ASilverLight
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Nov 26, 2020 at 7:28 PM
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ASilverLight

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Still don't get how one's tinnitus can fluctuate so bad throughout a day. Nov 21, 2020 at 6:52 PM

ASilverLight was last seen:
Nov 26, 2020 at 7:28 PM
    1. ASilverLight
      ASilverLight
      Still don't get how one's tinnitus can fluctuate so bad throughout a day.
    2. ASilverLight
      ASilverLight
      Left ear suddenly changed a tone (more like hissing) and keeps getting fleeting tinnitus. Pretty sure stable T is just a myth at this point
      1. Steph1710 likes this.
    3. ASilverLight
      ASilverLight
      I'm just so done with it all. This condition is cruel and knows no mercy. We need a cure.
    4. ASilverLight
      ASilverLight
      @Steph1710 I've noticed I make a lot of spelling mistakes which I'd never made before getting T. I'm not a native speaker though.
      1. Steph1710 likes this.
    5. ASilverLight
      ASilverLight
      Keep getting a thumping in my left ear that always starts between 6:30pm and 7:30pm and lasts until around 12 am and 1am. No known trigger.
      1. ASilverLight
        ASilverLight
        it's not rhythmic or constant, and it usually stops when I plug my ear.
        Sep 21, 2020
    6. ASilverLight
      ASilverLight
      Reactive tinnitus really is a whole different kind of cruel.
      1. Emgee and Kriszti like this.
    7. ASilverLight
      ASilverLight
      If only my tinnitus would stay at it's quietest I wouldn't have any issue.
      1. LilSass, wwtsai, Steph1710 and 2 others like this.
    8. ASilverLight
      ASilverLight
      Put me to sleep until they cure tinnitus please
    9. ASilverLight
      ASilverLight
      at this point all I want is mild T. I don't need it to be gone, just give me a mild stable form.
      1. musicblue likes this.
    10. ASilverLight
      ASilverLight
      At work and an alarm keeps blaring because of a technical issue ughhh
      1. aot likes this.
    11. ASilverLight
      ASilverLight
      Why oh why can I not tune out my T even though it's hardly loud
      1. Christiaan and Kriszti like this.
    12. ASilverLight
      ASilverLight
      Explanation for my T, by my ENT: negative emotion to a sound (what sound? Lol)
      1. Gabriel5050, Emgee, Lucifer and 2 others like this.
    13. ASilverLight
      ASilverLight
      And so today I join the 'useless ENT with no sympathy' club
      1. alanisnotadj, Lucifer, Zugzug and 3 others like this.
    14. ASilverLight
      ASilverLight
      When your regular tinnitus stops and you get that piercing fleeting T. Strangest thing.
      1. aot and Bill Bauer like this.
    15. ASilverLight
      ASilverLight
      Knowing your life is forever changed at 24 and you can't do anything your friends can sucks major ass.
      1. acute, stacey, TheDanishGirl and 8 others like this.
      2. View previous comments...
      3. Bill Bauer
        Bill Bauer
        Is it the case that you haven't experienced any improvement compared to how your T was back in February?
        Jul 30, 2020
        Christiaan and ASilverLight like this.
      4. Watasha
        Watasha
        Many of us can relate, but there are a lot of thing you can do that your friends can do too!
        Jul 30, 2020
      5. ASilverLight
        ASilverLight
        @Bill Bauer my tinnitus fluctuates too much to tell. No minute is the same. But overall, no, not really. Maybe I have slightly more better moments.
        Jul 31, 2020
        Kriszti likes this.
    16. ASilverLight
      ASilverLight
      VSS is randomly bad again. Seems to fluctuate as much and randomly as my tinnitus.
      1. View previous comments...
      2. ASilverLight
        ASilverLight
        @Gabriel5050 also keep in mind it's not a quiet day or a quiet few hours - it's a few minutes lol
        Jul 27, 2020
      3. Gabriel5050
        Gabriel5050
        Oh I thought it was longer periods of quiet. Sounds like the reverse phenomenon of fleeting t. Weird
        Jul 27, 2020
        ASilverLight likes this.
      4. ASilverLight
        ASilverLight
        @Gabriel5050 lol yeah I get fleeting T on top of it all too. I swear, I've never had any T, not even fleeting, until the start of this year but I got multiple fluctuating tones from the start. It's exhausting
        Jul 27, 2020
    17. ASilverLight
      ASilverLight
      Wish I could at least figure out what causes my fluctuations but nope, so random throughout the day
      1. Steph1710
        Steph1710
        Same. Mine used to be quiet in the mornings and loud in the evenings, but now it's completely reversed. So loud in mornings and the evenings are fine... T is fricken weird.

