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Who cares until they come up with a drug to help us? What is the point of the conversation?

He is! In Israel they have developed a cure or recovery in ALS (which S. Hawking has) using stem cells. This is since 2012 and there are now ongoing clinical trials together with USA. He may just have had it too long but no doubt he is very aware of it...

actually they have cured MS with stem cell treatment as has blindness.... http://www.dailymail.co.uk/news/article-2974675/MS-stem-cell-treatment-hailed-miraculous-patients-make-dramatic-recovery.html#comments and...

Danny Boy is not cured.

Not only the Nazis but the Americans have also had their fair share of experimenting on people including prisoners......and even quite recently too and even en masse.....frightening what goes on in the world.....

58 people were trialled according to Autifony - none of know how many got placebo or the real drug. Maybe 57 got placebo or 57 got the real drug.....extreme examples yes but possible as the staff at the clinics did not know either......... If you mean 50 percent of 58 people got the real drug...

Thought 58 people were trialled?

Why would you want to take this for T? It does not work! If it did then the trial in UK would still be going on. Why do you think it was stopped? It did not work efficiently and yet you are still hopeful to take it for T? Why?

Don't forget to read the professors literature as he is counting the reads on that too.....plus like and share the fb post Not true Valerie! Face transplants, womb transplants, hand transplants, paralysed man walks using his thoughts only, ebola sorted...... One of our very own members here...

Okay so have liked it and shared it.... It says 42 likes and 1 share......we need to get 1000 of these likes/shares combined at least....come on people....read the literature but dont know how many reads it has.....

Markku please can you repost the facebook link for people to go and like and share as it is again lost back in the thread. If we can have the link at the top of this page or opening page or somewhere prominent please - i repeated it once but again so many posts it gets lost...I am sure if...

I think Michael please do not have a pop at ATEOS ....he has contributed a lot! Why cant we all click and share? If that is all it takes then why dont people do it ....if that is all it takes to get this progressing a bit then ATEOS is right - just do it please! Of course if you dont use fb then...

Sorry confused - why did you tell me that? Yes I know this? and?

Exactly there is research going on that we dont know about and will never know about cos the biotech company or the scientist will not get funding and the idea will never be trialed....the only reason we know about autifony is cos they secured the funding. So raising the funding is the key and...

I am repeating this so it doesnt get lost and forgotten in the thread - this is very important people so please can we do what ATEOS suggests and at the very least go to the fb page - dont post - click and share!! Sorry ATEOS for repeating this but I think it needs to keep getting highlighted...

I was under the impression that the Swedish government does not fund clinical trials whatsoever - am I wrong?

In the statement it said that it tested the results from 58 participants - thought there were supposed to be 150 participants? Aso I recall that @tomm who tried am 101 and trobalt (powder from china) said that the autifony had helped him the most!

What relief are they giving us Valerie? They are fine - we are not!

Yes valeri we are not allowed to say this but someone just made big bucks on the back of this.

Wonder if the real reason is because the hospital, one of the trial centres or more, has messed up and jeopardised the double blind trials. This fact could cause them to close down really fast....as there would be no value in continuing as the data results would have already been corrupted

Well done Preslys and yes please do contact Autifony and let them know! Very important stuff! It may only be an anecdote but there are many anecdotes on here including @Danny Boy whose T is also completely resolved like yours.... Did you have any hearing loss at all or not? thanks

@attheedgeofscience just curious as to how you chose the Trobalt team of people....I am aware of people who have been using Trobalt but have not been approached by you......so what did someone have to do to be a member of the research team? other than taking trobalt and reporting their...

I keep asking but not getting any answers. Please ATEOS how can we move forward. Perhaps now with this Autifony news going on please is there a way to get people to like the TT thing on FB or what is the new way forward? thanks

I liked the TT thing on fb ages ago and I have TT appear on my fb page.....

So moving forward ATEOS what is the solution now ?

I think the only answer is trobalt now..................or TRT and back to that!

So how come he got this email and Danny Boy phoned the hospitals and they said different stuff- sounds like a completely unprofessional lot to me................so ATEOS got a different reply.......I dont understand why David would get such a categoric reply stating that the drug had not been...

There was another person who also had some relief too...

And you intend to get this where? What is the point? Autifony WAS the new trobalt without side effects !!!!!!!!!!!

