Greetings from Daniel Lion — Grateful for Tinnitus Talk

Discussion in 'Introduce Yourself' started by Daniel Lion, Dec 13, 2018.

    1. Daniel Lion
      Ape-like

      Daniel Lion Member Podcast Patron Benefactor Hall of Fame

      Location:
      SE Asia
      Tinnitus Since:
      2017
      Cause of Tinnitus:
      Noise trauma, hearing loss
      Hi, names Daniel. Been following this forum for a year now. Suffered noise trauma, and a huge amount of hearing loss, hyperacusis, and tinnitus. Stopped working, was a teacher, just couldn't do it. Hard times, do hope they get better.

      Wanted to say thank you to the forum, and the people running it.

      I don't have a GP, or ENT, there are none here in Laos. This forum, and my own research helps me to make better choices and gives me more hope than the dodgy hospitals and docs I have seen over here.

      My noise trauma, hearing loss, subsequent tinnitus and hyperacusis has changed my life. I have children, this forces me to be strong, ........ the pain is hard, sleep etc. .... thanks for being there everyone.

      I hope to contribute and help this organization....very grateful indeed. Thanks.
       
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    2. Pamela Anderson

      Pamela Anderson Member

      Tinnitus Since:
      2009
      Cause of Tinnitus:
      Unknown
      I've had Tinnitus for 9 LONG years. I'm not even sure where it came from. I picked up my new hearing aids/Tinnitus Maskers today. They do make a difference.
       
    3. Contrast

      Contrast Member Benefactor Hall of Fame

      Location:
      Retrovile
      Tinnitus Since:
      late 2017
      Cause of Tinnitus:
      injury from noxious noise
      Hello, I am terribly sorry about what you are experiencing, please make yourself at home on the forum as we wait for real treatments for these awful condition.

      The best advice I have is to wait for a clinical trial that is going to regenerate cochlear hair cells to restore hearing.

      Treating hearing loss should also treat tinnitus based on the model of tinnitus being the brain compensating for a loss of hearing and maybe hyperacusis (but no one knows for sure since pathologies of hyperacusis are not clear and it is suspected there are atleast two types of hyperacusis) So as more research emerges we will know more about hyperacusis.


      https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4208401/
      (model of tinnitus and how it relates to hearing loss)
      More about hearing regeneration trial happening now


      http://www.frequencytx.com/
      https://www.tinnitustalk.com/threads/frequency-therapeutics-—-hearing-loss-regeneration.18889/
      https://clinicaltrials.gov/ct2/show/NCT03616223
      Langer Karp Breakthrough Hearing





      Other good news just for tinnitus is Neuromod and University of Michigan making brain stimulation devices to target tinnitus (and alleged neuromod claims it helps a certain type of hyperacusis) but once again research on hyperacusis is still young.




      University of Michigan Signal timing
      https://news.umich.edu/specially-ti...toms-in-test-aimed-at-condition-s-root-cause/
      https://www.tinnitustalk.com/threads/new-university-of-michigan-tinnitus-discovery-—-signal-timing.2805/


      Neuromod Mute Button

      https://www.tinnitustalk.com/threads/mutebutton.124/page-48
      https://www.neuromoddevices.com/

      There are many that claim sound therapy cures hyperacusis but it is inconsistent, for example there are two forms of hyperacusis, even if your hyperacusis is gone you still have tinnitus and hearing loss that can only be addressed by pathetic hearing aids. The hearing aid industry is predatory and growing at a very fast place taking advantage of the fact that Otological science has been lagging horrendously, they are literally selling microphones/amplifies/earbuds as medical devices that don't address hearing loss in background, hyperacusis(s) and if you have reactive tinnitus hearing aids will only make your life more of a hell.


      Let's hope the best for future treatment and not lose hope, don't bother wasting money on ENT's.
       
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    4. Contrast

      Contrast Member Benefactor Hall of Fame

      Location:
      Retrovile
      Tinnitus Since:
      late 2017
      Cause of Tinnitus:
      injury from noxious noise
      One question is your hyperacusis defined as one of the following

      Pain from noise (any form of swelling, burning, numbness, ache, sharpness)
      Loudness amplification of noise (sounds too loud but not painful)

      or both?
       
      • Good Question Good Question x 1

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