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Escalado

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Viewing thread Voluntary Assisted Dying / Euthanasia for Tinnitus Patients (Pegasos Swiss Association, Switzerland)

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  • S
    I plan to keep posting even when/if I'm completely recovered. I want to counter the voices that jump onto a 16 yr old's post to tell them it's probably permanent after a week, or not to worry because surely there will be a cure in their lifetime, or that they've had high pitched screeching for 1000 years and it's never gotten better. None of that is compassionate and is untrue for most people and I cringe every time I see someone do it. Hope is important, especially for those of us still in the early stages. There's so much misinformation and dooms daying. I saw an analysis that said TinnitusTalk has more positive posts than negative, so that tells you how many people actually are out there improving. They aren't all languishing.
    S
    I did have my ears irrigated. As far as I could tell, it had no impact on my tinnitus. It did, however, open up my hearing. My right ear was pretty blocked, so sounds were amplified for about a week before my system adjusted. I was hearing sounds I hadn't realized I wasn't hearing before. I'm walking around wondering what that noise is and it's my arm brushing against my clothes. I don't regret doing it at all. I bought an ear camera so now I can look at my own ears and see if they're blocked.
    MindOverMatter
    Irrigation of ears is something you should avoid if you could @Escalado
    There are MANY people that have worsened a lot by it - and even left with hyperacusis after it. There are alternatives that can be done manually by a skilled ENT. Better safe than sorry in this matter.
    S
    I'm so glad to have connected with you and several others. Passing along some optimism to you has helped me, too. I used to barrage ChatGPT with questions and by the end, I was in full blown panic. It didn't help me at all. I feel much less alone having others to share experiences, progress and hope with and I hope I help others feel less alone.
    E
    I really cannot emphasize this enough. Please keep posting! Not just here but on places like reddit too. Your positivity has actually rubbed off on me. A post you recently made on here to a 16 yr old in high distress is a perfect example. So very well thought out, full of hope, caring & reasurance. I too, got a big lift from reading that !! As with the most recent link you shared, even a few years of enduring this can end in a positive outcome!
    S
    E
    This story offers so much hope, and really does help debunk this 6 month cut-off theory !! Thank you for sharing it. Honestly, your compassion and empathy is highly appreciated !!

    In one of your posts you said you had earwax removed earlier this year ? Did you have it irrigated ? I'm wondering which method would be safest as I have quite alot in my good ear. I'm getting increasingly concerned as the last thing I need is to make my situation any worse.

    Thank you, Sonia.
    S
    Believe me, I know how you feel. Mine isn't nearly as loud as it was in the beginning, but it still causes me a lot of anxiety. I alternate between "I'll be fine" and "My life is ruined" every other minute. The hardest part is not knowing what the future holds. I'd be fine if I knew for a fact it would resolve and a general timeline. I try to see each night as a new chance for healing and remember that most people do recover, regardless of age or cause, even if it takes awhile. I have recovery stories taped to my doors and walls. Each day is long, but hopefully one day soon this will just be a bad memory. Keep in mind it's still early days. Many, many people don't see the first signs of recovery until after Month 6. There's still time.
    S
    How are you doing?
    E
    I don't wish to be all doom & gloom Sonia, I really don't. But I've dropped into a pretty bad depression. I just can't see an escape from this hellhole right now. I'm going around in circles. Its not even particularly loud at the moment but its there, and that frightens me. I'm such a defeatist.

    How are you ?
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