Yes I do because they were supposed to finish the trials in the summer but they carried on as they did not have enough trial people. That is why it was extended to end of the year..........are they cancelling the trials in USA? Not insane. Their inclusion process was strict and stringent but...

How insane is it that they just opened a new bristol site and had just started fresh recruitment......I wonder if it is because they did not have enough trial people. Does this mean that they are also cancelling their trials in USA too?

Well trobalt works...we know it does for a lot of people

You cant just cancel a double blind trial before all the data has been collated unless they have screwed up their double blind trials OR someone had a very nasty side effect potentially dangerous to life and health from the drug.......they have not had the full quota of trial people yet which is...

Why dont we wait till tomorrow and then we can find out exactly what is going on which is probably nothing and the trial continues......we cant find out anything on a sunday or weekend.....and I am shocked that a company would give out such highly confidential info to a person on the...

Yes agreed but I just read online that trials can be stopped early due to ''futility'' reasons..but it does seem odd though yes....best lets not speculate but wait.....

http://www.bbc.co.uk/news/health-22556736 Wonder if the below link helps to answer your question http://www.publications.parliament.uk/pa/cm200405/cmselect/cmhealth/42/4207.htm and this is what happens when things go wrong http://www.bbc.co.uk/news/health-22556736

Lady D posted on the TT board and so did the other person

How long did Lady D have it before she tried autifony? as she described an improvement with it plus another chap reported that he also benefitted with autifony - how long did he have it before the trial? Interesting to find out....

Good point!

This is a very good question indeed I have been told and also let to believe that autifony is for chronic t... and by the way chronic t - 18 months - it has already entered the brain....but trobalt works on people who have had it for a year or more even.......including 18 months and works on the...

How will anyone know? Some will say that it is working on the same principle of Autifony plus taking it earlier may help rather than waiting for autifony. Others can say that it alters the brain and may make autifony not efficient or so efficient. Just something to ponder but I fear there is no...

Just a thought but would taking trobalt perhaps change or damage the brain so that autifony drug wouldnt then be effectve ?

not that any of us know about but big reduction yes....for a certain period of time and then it came back....so looks like longer on drug and / or higher dosage.....

I am not in charge of autifony and dont decide the acceptance policy. It is well known that they are doing this for chronic t which is why they dont start till 6 months but they have to have cut off points or they will not be able to compare their results clearly.

trust me when i say that if phase 2 is good there will be a way to get hold of the drug way before then and anyway autifony are anticipating its use for everyone - chronic or acute

They are still recruiting as have not had enough trial people thru the doors so they have lengthened their trial time.

Chirs they said results etc mid 2016

no it is not - h is a separate problem

Phase 2

Why do you say that? How do you know it doesnt work or expected not to work? thanks

Yes i guess anyone can take it to try it out - but the side effects are scary

Firstly Trobalt has worked for many people. At least it has reduced the sound permanently. Secondly Trobalt works on KV7 and KV3 channels in the brain. Autifony works only on the KV3 channels. Hence less scatter gun approach and less side effects. That is it in a nutshell and hope it...

Strange but I had a different reply which I am not going to post here. But it was not as far dated as your replies I can assure you. So mid 2016 for results and then for UK people certainly they may be able to get some help. That is all I am liberty to say and will do no good to discuss argue or...

Think that I saw something a while back that said the longer a person has T then the longer he or she has to take autifony drug for remedial success.

Why dont you try and post the answer? If you are trusted you may get a trustworthy answer - if not then you will get the general stuff for the public consumption.

Have you ever tried discussing this with CEO of Autifony to check whether you are talking facts or tosh? Why dont you email him?

So your post is based on what knowledge?

What is the point is this comment? What is the point of this whole thread which has disintegrated into fruitless comments based on zilch....I totally agree with Nils.....please can we keep this thread for useful and practical knowledgeable posts or nothing at all otherwise this is no more than...

HI can you post the link please as I cannot find it.....may be helpful to others as well? Thanks ever so much Its okay thank you - just found it - here it is https://www.tinnitustalk.com/threads/autifony-phase-ii-trial-participants-experiences.8339/page-2

Hi Telis, This comment is not posted at you in particular. It is just because it was the easiest thing to do was oopy the latest comment on this thread. I have been reading through the last few pages and everyone just semms to be putting in posts that are somehow to me seemingly pointless. Now...