best to keep doc's orders. Haven't quite got the caffeine down, or the sodium. I've been through a lot of stress though, and was glad to at least get the alcohol down. I was living with my not-yet-ex (different parts of the house) had a big Eagle Court of Honor for...

don't forget to add the hearing loss! the ball under the neck. I think it was supposed to releive the tension at the base of the skull. My first class, I did what I was told. Not again. I have a little bit of ear pain now and again. Nothing severe. I've had fullness, but not for quite...

I asked about the possibility of it being migraine w/o pain instead of Meniere's, since i'm having all sorts of vision issues. She said it could be I have something else in addition to the Meniere's, but that she feels certain it's Meniere's. I'm having more ear problems. Still not bad, but...

Michael, my doc at MEEI said don't need vertigo. balance problems, but not necessarily vertigo.

glad you decided to join us, aylp! :)

awesome!

I change my perspective. It's helped me survive the madness that is my life! LOL This goes way way way back. Back to my childhood. I know that sounds cliche, but my life story is nuts. Should be on Oprah. Or Springer! HA!

Thanks for clarifying, @MichaelM! I'm glad I spoke up because I thought you were talking about the folks in this thread. Now that I know you weren't, I feel better about that. I do know there are a lot of people who suffer from very loud T. I'm fortunate to not be one of them. I don't...

I'm doing it mainly for flexibility, but I figured balance, posture, flexibility, strengthening... it's all good! I have really tight muscles. Something I've had to on for years and have neglected after I tore my soleus (calf muscle) during a race. I dropped out of running almost completely...