Hello Farnsworth Girl,
I would urge you to ask your ENT to evaluate you for Superior Semicircular Canal Dehiscence (SSCD), also known as Semicircular Canal Dehiscence Syndrome (SCDS). I was diagnosed last January. It's very rare — only the 5th ENT I saw was aware of it and knew how to diagnosis...
I was recently diagnosed with Superior Semicircular Canal Dehiscence, and I am interested in connecting with tinnitus patients whose cause is identified to be Meniere's, Lyme, diabetes, TMJ disorder, ototoxic medications (like chemotherapy), anxiety, inner ear disorders, and head injuries.
If...
My heart goes out to you. You are in the toughest stage right now. It does get better, so hang in there. A hypnotherapist who specializes in training the sub-conscience to regard the tinnitus as a benign body noise really helped me lift that film of grime. I would be happy to share her contact...
I highly recommend driving into Philly to see Dr. Eliades at Penn Medicine’s Perelman Center for Advanced Medicine. He got to the bottom of my pulsatile and non-pulsatile tinnitus.
Best wishes and big hugs,
Andrea
You are correct, and I don't take for granted that I finally found an answer. It took a while for me to find an ENT who truly listened and was well trained enough to know what to look for. Every time I heard "learn to live with it," I was devastated. It appears that your tinnitus began a year...
Thank you for your kind note. Yes, I feel fortunate to have the diagnosis. Knowing why can definitely help someone cope with such rattling symptoms.
To answer your questions, my pulsatile tinnitus and autophony are intermittent but frequent. Generally, day-to-day noise and goings-on often...
Thank you very much for your very kind and compassionate response. This forum has been so helpful to me over the last year - in large part because of people like you. It is very comforting to be able to chat with others who truly know what the tinnitus experience is like.
No one should have to...
Greetings,
Last Wednesday I was diagnosed with a rare medical condition: Superior Semicircular Canal Dehiscence (SSCD) of both ears.
When I developed pulsatile tinnitus (heartbeat sounds) on top of the non-pulsatile tinnitus (ringing), my local ENT laughed it off and told me I would simply...
After a period of debilitating anxiety (probably due to chronic stress and adrenal fatigue), I began to hear the "head noise" you mentioned. The tinnitus started in my right ear on August 4, 2019 (high pitch screeching train breaks/tea kettle whistle). On September 29, 2019, I could hear it in...
I agree, @Aaron44126. The beginning was pure hell. I'm 9 months in, and each day is slightly better. Baby steps accumulate. To all the T sufferers, hang in there.