        And by weird, I mean shit.
        Jul 26, 2020
        tbuzz89 and ASilverLight like this.
    18. ASilverLight
      ASilverLight
      I've had VSS (very mild) for many years and I wonder if it made me more likely to get tinnitus...
      1. Christiaan
        Christiaan
        I can say with almost certainty that VSS will not make tinnitus more likely. Almost everyone in the family has VSS, but only my mother & I have T.
        Jul 23, 2020
        asey20, ASilverLight and Steph1710 like this.
      2. ASilverLight
        ASilverLight
        @Christiaan Yeah, other way around seems way more likely. To be honest I never even thought any of it until I read about it here - noticed it now and then. Now I'm more aware of it but it hasn't gotten worse thankfully. Maybe a bit in the dark, but still not bad. I do think vss is way more common than we think because I always thought of it all as normal - it's also super mild and stable for me.
        Jul 24, 2020
        Christiaan likes this.
      3. HeavyMantra
        HeavyMantra
        Everyone has some amount of VS. There is a link between tinnitus and more severe cases of VS though.
        Jul 24, 2020
        asey20 and ASilverLight like this.
    19. ASilverLight
      ASilverLight
      Past few days tinnitus has been less intense... fingers crossed it finally stays that way
      1. ASilverLight
        ASilverLight
        Fluctuations have been less... which is taking the edge off so much.
        Jul 20, 2020
      2. Christiaan
        Christiaan
        Sure do hope it goes the right way for you. Tinnitus can get better even after 6 months
        Jul 21, 2020
        ASilverLight and Steph1710 like this.
    20. ASilverLight
      ASilverLight
      I've never wished for anything more than to heal from this hell, honestly.
      1. LilSass, Bill Bauer, acute and 8 others like this.
      2. Lucifer
        Lucifer
        For real though, me too.
        Jul 20, 2020
      3. Steph1710
        Steph1710
        Although I still live my life how it was before T (though with ear protection), I still feel sick at the thought that this could be forever, or it could become worse; especially after my last major spike. I've decided to allow myself a 5 year plan. I'm going to try lenire for 2+ years, whilst I wait to see if any trials come to fruition. And if they don't, I'll try stem cells. This is the plan that keeps me going.
        Jul 22, 2020
        LilSass likes this.
    21. ASilverLight
      ASilverLight
      Waiting for the day I wake up feeling rested again. My bet? Won't happen unless they cure tinnitus.
      1. Christiaan
        Christiaan
        Ironically, I slept way better when I had mild T than it was before. It was only a low rumble that had something gentle. I just had to focus on it and within a few seconds I was in a deep slumber. But with the cacophony of multiple tones atm, boy does that change the game for realzies
        Jul 17, 2020
      2. ASilverLight
        ASilverLight
        @Christiaan I've always had insomnia so falling asleep was always hard. Big difference is quality of sleep, which was fine pre-t... now not so much.
        Jul 17, 2020
        Kriszti likes this.
      3. Christiaan
        Christiaan
        Have you tried some meds to help with your sleep? mirtazapine is not a miracle pill for someone with ADHD, but it sure does something for me with falling asleep and staying asleep
        Jul 17, 2020
        Kriszti and Steph1710 like this.
    22. ASilverLight
      ASilverLight
      For some the hope of a cure is the only thing that keeps them going. Let them have that.
      1. Emgee, Steph1710, Kriszti and 5 others like this.
      2. Christiaan
        Christiaan
        ''The Lord [Frequency Therapeutics] giveth [FX-322] and the Lord taketh [tinnitus] away; blessed be the name of the Lord''
        Job 1:21
        Jul 14, 2020
        Zugzug, Tanni, aot and 3 others like this.
      3. Steph1710
        Steph1710
        Agreed! Hope is all some of us have. I decided last night that I'm going to try Lenier whilst I wait possibly two years to see if one of the said treatments actually materialises. Then after those two years, if they haven't come of anything, then I'm trying stem cells which is stupidly expensive but, at least I will have tried.
        Jul 15, 2020
        Emgee, Christiaan and ASilverLight like this.
    23. ASilverLight
      ASilverLight
      sometimes T in left ear goes completely for a few minutes, sometimes it's blaring. Right ear is a bit more stable but def fluctuates too
      1. aot and Steph1710 like this.
      2. ASilverLight
        ASilverLight
        Fluctuations make it incredibly hard to say whether I'm actually improving or not though....
        Jul 12, 2020
        Steph1710 likes this.
      3. Steph1710
        Steph1710
        Mine is the same. I can't tell if the T is coming or going. Right now I have a hiss in one ear and a mild ring in the other, but it will be different tomorrow. I'm sure it makes it harder to habituate :-/
        Jul 12, 2020
        ASilverLight likes this.
      4. ASilverLight
        ASilverLight
        @Steph1710 yeah, definitely makes it hard - it's almost like a sense of false hope. It's happening a little more frequent now, so... for me it's just not even daily, it will literally change within the hour lol. Just cannot relate those changes to sound since they happen in complete silence too.
        Jul 12, 2020
        Steph1710 likes this.
    24. ASilverLight
      ASilverLight
      Listened to Coldplay's debut album in full today and enjoyed it all the way. I've missed that feeling so much. T, stay low forever.
      1. Christiaan, Zugzug, Lucifer and 5 others like this.
      2. View previous comments...
      3. ASilverLight
        ASilverLight
        @Emgee don't really have a favourite album by them - love them all for different reasons. One of the first bands I really got into when I was like.. 9
        Jul 12, 2020
        Emgee likes this.
      4. Emgee
        Emgee
        One of my favorite bands ever.
        Jul 12, 2020
        ASilverLight likes this.
      5. ASilverLight
        ASilverLight
        @Emgee same! also the reason I made it through my teens. Completely stopped listening to music due to T, but my mum told me about the Sao Paulo gig being on TV recently so I watched it... been listening to music again a little since.
        Jul 12, 2020
        Emgee likes this.
    25. ASilverLight
      ASilverLight
      When you mention you're suicidal to your ENT and they don't even go into it whatsoever.
      1. keka, Gabriel5050, Emgee and 3 others like this.
      2. View previous comments...
      3. ASilverLight
        ASilverLight
        I'm okay for now but you know the deal. Again my issue is mostly how loud mine gets, how much it fluctuates. I could deal with the T I usually wake up with but as soon as I lift my head it changes lol
        Jul 9, 2020
      4. Emgee
        Emgee
        This is torture. We need regen medicine now.
        Jul 9, 2020
        ASilverLight likes this.
      5. ASilverLight
        ASilverLight
        Regen meds, brain calming meds, and ptsd therapy after
        Jul 9, 2020
        Turgy and Emgee like this.
    26. ASilverLight
      ASilverLight
      My jaw continues to hurt, neck continues to be stiff, nose continues to be plugged. Ugh
      1. View previous comments...
      2. Julien87
        Julien87
        TMJ disorder?
        Jul 8, 2020
        ASilverLight likes this.
      3. ASilverLight
        ASilverLight
        @Christiaan dunno, I've just been congested for MONTHS. Won't ease up, but I have no allergies (got tested twice this year) nor any infection showing up in my blood work so who knows
        Jul 8, 2020
      4. ASilverLight
        ASilverLight
        @Julien87 I do suspect that but it's hard to get an appointment still, so cant get it confirmed right now. Wonder if it would explain my T fluctuating so much too
        Jul 8, 2020
    27. ASilverLight
      ASilverLight
      New symptom: actual thumping in my ear. I really feel like I'm only getting worse even though I'm protecting my ears
      1. stacey
        stacey
        Same here :(
        Jul 7, 2020
        ASilverLight likes this.
      2. tbuzz89
        tbuzz89
        Sorry to hear you're dealing with this now as well, @ASilverLight. I really hope things start to get better for you soon.
        Jul 7, 2020
        ASilverLight likes this.
      3. ASilverLight
        ASilverLight
        It's stopped. Dunno what that was about, came up randomly. Not triggered by sound etc
        Jul 7, 2020
    28. ASilverLight
      ASilverLight
      Can TMJ cause muscle spams? Not like TTTS as they sometimes occur when just moving my head.
      1. aot likes this.
    29. ASilverLight
      ASilverLight
      What I think a lot of people don't get, is that the way our lives have to change is much more of an issue than the actual noise we have.
      1. Ctw, LilSass, Joe C and 6 others like this.
      2. View previous comments...
      3. ASilverLight
        ASilverLight
        @TheDanishGirl I had super mild VSS for at least 10 years before getting tinnitus. It has gotten a bit worse since getting T though. Definitely must be a connection since combined suffering is so common
        Jul 4, 2020
        LilSass, aot and TheDanishGirl like this.
      4. Steph1710
        Steph1710
        *Clap Clap Clap*

