Recent content by adpolandam

  1. adpolandam

    The Hyperacusis Wall of Remembrance

    I hope they will be happy on the other side and won't have to suffer.
  2. adpolandam

    it's not a given that you'll get worse. you could just as well keep it that way for years or get...

    it's not a given that you'll get worse. you could just as well keep it that way for years or get better. I'm keeping my fingers crossed
  3. adpolandam

    please take care of yourself♥️

    please take care of yourself♥️
  4. adpolandam

    Socializing with Tonic Tensor Tympani Syndrome (TTTS) — Any Activity Suggestions?

    I hope everyone finds their own way to cope with ear problems. Today I decided not to protect my hearing at a house party for my daughter’s first birthday. I was very scared, especially when a small dachshund started barking for no reason from another room where he was locked. The children were...
  5. adpolandam

    Persistent Ear Pressure and Cracking Sounds When Swallowing: Could It Be Tensor Tympani Syndrome (TTTS)?

    The eardrum, ear muscles and tendons, auditory ossicles, trigeminal nerve, cochlea, Eustachian tube, and sinuses all take a beating when it comes to noise, vibrations, and sudden pressure changes. And then there are the nerves at the end of the auditory pathway.
  6. adpolandam

    Socializing with Tonic Tensor Tympani Syndrome (TTTS) — Any Activity Suggestions?

    Sorry to butt in. It has been two years since my injury, and I feel that my middle ear — or rather the membrane — is in worse condition. It feels loose. The trigeminal nerve has been damaged because I feel pressure on the right side of my head — above the eye, below the eye, and around the ear...
  7. adpolandam

    Socializing with Tonic Tensor Tympani Syndrome (TTTS) — Any Activity Suggestions?

    Do you mean TTTS as a sharp, immediate pain that happens with sudden sounds, even if they are not necessarily loud, like the sensation of someone sticking a needle in your ear?
  8. adpolandam

    Severe Multi-Tonal, Reactive Tinnitus with TTTS and Noxacusis — Fast-Paced, Screeching Tones and Worsening Symptoms

    Each case is different. Personally, I avoid using protection when I am home alone, since I have control over the sounds in that environment.
  9. adpolandam

    Severe Multi-Tonal, Reactive Tinnitus with TTTS and Noxacusis — Fast-Paced, Screeching Tones and Worsening Symptoms

    Tinnitus does what it wants, when it wants. Protect your ears; they are as fragile as glass. Tomorrow will be a better day.
  10. adpolandam

    hope is the mother of fools

    hope is the mother of fools
  11. adpolandam

    I know you suffer every fucking day like many people here including me. A devastating disease...

    I know you suffer every fucking day like many people here including me. A devastating disease that you can't see. Zero help. We're stuck on our own. For me it's been 2 years. I only live for my daughter ♥️
  12. adpolandam

    I wish I had good news for you but I'm in trouble myself. Everything is falling apart, including...

    I wish I had good news for you but I'm in trouble myself. Everything is falling apart, including me. I wish I could get rid of at least this one ailment, this devil called tinnitus.
  13. adpolandam

    Hey. Nice to see you :) I don't feel well, I would say it's getting worse. One day we'll meet...

    Hey. Nice to see you :) I don't feel well, I would say it's getting worse. One day we'll meet, all the sufferers on the other side:) We'll have a big party. There'll be loud music, fireworks and screaming, and we won't care :)
  14. adpolandam

    I haven't put anything in my ear for two years. Even the therapies suggested by doctors that...

    I haven't put anything in my ear for two years. Even the therapies suggested by doctors that involve putting headphones in the ear are out of the question. Greetings to you.
  15. adpolandam

    Yesterday was my "good day". From the morning riding on 3 boiling kettles plus star wars in my ears

    Yesterday was my "good day". From the morning riding on 3 boiling kettles plus star wars in my ears