        Everyone on this thread has perfectly summed up our "condition".

        People just don't get it! I can't even enjoy meal times because plates, glass, cutlery is all TOO much!!!

        The amount of ear protection I'm using right now just to use a drill is ridiculous. Every thing we now do, T has to be considered first.
        Jul 4, 2020
        LilSass, Joe C, aot and 2 others like this.
      5. ASilverLight
        ASilverLight
        I'm lucky that I have no hyperacusis (as far as I'm aware, there's always been noises I found uncomfortable even when i was 6 years old). But multiple tones and fluctuating tinnitus makes you really scared of anything making it worse.
        Jul 4, 2020
        tbuzz89, LilSass, Joe C and 2 others like this.
    30. ASilverLight
      ASilverLight
      i'm so tired of being sad.
      1. LilSass, Emgee, Christiaan and 4 others like this.
      2. Steph1710
        Steph1710
        I feel the most sad when I think back to the time when I was free of health problems but mostly, when I was free of T. I wish I could take this awful thing away from us all. <3 sending love.
        Jul 3, 2020
        LilSass, Christiaan, Kriszti and 2 others like this.
      3. ASilverLight
        ASilverLight
        @Steph1710 thanks, me too. I've never really been free of health problems but they were perfectly managable. T just took all of it.
        Jul 3, 2020
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  • About

    Tinnitus Since:
    01/2020
    Cause of Tinnitus:
    Probably noise, stress and a neck injury.